In this episode, Alex Wykoff, vulnerably shares her patient journey through Lupus.

We discuss the lengthy period searching for answers and being dismissed by the medical community. Alex shares how she was able to advocate for herself and navigate the clinical trial landscape. She outlines the challenges with getting doctors to talk to one another and ensuring one's care team has all pertinent information. Alex shares about getting a doctor to think she was "worth their time" and building a partnership to address her health.

Alex tells about the emotional and physical toll of her journey and the power of resiliency. She shares how she was able to find momentum and develop a positive identity.

She shares practical tips for how to document and effectively communicate symptoms to aid with diagnosis. She talks about how to find accurate information and engage with support groups.

Ales's journey is one of resiliency and personal growth.

About Alex, in her own words:

As a native of Fairfield, Connecticut, a graduate of Gettysburg College, and a 6 year resident of New York City – it’s safe to say that I should probably get out more. In 2016 I was formally diagnosed with Lupus CLE/SLE – a chronic and complex autoimmune disease. Thanks to the support of my amazing family, friends, colleagues, and my exceptional “Dream Team” of physicians and specialists, I am grateful for the strength and resilience that living with lupus has taught me.

I firmly believe that care is contingent on communication, and through my own personal journey I’ve found a passion for patient advocacy, clinical research, and health literacy. By furthering the dialogue and contributing to clinical research, we can collectively contribute to the creation of the next life changing or lifesaving treatments globally.