Jessica Fein has faced a lot of loss. Siblings, parents, and in 2022 her daughter Dalia. At the age of five Jessica’s daughter Dalia was diagnosed with a rare degenerative disease that would claim her life at 17. Before that moment came, and inspired by Dalia’s own insuppressible zest for life, Jessica and her family would discover how to live in the present when the future can’t be fixed. In our conversation today, and in her beautiful book, Breath Taking: A Memoir of Family, Dreams, and Broken Genes, Jessica maps both her journey to becoming an adoptive mom and the roller coaster ride of loving and caring for a terminally ill child, persevering when the simple act of taking a breath can become an act of courage. Through it all, she discovers the need to be both relentless advocate and calm presence, to show vulnerability as well as strength, and to allow joy to be louder than sorrow.

In addition to being a writer and a fierce advocate in the memory of her daughter, she's also host of the "I Don't Know How You Do It” podcast, which features people whose lives seem unimaginable from the outside. I’m grateful to share that I had the chance to be on the other side of the microphone and join her on her show recently too.

Host Lisa Keefauver’s forthcoming book Grief is a Sneaky Bitch: An Uncensored Guide to Navigating Loss IS NOW AVAILABLE FOR PRE-ORDER on Amazon.com, Barnes & Noble or Bookshop.org and will be in bookstores JUNE 4th.

Visit www.lisakeefauver.com to learn more about Lisa, sign up for her Not-So-Regular Newsletter, register for an upcoming online grief workshop, find out if she is coming to a city near you for her book tour, or watch her TEDx talk, Why Knowing More About Grief Can Make it Suck Less.

Oh, and this season, if you want to WATCH the show, you can now watch it on YouTube @lisakeefauvermsw

Recorded May 8, 2024

Hosted on Acast. See acast.com/privacy for more information.

I’m inviting you to revisit a very special conversation I had from Season 4 of this podcast with my guest pediatric ICU nurse, Hui-Wen Sato.

Why? Well something absolutely crazy and horrible happened to the both of us shortly after we recorded that episode in November 2022. Just over 2 months later, on January 20th 2023, we BOTH received a Breast Cancer Diagnosis. On the EXACT SAME DAY. You'll hear a compelling new intro about the friendship that formed and of course have a chance to listen or re-listen to the profound wisdom Hui-Wen shares in our conversation.

What must it be like to be a pediatric ICU Nurse day in and day out, witnessing children and families in the most vulnerable and often grief-filled moments of their lives? Today’s guest, Hui-Wen Sato weaves a beautiful narrative about the realities of professional grief and the important cultural shifts needed to better serve both families and the medical professionals that serve them. She also shares the personal resources she draws on to sustain her and the role of storytelling as healing for all involved. And, as the title implies, she also implores us to stop putting healthcare workers on a pedestal.

Hui-wen is a pediatric ICU nurse based in Los Angeles. She holds an MPH and MSN from UCLA, and is currently obtaining her Certification in Narrative Medicine from Columbia University. She and her husband have two daughters, two tortoises and one complicated dog.

EPISODE RESOURCES:

Her 2017 TEDxTalk was promoted to the main TED webpage in 2020, titled “How Grief Helped Me Become a Better Caregiver.”

You can also now view her powerful talk at End Well here

She has been featured in podcasts with NPR TED Radio Hour and The Silent Why, as well as webinars for Happify and the Speaking Grief Initiative.

You can follow her work at http://heartofnursing.blog.

Host Lisa Keefauver’s forthcoming book Grief is a Sneaky Bitch: An Uncensored Guide to Navigating Loss IS NOW AVAILABLE FOR PRE-ORDER on Amazon.com, Barnes & Noble or Bookshop.org. Drop her a DM on Instagram @lisakeefauvermsw to let her know you did and she’ll send you a party invite to her Book Launch Celebration

Visit www.lisakeefauver.com to learn more about Lisa, sign up for her Not-So-Regular Newsletter, register for an upcoming online grief workshop, find out if she is coming to a city near you for her book tour, or watch her TEDx talk, Why Knowing More About Grief Can Make it Suck Less.

Original episode recorded October 28, 2022. Recorded New Intro May 6, 2023 - 14 months after both guest and host were diagnosed with Breast Cancer on the exact same day - January 20, 2023.

Hosted on Acast. See acast.com/privacy for more information.

My guest today J.S. (Joon) Park is a hospital chaplain. Some of the other descriptions he uses for himself include: former atheist/agnostic, sixth degree black belt, suicide survivor, Korean-American, and follower of Christ. He is the author of a profoundly insightful, and at times poetic new book, As Long As You Need: Permission to Grieve. It’s part hospital chaplain experience and part memoir.

In this episode, Joon shares a bit about his personal journey from growing up in a home with violence and a martial arts dojo to becoming a hospital chaplain, highlighting the similarities between the two roles in terms of being present and encouraging others to find their voice. We also discussed the importance of allowing individuals to talk about their hopes and dreams, even in the face of loss or adversity. Joon shared how he creates safe space where people can share their desires without feeling shame or judgment. One of the important themes Joon brings to light is the grief we often feel over future losses and the significance of giving oneself permission to grieve them.

The conversation also touches on the idea relocating hope, of staying close to one's dreams and finding new ways to honor them, even if the original path is no longer possible. We also explored the importance of self-care and pacing oneself in the work of caregiving, recognizing the need for rest and support. One of the many important reminders I learned from both his book and our conversation is recognizing loss of autonomy and the value of finding the smallest choices and moments. Joon’s vulnerability, wisdom, and heart shine through both in his book and in our conversation.

About the Guest & Resources

J.S. Park is a hospital chaplain, published author, and online educator. For eight years he has been an interfaith chaplain at a 1000+ bed hospital that is designated a Level 1 Trauma Center. His role includes grief counseling, attending every death, every trauma and Code Blue, staff care, and supporting end-of-life care. J.S. also served for three years as a chaplain at one of the largest nonprofit charities for the homeless on the east coast. J.S. has a MDiv completed in 2010 and a BA in Psychology. He also has a sixth-degree black belt. He is the author of As Long as You Need: Permission to Grieve. J.S. currently lives in Tampa, Florida with his wife, a nurse practitioner, and his daughter, newborn son, and adopted dog.

Host Lisa Keefauver’s forthcoming book Grief is a Sneaky Bitch: An Uncensored Guide to Navigating Loss IS NOW AVAILABLE FOR PRE-ORDER on Amazon.com, Barnes & Noble or Bookshop.org. Drop her a DM on Instagram @lisakeefauvermsw to let her know you did and she’ll send you a party invite to her Book Launch Celebration

Visit www.lisakeefauver.com to learn more about Lisa, sign up for her Not-So-Regular Newsletter, register for an upcoming online grief workshop, find out if she is coming to a city near you for her book tour, or watch her TEDx talk, Why Knowing More About Grief Can Make it Suck Less. You can also WATCH this episode now on YouTube @lisakeefauvermsw

Recorded April 24, 2024.

Hosted on Acast. See acast.com/privacy for more information.