S1, E6 Show Notes

EPISODE 6 SUMMARY: In this episode of Before Birth & Beyond, in honor of Sickle Cell Awareness Month, our main story this episode focuses on Sickle Cell Disease. Project staff at NICHQ explore how new treatment options are incorporated into project work, how equity is considered, and what resources and supports are helpful as young people transition from pediatric to adult care.

Main Story: Sickle Cell Awareness Month: Transitioning to College, Equity Considerations, and Resource Sharing

SEGMENT SUMMARY: For our main story in this episode we are joined by NICHQ Director of Project Operations Kim Sprunck, MSW, MPH and Madeline D'Onfro, MPH, Project Manager and contributor for a college guide to transition. Both of our guests work on sickle cell-related projects at NICHQ, and will share more about NICHQ's work and resources providers and families can lean on to support those living with SCD. We'll also hear from TaLana Hughes, a parent of an SCD warrior, about transitioning to adult care. Stay tuned!

RELATED LINKS:

• Interview Transcript
• Project Page: Hemoglobinopathies National Coordinating Center (HNCC)
• NICHQ Blog: 4 Strategies for Transitioning from Pediatric to Adult Care for People Living with Sickle Cell Disease
• NICHQ Resource: Model Protocol
• NICQ Resource: Compendium of Tools & Resources

Why I Work in MCH

This month, Madelne D'Onfro, MPH, a project manager on the Hemoglobinopathies National Coordinating Center (HNCC) shares her passion for creating systems that protect members of society who are marginalized the most and improving experiences for those with the highest needs.

Learn more about the rest of NICHQ’s team at https://www.nichq.org/about/team.