Fantastic Pains and How We Hide Them  Por  arte de portada

Fantastic Pains and How We Hide Them

De: Chris Hill & Corina Bose
  • Resumen

  • Join on us on our individual journeys living, coping, and laughing at our lives with Ehlers Danlos Syndrome or EDS. We intend to raise awareness about invisible Illnesses, commiserate with fellow chronic disease friends, and share our own coping strategies and advice we have accumulated on our respective journeys
    Chris Hill and Corina Bose 2021
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Episodios
  • 8x4 draft
    Jul 13 2024

    This episode we break into the vast topic of fear -- in a chronic, invisible, or even general medical worlds there's a lot of this. It can range from the fear of not knowing, fear of the future, fear of your symptoms, how your condition might impact your loved ones... What are your thoughts on this subject? Feel free to chat with us below!

    Our Website -- https://www.fantasticpains.com/

    Our PAIN-treon! -- https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: -- https://discord.gg/Zp7jxdmYSJ Looking for more of us? Looking for something a little different? Check out our other channel! -- www.youtube.com/ChaosandConversations_ (It's currently ChaosandConversations_ don't forget that underscore!) ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter: https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlos #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks #medical #medicalpodcast #EDSpodcast #medicalsiblings #siblings #siblingpodcast #podcats #podcast #podcasting #podcaster #medicallife #familyvlog #illnesses #geneticdisorders #geneticgenealogy #flexibility #ehlersdanlossyndromes #ehlersdanlosawareness #edspodcast #reaction #diagnosis #misdiagnosis #medical #medicine #podcasters #podcastshow #podcastlife #podcastshow #siblingsvlog #siblinggoals #inthistogether #chillvibes #chill #kindnessmatters #kindness #sickseries #sick #condition #togetherness #together #invisible #invisiblepeople #invisiblestrong

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    55 m
  • The many faces of Commiseration
    Sep 9 2023

    Commiseration is something we've touched on before in aspects. In this episode we go over the journey we went through early on. How commiseration looked while we were getting diagnosed versus how it's developed current-day. It manifests in a variety of ways depending on the relationship between people and for the chronically invisible can make all the difference in living with a condition. Our Website: https://www.fantasticpains.com/ Our PAIN-treon!  https://www.patreon.com/FantasticPainsandHowWeHideThem  Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ  ____________________________________________________________________

     chill. by sakura Hz https://soundcloud.com/sakurahertz  Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: http://bit.ly/chill-sakuraHz  Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo  ____________________________________________________________________  You can find us on these sites as well:  Facebook: https://www.facebook.com/FantasticPains  Twitter:https://twitter.com/FantasticPains  Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them  Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ  Spotify: https://open.spotify.com/show/29r3gK6...  TikTok: https://www.tiktok.com/@fantasticpains?lang=en  Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/ 

     

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #medicaltalk #medicalbias #whatismedicalbias #chronicbias #medicalzebra

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    1 h y 15 m
  • Check and Recheck
    Jul 8 2024

    Record keeping! With things like digital TOS, acceptance screens, medical treatment forms allowing you to be treated by the doctor... there's a lot of blind faith put into these forms and records in general. But sometimes the single situation can be seen in drastically different ways, which is why we find it important to talk about! Thank you Ruth for the suggestion and sharing your experience with us! We've definitely had our own moments of finding out the notes from a visit were written down much differently than the visit we experienced. What are your thoughts on this subject? Feel free to chat with us below!

    Our Website -- https://www.fantasticpains.com/

    Our PAIN-treon! -- https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: -- https://discord.gg/Zp7jxdmYSJ Looking for more of us? Looking for something a little different? Check out our other channel! -- www.youtube.com/ChaosandConversations_ (It's currently ChaosandConversations_ don't forget that underscore!) ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter: https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlos #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks #medical #medicalpodcast #EDSpodcast #medicalsiblings #siblings #siblingpodcast #podcats #podcast #podcasting #podcaster #medicallife #familyvlog #illnesses #geneticdisorders #geneticgenealogy #flexibility #ehlersdanlossyndromes #ehlersdanlosawareness #edspodcast #reaction #diagnosis #misdiagnosis #medical #medicine #podcasters #podcastshow #podcastlife #podcastshow #siblingsvlog #siblinggoals #inthistogether #chillvibes #chill #kindnessmatters #kindness #sickseries #sick #condition #togetherness #together #invisible #invisiblepeople #invisiblestrong

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    32 m

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the struggle is real!

thanks for talking about EDS. It is very comforting to hear you guys joke about the s*** I also have to put up with.

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