AiArthritis Voices 360 Talk Show  Por  arte de portada

AiArthritis Voices 360 Talk Show

De: International Foundation for Autoimmune & Autoinflammatory Arthritis
  • Resumen

  • On Sunday, join International Foundation for AiArthritis and fellow patient cohosts as they lead discussions in the patient community as well as consult with stakeholders worldwide to solve the problems that matter most in the AiArthritis community.
    Copyright 2019 All rights reserved.
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Episodios
  • EP 99 - AiArthritis Diseases and Protecting Against COVID-19 in Healthcare Settings
    Jul 7 2024
    In this episode, co-hosts Charis Hill and Jae Walker delve into life after COVID-19, focusing on the unique challenges faced by individuals with AiArthritis diseases. They discuss the importance of continued precautions in healthcare settings, share their own personal experiences, and offer practical advice for staying safe. Tune in for an insightful conversation on navigating the ongoing reality of COVID-19 while managing chronic illnesses. Episode Highlights Understanding the ongoing complexities of COVID-19 for immunocompromised individuals and those on immune-suppressing medications.Jae and Charis share their journey living with chronic disease, their experience with COVID-19 and managing COVID prevention now.Discussion on recent public health recommendations and the importance of wearing masks, social distancing, and testing.Addressing the need for safe healthcare environments and advocating for better protections for high-risk patients.Encouraging listeners to resume mask-wearing, improve air quality, and initiate conversations with healthcare providers about safety measures. Join us for this episode to gain valuable insights and actionable steps to protect yourself and others in the AiArthritis community. Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp Donate to Support the Show: https://www.aiarthritis.org/donate Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE Resources & Links: Jae’s blog - When I Had Co-Vid: https://creakyjoints.org/living-with-arthritis/coronavirus/patient-perspectives/when-i-had-covid/ COVID Keeps Rising in Bay Area Wastewater. What to Know, From New Variants to Symptoms: https://www.kqed.org/news/11987343/covid-bay-area-wastewater-variant-symptoms-isolation-guidance CDC “People with certain medical conditions” page: https://www.cdc.gov/coronavirus/2019-ncov/need-extra-precautions/people-with-medical-conditions.html CDC page “How to protect yourself and others” https://www.cdc.gov/coronavirus/2019-ncov/prevent-getting-sick/prevention.html People’s CDC resource page for requesting COVID healthcare reasonable accommodations: https://peoplescdc.org/2023/05/09/ada-rights-workshop/ Connect with our Co-Hosts: Charis Hill, who uses they/them pronouns, is a disability activist, writer, speaker, and model living with conditions such as Axial Spondyloarthritis and Ehlers Danlos Syndrome. They use narrative engagement to advance social justice for multiply-marginalized disabled people and have been featured internationally in media and the documentary "Becoming Incurable." Charis has written for HealthCentral, Healthline, and Business Insider, and has been recognized by the Arthritis Foundation and Spondylitis Association of America for their advocacy work. Connect with Charis: Twitter: @beingcharisblog Tikok : @beingcharisblogFacebook: @beingcharis Jae Walker, who uses they/them pronouns, is a disabled artist with multiple autoimmune diseases such as Rheumatoid Arthritis, Reynaud’s Syndrome, Asthma, Mast Cell Activation Syndrome, Small Fiber Neuropathy and more. They express their issues with chronic pain, fatigue, brain fog, loneliness, disconnect, etc by blogging and creating art for Creaky Joints. They have also exhibited artwork in New York and Michigan, as well as spoken out on the patient experience at conferences such as Medicine X. Advocacy about treating patients with compassion and humanity is a driving force behind everything they do. Connect with Jae: Threads: @JaelehWalker Instagram : @UnexpectedAdvocateFacebook: @UnexpectedAdvocate AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on Feedspot!
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    55 m
  • Episode 98 - Mental Health with AiArthritis Diseases
    Jun 2 2024

    In this episode, our co-hosts Estela and Juana delve deep into the often overlooked but critically important topic of mental health for those living with AiArthritis diseases. They discuss the significant impact these health challenges have on both the body and the mind, supported by eye-opening statistics that 52% of patients with autoimmune diseases are diagnosed with a mental health condition within a year. Tune in to hear Estela and Juana break down the science behind these connections, share their personal experiences and provide practical strategies to manage mental health while navigating life with AiArthritis diseases.

    Episode Highlights:

    • Defining AiArthritis diseases and their comprehensive impact on mental health
    • Discussion on the challenges of living with unpredictable flares
    • Juana's personal experience with rheumatoid arthritis and lupus and their impact on her mental health
    • Importance of self-care strategies such as rest, nutrition, exercise, and mindfulness techniques.
    • Benefits of therapy, counseling, and connecting with social support groups.

    Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp

    Donate to Support the Show: https://www.aiarthritis.org/donate

    Follow AiArthritis on all social media platforms @IFAiArthritis

    Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

    Connect with our Co-Hosts:

    Estela is the President and co-founder of Looms for Lupus, a nonprofit providing advocacy and support for those affected by Lupus, Fibromyalgia, and mental health issues. With over 30 years in healthcare, she currently supports private practices with electronic medical records and office workflows. Estela co-founded Looms for Lupus in 2011 after her sister's near-fatal battle with Lupus and Immune Thrombocytopenia, channeling her passion into empowering and supporting the community. She collaborates with initiatives to increase diversity in clinical trials and advocates both locally and nationally.

    Connect with Estela:

    Facebook:@estelamata @looms4lupus

    Instagram: @estela_mata @looms4lupus

    Twitter: @estelamata @looms4lupus

    LinkedIn: @Estela Mata-Carcamo

    Website: www.looms4lupus.org

    Juana is the co-founder of Looms for Lupus, a nonprofit supporting Lupus survivors, their families, and caregivers. Diagnosed with Rheumatoid Arthritis and Lupus in 2009, she facilitates bilingual support groups and advocates nationally for Lupus, Fibromyalgia, and Mental Health. Juana has served as a patient advisor, consumer advocate, and is a member of several advisory councils and task forces. Professionally, she is a Children's Social Worker for the Los Angeles Department of Children and Family Services.

    Connect with Juana:

    Facebook: Juana Mata

    Instagram: @juany_mata

    Twitter: @Matajuanamata

    LinkedIn: Juana Mata

    AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on Feedspot!

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    47 m
  • Episode 97 - World AiArthritis Day
    May 5 2024

    In this episode, Leila shares the exciting plans for the upcoming World AiArthritis Day on May 20th with AiArthritis. Delve into why raising awareness for AiArthritis diseases is crucial and discover ways you can actively participate on the global initiative. Through flashback segments, our co-hosts dissect the layers surrounding the term "arthritis," unraveling misunderstandings, family judgments, and the complexities of distinguishing AiArthritis from other conditions. Tune in for insightful discussions on diagnosis delays, access to treatments, fostering better health outcomes and how you can be a part of World AiArthritis Day!

    Episode Highlights:

    • AiArthritis plans for World AiArthritis Day on May 20th
    • How listeners can actively engage in the global initiative
    • Common Misunderstandings of Arthritis
    • Significance of raising awareness for AiArthritis diseases and the complexities of distinguishing AiArthritis from other conditions.
    • Patient insights into diagnosis delays and the effects on treatment plans.

    Interested in getting involved?

    https://www.aiarthritis.org/aiarthritisday

    https://twitter.com/aiarthritisday

    https://www.instagram.com/worldaiarthritisday

    https://www.facebook.com/AiArthritisDay

    Fundraiser: https://givebutter.com/AiArthritisWAiAD24

    Race-a-Thon: https://www.facebook.com/events/1511735302713694/

    Donate to Support the Show: https://www.aiarthritis.org/donate

    Follow AiArthritis on all social media platforms @IFAiArthritis

    Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

    Connect with our Co-Hosts:

    • Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @Lupus.Lifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.

    Connect with Leila:

    Instagram: @lupus.lifestyle.lei

    TikTok: @lupus.lifestyle.lei

    AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on Feedspot!

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    34 m

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