Episodios

  • What do Profound Autism Caregivers Need?

    What do Profound Autism Caregivers Need?
    Jul 29 2024
    In part 1 of a 3 part series on Profound Autism, ASF interviews Emily Ferguson, PhD from @Stanford shares what she learned by asking parents and caregivers of Profound Autism “what do you need?” The short answer was: “There is No Help“. The responses were overwhelmingly focused on inclusion in any program or service, since …

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    29 m
  • Recurrence rates for families with an ASD child

    Recurrence rates for families with an ASD child
    Jul 21 2024
    What is the probability of having a future child with autism if you already have one or more? Families want to know. It helps preparation, planning, will hopefully improve early screening and supports. The Baby Siblings Research Consortium analyzed a bigger group of siblings compared to their 2011 numbers and found the recurrence pretty stable …

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    15 m
  • Alison Singer appears on @LifeWithTheSpectrum

    Alison Singer appears on @LifeWithTheSpectrum
    Jul 15 2024
    In case you missed it, listen to Alison Singer with Gina Kavali on her podcast @LifeWiththeSpectrum. Alison talks about the importance of autism research and science in general, and how families can get involved.
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    20 m
  • Culturally sensitive care with Mia Kotikovski

    Culturally sensitive care with Mia Kotikovski
    Jul 7 2024
    On this week’s podcast, Mia Kotivkoski, founder of her own 5013c and recent graduate of Stony Brook University, reviews why understanding cultural and contextual factors influence not just an autism diagnosis but general health and outcomes of a broad group of people. They include immigrants, racial and ethnic differences, and socio-economic factors. What can be …

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    14 m
  • Breakthrough for those with rare genetic disorders

    Breakthrough for those with rare genetic disorders
    Jun 29 2024
    This week, more on genetics as an influence to an autism diagnosis with a twist: can genetics lead to a specific treatment for core symptoms – across the board? How do you measure such broad symptoms? Our Rett Syndrome family friends and colleagues developed a novel outcome measure to capture what was most important to …

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    12 m
  • The Transcription Factor Song

    The Transcription Factor Song
    Jun 23 2024
    Very rarely are scientists able to look at single genes within the brains of people across neuropsychiatric disorders and understand how the genes in each of these cells influence expression of proteins and interactions of different cells with each other. Recently, a collaboration called PsychENCODE released a series of papers that investigated what genes are …

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    20 m
  • Father of mine

    Father of mine
    Jun 17 2024
    In recognition of Father’s Day on the 16th, today’s podcast includes the latest research on fathers. Fathers may often be the “secondary caregiver” but should hardly be dismissed as inconsequential. Father’s sensitivity and insightfulness plays an important part in development, psychiatric diagnoses (including autism) change the the chance of having a child with autism, and …

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    11 m
  • We need more psychiatrists with expertise in autism

    We need more psychiatrists with expertise in autism
    Jun 10 2024
    General psychiatrists are trained deal with a range of psychiatric issues in a variety of areas, but very few have experience helping families of children and adults with autism. This is training that is desperately needed, as, like other professions, there are not enough psychiatrists to help families and waitlists are staggering. Dr. Arthur Westover …

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    43 m