Welcome to season 2 episode 9 of A Friend for the Long Haul - A Long Covid Podcast! This week's guest is Dr. David Putrino, Professor of Rehabilitation and Human Performance at the Icahn School of Medicine at Mount Sinai, Director of Rehabilitation Innovation for the Mount Sinai Health System was appointed the Nash Family Director of the CoRE - and so many other things. Dr. Putrino and I discussed the onset of the pandemic, its impacts on him and his team (we feel like we’ve aged about 10 years since March 2020), and how the work they did early on influenced their response when patients weren’t getting better. We also talked about how he and his team care for their own mental health, impediments to research, upcoming studies they have planned, and he answered listener questions like “will you adopt me” and my question which was, “how do I set up a PO Box in New York so I can come to the clinic?” 🤣 We also get into ableism, gaslighting, ways we can all best work together, and he answered the same questions I ask everyone at the end of each episode. Thanks, again, to Dr. Putrino for joining me! About an hour after we met, I tested positive for the vid again, which kind of made me feel like I was living in Alanis Morrisette’s “Ironic” video or Bizarro World.

I also want to add - yes, we talk about medical stuff, trauma, and meds and supplements. Just because you hear about those things on this podcast, doesn't mean you should start them. Always discuss everything with your doctor!

Find out more about the Cohen Center for Recovery from Complex Chronic Illnesses (CoRE) here: https://reports.mountsinai.org/article/rehab2024-02-core-center-opens

Follow them on Twitter here (yes, I thrive on spite and still call it Twitter): https://x.com/coresinai The team is putting out amazingly helpful videos on their YouTube channel and you should check it out, because a lot of questions listeners had can be answered by that content: https://www.youtube.com/@coresinai

And, of course, they're on Insta: https://www.instagram.com/coresinai/

You can follow Dr. Putrino on Twitter: https://x.com/PutrinoLab and Instagram: https://www.instagram.com/putrino_lab/

Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes.
You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392

If you'd like to support this low budget/high love podcast, you can check out my Bonfire shirt for silly long covid apparel: https://www.bonfire.com/store/a-friend-for-the-long-haul/

or my Amazon wishlist: https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share

Thank you for listening!

Welcome to season 2 episode 8 of A Friend for the Long Haul - A Long Covid Podcast! This week I chat with Jaydo, who you probably know from TikTok and Instagram. Jaydo creates videos focused on "Things You Should Know About Covid," and they've been incredibly successful.

In this episode we discuss:

• The Power of Community: Learn how Jaydo's COVID-conscious community is making a difference, including more about the CC Circle, his 0% lending circle for expensive Covid safety gear
• The Unexpected Influencer: what it's like to become a source of news for thousands
• Navigating a Divided World: We explore the challenges of being COVID-conscious in a society that often dismisses safety measures - including what it's like to date
• Listener-submitted questions: Jaydo and I answer questions about to handle difficult social situations, finding love while being cautious, and raising COVID-conscious kids (special mentions to @decolonize__ https://www.instagram.com/decolonize__/ and ShiShi Rose https://www.instagram.com/shishi.rose/ who both post wonderful round-ups of books and resources for children)
• A Deeper Dive: Delve into the socio-political implications of the pandemic and the importance of critical thinking

A friendly reminder: This episode is a bit longer than usual at about an hour and a half. Feel free to listen in chunks to preserve your spoons.

You can find Jaydo on TikTok at: https://www.tiktok.com/@JaydoCovid

and on Instagram at: https://www.instagram.com/jaydocovid/

Here is his linktree

and his YouTube channels: https://www.youtube.com/@JaydoCovid

https://www.youtube.com/@jaydomusic

Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes.

You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392

If you'd like to support this low budget/high love podcast, you can check out my Bonfire shirt for silly long covid apparel: https://www.bonfire.com/store/a-friend-for-the-long-haul/

or my Amazon wishlist: https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share

Thanks again for listening!

Welcome to season 2 episode 6 of A Friend for the Long Haul - A Long Covid Podcast! This episode features my friend, Laura Thomas. Laura and I met in an Austin, Texas-based long covid support group, and started talking when she found out that I had moved from Texas because I discovered that my MCAS symptoms improved out of state.

Laura hosts a podcast called Rescued By A Dog, which features stories of dogs saving their people. In this episode, Laura and I discuss:

• How we met and our long covid experiences
• Moving out of state in an attempt to see any improvement in our symptoms
• Acknowledging the privilege we both had to be able to move
• Low dose Naltrexone, Paxlovid, anesthesia, and ketamine therapy (none of this is medical advice!)
• What we call "zero dignity moments" with chronic illness
• EMDR, brain retraining, staying present
• "Resentment rebellion"
• Lymphatic massage
• The story behind Rescued by a Dog

Find Rescued by a Dog on Spotify: https://open.spotify.com/show/0t6XikdERybsS3wwwaJb6j?si=c1654161e4504d1e

And Apple Podcasts: https://podcasts.apple.com/us/podcast/rescued-by-a-dog/id1648960693 Support the podcast via Laura's Patreon: https://www.patreon.com/RescuedbyaDogPodcast

Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes.

You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392

If you'd like to support this low budget/high love podcast, you can check out my Bonfire shirt for silly long covid apparel where I'm raising money for a pro license of Zoom (as of right now, I can only record 30-40 minutes at a time and then we have to hang up and come back. Not great for conversational flow!): https://www.bonfire.com/store/a-friend-for-the-long-haul/

or my Amazon wishlist: https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share

Thanks again for listening!