Episodios

  • The Influence of Family Health History on the Diagnosis of hATTR Amyloidosis

    The Influence of Family Health History on the Diagnosis of hATTR Amyloidosis
    Jun 27 2024
    Bernice Bennett, genealogist, health education specialist, and co-founder and faculty member of the Midwest African American Genealogy Institute, discusses the Family Health History Road Trip, which emphasizes the important role family health history can play in driving earlier diagnosis of hATTR amyloidosis. Bernice is joined by Giselle, a program participant living with hATTR amyloidosis who shares her experiences with amyloidosis and how she approached conversations with her family about this disease, as well as hATTR amyloidosis expert, Dr. Saurabh Malhotra, Director of Advanced Cardiac Imaging at Cook County Health, Chicago, IL. For more information on the Family Health History Road Trip visit https://www.hattrbridge.com/roadtrip
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    20 m
  • Beyond Brain Injury

    Beyond Brain Injury
    May 2 2024
    Elisabeth Beraquit, a Philadelphian, CPA, and former bakery owner, recounts her painstaking journey of recovery from a traumatic brain injury due to a 30 foot fall.
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    27 m
  • Surviving Stroke: 2 Surgeons Experience with Recovery

    Surviving Stroke: 2 Surgeons Experience with Recovery
    Feb 8 2024
    Siva Murugappan, MD, General Surgeon, Chatham-Kent Health Alliance, Ontario, Canada, shares his own experiences as a patient recovering from an ischemic stroke. He is joined by his wife and caregiver, Dr. Prema Samy, Otolaryngologist, Chatham-Kent Health Alliance, Ontario, Canada, as they both discuss their transition from physician, to their respective roles as patient and caregiver in the recovery journey. 
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    31 m
  • Ping Pong and Parkinson Disease

    Ping Pong and Parkinson Disease
    Dec 28 2023
    PingPongParkinson founder, Nenad Bach, discusses why he started PingPong Parkinson. He is joined by Gabe Elkinson and Ryan Dong, two high school students who started a PingPongParkinson chapter in Georgia, and Pierre Russell, a PingPongParkinson participant. 
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    31 m
  • Epilepsy Caregiving

    Epilepsy Caregiving
    Dec 5 2023
    Caregivers play an important part in the patient journey, especially with conditions such as epilepsy. Actor and podcast host of "Talk About It!" Greg Grunberg discusses how caregivers can educate themselves and their loved ones about how best to thrive.
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    29 m
  • SMA Experience: Episode 2

    SMA Experience: Episode 2
    Nov 21 2023
    Neuromusclar disease expert Diana Bharucha-Goebel, MD, PhD chats with Traci High, mother of two patients with SMA about how the SMA treatment landscape, and her childens' lives, have changed over the past 15 years.
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    50 m
  • SMA Experience: Episode 1

    SMA Experience: Episode 1
    Nov 13 2023
    Neuromuscular disease expert Charlotte Sumner, MD chats with her patient Nicole Moore about some of her life goals and how recent treatment options have changed the conversations between them.
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    18 m