In this episode, we’re excited to sit down with Hilary Kruchowy, the new Executive Director of the New Jersey Center for Tourette Syndrome (NJCTS). Hilary shares her journey, from her beginnings in art history to her transition into nonprofit leadership, culminating in her new role at NJCTS. We dive into Hilary’s vision for the organization, particularly how she plans to build on the legacies of past leaders while bringing her own fresh perspective to the table. We also discuss the incredible impact of NJCTS programs, including the Leadership Academy and the Rutgers partnership, as well as some exciting upcoming events like the 20th Anniversary Gala and the Parent-Teen Summit. Whether you’re part of the TS community or just curious about the work being done, this conversation is a great way to get to know NJCTS and its future under Hilary’s leadership.

Episode Highlights:
[0:00] - A special announcement about the NJCTS 20th Anniversary Gala.
[2:11] - Hilary Kruchowy discusses her background in nonprofit work and how it prepared her for her new role.
[3:58] - Reflecting on the legacies of past leaders, Faith and Pat, and how Hilary plans to honor their work.
[7:50] - Hilary shares her vision for the future of NJCTS, including expanding programs to serve more of the TS community.
[10:00] - The global impact of NJCTS programs and the challenges of state-level funding.
[13:12] - The importance of educating pediatricians and neurologists about Tourette Syndrome.
[16:24] - Exciting new initiatives like the Parent-Teen Summit and how they foster connections within the TS community.
[22:56] - A deep dive into NJCTS’s advocacy work at the state level and the critical role it plays in securing funding.
[26:46] - How listeners can get involved with NJCTS, from volunteering to joining the mailing list.

Links & Resources:

NJCTS 20th Anniversary Gala: https://njcts.org/20thanniversarygala/

Remember, each story shared on this podcast brings light and understanding to the diverse experiences within the Tourette's community. Your journey is your own, and it's filled with potential and promise. If this episode resonated with you, I encourage you to like, share, and leave a review to help us connect with more listeners.

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