Episodios

  • Episode 26: The Wood - A true Coming of Age Story while living with Type One Diabetes
    Jul 30 2024

    Join T1D Registry for Clinical Trials and Research


    Tune it to the amazing Telle (Chantelle). Diagnosed with Type One Diabetes at age 7, 17 years ago.

    This conversation is titled, The Wood due to the coming-of-age story Chantelle shares throughout this conversation that is literally the Diabetes version of

    the classic film.


    Chantelle grew up in rural NC where the closest hospital is literally 1 hour away.


    She is a singer, songwriter, producer

    and a mentee for The Recording Academy's Grammy U Mentorship program.


    A graduate of NC State that does a lot of work in social justice and disability just to help T1D's find representation and community because representation matters!


    Telle, didn't realize coming up that having higher blood sugar levels affected how she was emotionally or even

    perceived in certain settings and situations.


    In this conversation we speak immensely about doing things to get the general public to understand what it is that we feel and go through and is focusing a lot more today on helping insulin become accessible to all.


    In 2024 with her diabetes turning 17 and growing up and resenting diabetes, she just wants to express to the world that struggling with diabetes isn't the prettiest, but they will know that eventually it will be ok.


    Follow Chantelle on instagram


    Mentions:

    Dexcom

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    Medtronic

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    1 h y 46 m
  • Episode 25: PAMDEMIC!
    Jul 29 2024

    In this conversation we speak greatly about how living through and surviving the Pandemic looks and feels different for everyone. The mental well-being of many

    living with diabetes during the pandemic was hanging from a thread!


    A few weeks before the shut down of 2020 Pam was Diagnosed with T1D. It was a journey to her diagnosis, previously being diagnosed with gestational diabetes while pregnant with her daughter and later on being misdiagnosed as T2D.


    Today she has been living with diabetes for a total of 9 years and formerly diagnosed and living with T1D the last 4.

    Pam spent a great part of the past decade working in education as a teacher and recently transitioned to the non profit sector.


    Being diagnosed at the age that she was, diabetes did kind of make her mad. She lived a full life beforehand without the worries of time and added on decisions and responsibilities that entail living with diabetes.


    With people not understanding why today she uses the devices and technology she does use; it has also made her people look at her more differently. Many also do not understand why it is that she does speak about diabetes today.


    A great portion of our conversation is us speaking about parenting while living with diabetes. Although diabetes should be at the forefront of our care, it never will be while caring for our kids. We can't tell our children,

    "No, hold on, I can't etc" due to diabetes.


    We speak greatly about accommodations in the workspace and how employers and coworkers

    alike have reacted to a person checking their glucose numbers.


    My sister Pam and I have so many commonalities other than us both living with Type One Diabetes.

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    1 h y 53 m
  • Episode 24: Straight Outta Compton!
    Jul 27 2024

    Amanda has been living with Type One Diabetes since 1996. She was diagnosed at the young age of 9

    Being from Compton, CA and us having the "memory lane" conversation we held it was only right to title this episode Straight Outta Compton!


    Her family all had the flu around Thanksgiving '96 and by Christmas she was spending the holiday in the hospital receiving this diagnosis of T1D.


    Her mom was diagnosed with T2D a year after her diagnosis. Her son at the age of 9 received a T2D diagnosis. In this conversation we honor Amanda's parents.


    Amanda says that becoming a mother and her kids saved her. She knew now that she must take care of herself so that she can be present for them. She thanks the universe for being given the opportunity to become a mom

    It took almost a quarter of a century before she feels she was given adequate care from her providers.

    Amanda speaks openly about switching your mindset and switching your care team if needed.

    "We have a lot of the power. We must own it and learn to voice your needs." Her perspective of living with diabetes has changed drastically. Now she knows that she can do all of the things she wants to.


    Today Amanda is thankful for where she is considering all the years of ups and downs and the trials and tribulations of her diagnosis.

    Follow Amanda on Instagram

    Mentions

    Trialnet.org See if you have the autoantibodies that lead to T1D

    Omnipod

    Dexcom

    Join the T1D Registry So that your voice as a person living with T1D is represented in clinical trials and research



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    1 h y 52 m
  • Episode 23: InnerViews
    Jul 25 2024

    On this episode we hear from Ivory. Ivory has lived a great life of resilience!


    Ivory is host of InnerViews Podcast, a podcast series that does a deep dive into topics surrounding trauma, mental and emotional health, well-being, and the unique challenges faced by Black women in the realm of healing.


    Ivory is a world traveler who truly enjoys international escapes into nature.


    Ivory grew up in the foster care system of Pittsburg until she aged out, having lived in multiple foster care homes.

    Today she is a strong advocate for foster care and committed to education equity.


    Ivory is a writer and poet, and she has specific interests in epigenetics and the impact on herself now, and her ancestorial lineage.


    Ivory hopes that somewhere, some little black or brown girl can see her, that lives with type one diabetes

    and may have been through foster care can look at her and say, "If Ivory did it then maybe I can do it too."


    PSA for all parents, caregivers of someone diagnosed with a chronic health condition DO NOT LEAVE

    THEM IN THE HOSPITAL BY THEMSELVES!!


    ivory@fosteringmediaconnections.org LinkedIn: http://linkedin.com/in/ivorybennett IG: https://instagram.com/ivorybennett?r=nametag FaceBook: https://www.facebook.com/ivory.bennett You can learn more about Ivory’s work with Youth Voices Rising Here: Website: https://www.fosteringmediaconnections.org/yvrhttps://www.instagram.com/youthvoicesrising?igsh=MTRkbnZpN2s1YmlwZw== Facebook: https://www.facebook.com/YouthVoicesRising?mibextid=LQQJ4d Podcast Listen Here: InnerViews Podcast: * Apple Music: https://podcasts.apple.com/us/podcast/innerviews/id1729897868 * Spotify: https://open.spotify.com/episode/3LJh4vjCULihF2NJZR4yRn?si=aSTejT2cSiaThztnmdTmTg

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    1 h y 45 m
  • Episode 22: California Dreaming
    Jul 21 2024

    Join T1D Registry to aide in diabetes research HELP T1D's

    On this episode we are gifted Anais. Anais was diagnosed with Type One Diabetes at 15 years young. She also has a nephew that is 10 & he was diagnosed at 22 mos.


    Anais greatly remembers life before her T1D diagnosis. This year marks her 12th year letting diabetes ride this journey called life with her.


    Since age 8 she has loved soccer and today plays club soccer and professionally.


    Her love for her family is second to none and she enjoys every moment she can to celebrate with them.


    Her friends that showed up in the hospital during her diagnosis are still equally her support sisters today!


    After two weeks of symptoms, she came to her mom and told her that "This is diabetes." One of her soccer teammates moms was an endocrinologist and told her mom that she should check for diabetes due to her weight loss, tiredness, shortness of breath etc.


    Her mom checked her blood sugar and then told her that the machine did not work. Later on, her mom told her that it was over 600! Then she told her mom, let's go to the hospital!

    The diagnosis was a great relief because after going to the hospital and getting her diagnosis and insulin, she spent her first night in a while without having to continuously go to the bathroom and drink nonstop!

    Although the diagnosis was transformative as a high school student it didn't quite hit her hard until she was in college.


    On the day a cure is here she will first contact her sister and nephew to celebrate with them!


    Soon Anais will begin her PHD studies to continue aiding in the research and opportunities for people living with diabetes


    Follow Anais on instagram Anais Instagram

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    1 h y 47 m
  • Episode 21: The Quietest Storm
    Jul 20 2024

    On this episode you will hear from Amanda,

    Diagnosed at age 13 and in the midst of transitioning into High School, nothing with this diagnosis was in her

    favor. A great deal of even her 1st two years were detrimental to her overall well-being.


    Her care, from day 1 belonged solely to her. With the added-on fluctuations and hormonal challenges that are

    becoming a young woman were increased drastically with this new diagnosis. Not only was it affecting her

    physically they were harming her mentally. She recalls people telling her, "Don't be so emotional."

    No one understood what life living with diabetes, life with a new chronic health condition, even life as a teen

    was.


    By the age of 16 she was told that she was spilling protein in her urine. Yes, the onset of kidney disease

    for this child that was already forced to take on the responsibility of raising diabetes. More recently Amanda

    was diagnosed with MS.


    Today, Amanda shines bright and wants to help others to in their healing journey as well.


    Follow Amanda on instagram a.marie_





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    2 h y 21 m
  • Episode 20: Accepting Aneilia
    Jul 19 2024
    On this episode you will hear from our community's superstar, Anita, Diagnosed at age 17 with an A1C of near 30 and glucose levels over 1500 one would question how she was even alive. At the time she was more than alive but still alert and aware and even questioned why everyone was acting in panic. At the age of 17 where she was to be completing her senior year in high school, a boulder was tossed her way. That boulder being, Type One Diabetes. With this she was forced to miss most of her senior year of high school due to being in and out of the hospital. She ultimately completing most of her schooling at home. This was before virtual classrooms and highspeed internet service. During her diagnosis she also suffered from nerve damage in her legs and feet that prevented her from walking for months. Today Anita is a dance instructor. Yes, she overcame the nerve damage to now tap and bop in any direction she chooses! An accomplished actress she is, having portrayed many roles. Today, Anita has endless hope for our community of POC living with Type One Diabetes and she equally loves to celebrate us all!! Everything Anita: http://www.imdb.me/anitanicolebrown http://www.facebook.com/AnitaNicoleBrown http://twitter.com/AnitaNBrown https://www.instagram.com/anita_nicole_brown/ https://www.amazon.com/gp/video/detail/B07PW43H2X/ref=atv_dp_share_cu_r https://www.amazon.com/gp/video/detail/B07YVKWQ79/ref=atv_dp_share_cu_r https://www.amazon.com/gp/video/detail/B0B1Q5Z9SC/ref=atv_dp_share_cu_r https://www.imdb.me/anitanicolebrown
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    2 h y 5 m
  • Episode 19: Lady Sings the Truths
    Jul 18 2024

    Welcome to the Chronically Will Podcast where we have real conversations with community that need to be heard.

    On this episode you will hear from Aajahne.


    Aajahne was diagnosed with Type One Diabetes at the age of 20 in 2016. The entirety of diabetes was new to her

    and her family. Not knowing anyone else with diabetes, she did everything to rid of this disease.


    Her father even found holistic health providers for her that promised remedies that could rid of her diabetes,

    not having any perceived notion of diabetes care this led to an episode of DKA.


    DKA forced Aajahne to demand education in management, something that was not a given during diagnosis.


    In this episode we speak greatly about proper medical etiquette. During her diagnosis she was thrown

    a heavy ball, a bowling ball! Her medical team released her "to the streets" without and guided resources

    and education. She was forced to seek the information to live on her own.


    Having lived 20 years before her diagnosis, she recalls life without diabetes and the traumatic experience

    of this new diagnosis.


    Aajahne is a new mother and as of April a newlywed! Today, she is in full control of her own narrative. Her

    baby boy is her truest passion.



    Follow Aajahne on Instagram

    https://www.instagram.com/iamaajahne/


    Follow Chronically Will Podcast on Instagram

    https://www.instagram.com/ChronicallyWillPodcast


    Host Willie Streets aka T1DArtist

    instagram.com/t1dartist


    ChronicallyWillPodcast

    instagram.com/chronicallywillpodcast


    ⁠⁠If you would like to be a guest view the google interest form here: ⁠⁠https://docs.google.com/forms/u/0/d/18cBV_vHO5a3WB1tFIP4pg14hGwRA0rJptI3l1FC6iDo/edit?pli=1⁠⁠


    “You can make an impact on the future of diabetes healthcare, treatments, and technology by

    participating in the T1D Exchange Registry. It starts with a simple online survey about your life with

    T1D. It takes 15 minutes!” ⁠https://t1dexchange.org/will-streets/#⁠


    Mentions in this episode


    Omnipod

    Dexcom

    TrialNet

    CWD Journey Award Request - Children with Diabetes


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    1 h y 39 m