• 253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases

  • May 13 2024
  • Duración: 34 m
  • Podcast

253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases

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  • Resumen

  • Rob Long shares his journey with Uplifting Athletes, an organization dedicated to leveraging the influence of athletes to support those impacted by rare diseases. Rob and Brett Brackett took over leadership in 2018, revitalizing the organization's mission. They have several powerful initiatives including The Young Investigator Draft, Lift for Life, Leadership Development, and Uplifting Experiences.

    Rob reflects on the organization's impact, sharing a touching story of how a seed grant recipient's research saved his life. This personal connection underscores the profound ripple effect of Uplifting Athletes' work.

    Also in this episode:

    • Rare Resilience: Jose Flores, Motivational Speaker
    • Thank you notes: John the mailman and the Masterclass app

    Links and resources:

    • Rob's previous episode:
      • 070
    • Episode with Rob's Rare Resilience segment
    • Jose Flores social media:
      • Instagram
      • Facebook
      • LinkedIn
    • Visit our segment partner: #RAREis
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