• "Celebrating Good News" for Rare Disease Day

  • Mar 21 2024
  • Duración: 23 m
  • Podcast

"Celebrating Good News" for Rare Disease Day

  • Resumen

  • Yes, we're a few days late, but we discussed some "Good News" that was shared on Rare Disease Day, February 29th. We'd love to hear what you think.
    We also got a new mascot and are in the process of naming them. (We are all inclusive so our mascot uses they/them pronouns.) Listen in to find out who the mascot could possibly be. Big surprise: it's NOT A ZEBRA!

    We're on YouTube too: https://www.youtube.com/@taleoftwozebras

    Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:
    https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US

    Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.com

    Here is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf

    If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com

    Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

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