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Gut Punched: Alzheimer’s & Caregivers

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  • Navigating the insidious illness of Alzheimer’s is something nobody asks for. The disease sneaks up on you and your loved one, and it feels like you’ve been sucker-punched in the gut when you get the diagnosis from a doctor. So many things race through your mind: why us? What do we do? We worked so hard to get to this point in life. We just moved here after we both worked for 30 years, sold our house up North, and retired to Florida to enjoy our “golden years”. It’s not fair! Who’s going to take care of her/him? I don’t know a thing about this illness. She’s always done the cooking; I don’t even know how to boil water. He's always taken care of me and everything else like Finances. I don’t even drive! And it goes on and on. Facing this disease will bring you to your knees. Once you get over the initial shock (GUT PUNCHED), the questions and fears take hold. Where do we turn for help? Who do I call? What do I do? How do you take care of someone with Alzheimer's? Are there support groups? And questions like these just keep coming. I am a caregiver. I wasn’t before. Well, not this kind of caregiver. My wife was officially diagnosed in January of 2018. I had a sneaking suspicion that she might have something like this about 2 years earlier. So, when I brought it to my Neurologist, he sent us to a very nice Psychologist who specializes in testing patients to determine more accurately what is going on. It was a question-and-answer session, followed by a very detailed testing procedure that usually takes 3 or more hours. The patient has to complete the test comprising of questions, simple actions, and memory tests, then give them a couple of numbers or words then move on, going back to the numbers or words a short time later.

    So moving forward, I asked all the same questions as mentioned earlier. What are my options? So I “sucked it up”-Manned up so to speak. It's part of the deal for better or worse, right? So began my quest for information on support groups, doctors, anything I could get my hands on. It's been 6 years, and I am still looking for everything and anything that will help me crawl through this unchartered path to enlightenment. I was very fortunate to live in a city that has numerous resources to tap into. Most importantly, it's a place named after someone who suffered from Alzheimer’s. His wife provided the money to start the Alvin Dubin Center: The Dubin Center for short. Their mission is to achieve caregiver health, strength, and resilience by providing education, information, hope, and compassion. And boy do they. I leaned on them for everything I could find. Took all kinds of classes to learn what I needed to do to be the caregiver I have to be. Their caregiver class took about 6 weeks. The material we learned from, and the instructors, were top-notch. I still go back to the notes I took, and the books we used: both as refreshers and inspiration. Hopefully, no matter where you are listening to this, there will be a place like the Dubin Center. If not, don’t despair. The info is out there. That’s what this podcast is about. We’d like to share our resources, our experiences, our heartbreak, and our little victories. From time to time, we’d like to bring in Physicians, Nurses, Experts, and people like you and me, who are going through this disease with our loved ones who are willing to share their journey. The first thing that really stuck with me, and hopefully it will be with you. If you are a caregiver, you must first take care of yourself. Because this is not a sprint, but a marathon. And if you are run down, get sick, or worse.... Who’s going to take care of your spouse, mother, father, or child? Think about that for a few seconds. It’s you, the Caregiver. It’s me the Caregiver. That’s why we’re here. Gut Punched: Alzheimer’s & Caregivers! Thanks for joining us...now let's get going.
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Episodios
  • Gut Punched: Alzheimer’s and Caregivers EP 19

    Gut Punched: Alzheimer’s and Caregivers EP 19
    Jul 22 2024

    In Episode 19 of GutPunched: Alzheimer's & Caregivers, join host Jeff Edwards as he illuminates a path of hope and empowerment for caregivers. This episode dives into the powerful impact of diet and lifestyle changes in slowing down Alzheimer's progression. Jeff shares his own journey, where implementing these changes for his wife showed promising initial results in managing the disease.

    Special guest, Craig Price from The Naples Players joins the program, bringing his positive personality and innovative approach to caregiving through improvisation and creative communication. With a background rooted in improvisational theater and caregiving for family members, Craig has developed transformative programs that foster understanding and connection between caregivers, individuals with memory issues, and their families, young and old.. His successful methods are designed to open new channels of communication, enhancing the quality of care and relationships within families facing Alzheimer's. Craig and Jeff have fun discussing the improvisation topic and the eye opening results.

    Tune in to discover practical insights, inspiring stories, and effective strategies that uplift caregivers and empower them in their journey with Alzheimer's. Gut Punched Episode 19 promises to be a beacon of positivity and support, offering viewers tangible tools to navigate the challenges of caregiving with resilience and compassion.
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    42 m
  • Gut Punched: Alzheimer’s and Caregivers EP 18

    Gut Punched: Alzheimer’s and Caregivers EP 18
    Jul 15 2024

    In this impactful episode of GutPunched: Alzheimer’s and Caregivers, host Jeff Edwards, a radio veteran with over 50 years of experience and a dedicated caregiver for someone with early-onset Alzheimer’s, brings you an invaluable conversation packed with practical advice and emotional support.

    Jeff shares two crucial rules for caregivers: the importance of self-care to ensure you can continue supporting your loved one, and the necessity of seeking help and building a strong support network.

    Episode 18 features an extraordinary guest, Sue Ryan, a three-time International Best Selling Author, leadership coach, professional speaker, and educator with over 40 years of caregiving experience. Sue's acclaimed first book, Our Journey of Love: 5 Steps to Navigate Your Caregiving Journey, has been a guiding light for many. She has since developed The Caregiver's Journey, an online course, and her latest release, The Caregiver's Advocate. Additionally, Sue is preparing to launch a new podcast with a friend this August, promising even more resources and insights for caregivers.

    Jeff and Sue dive deep into the essential aspects of caregiving, discussing how to balance physical, social, financial, and spiritual health. Sue shares her wealth of knowledge, offering innovative ideas and actionable advice to help caregivers thrive amidst their challenging roles.

    Join Jeff Edwards and Sue Ryan for an episode brimming with wisdom, encouragement, and practical strategies to s designed to empower and guide you on your caregiving journey.

    It’s a compelling discussion filled with practical tips, heartfelt advice, and the shared wisdom of those who truly understand the demands of caregiving. You’ll want to take notes for this episode.
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    43 m
  • Gut Punched: Alzheimer’s and Caregivers EP 17

    Gut Punched: Alzheimer’s and Caregivers EP 17
    Jul 8 2024

    In this deeply moving episode of GutPunched, host Jeff Edwards explores the profound impact

    of FDA-approved drugs on Alzheimer's sufferers and their caregivers. With a compassionate

    lens, Jeff shares intimate stories from those navigating the complexities of the disease firsthand.

    The wife spends 18 months in a drug trial at NRPC burden in clinical trials for Dun-Nah-Nah-

    Mab embodies the power of husband and wife HOPE as they continue to search for ways to ease the illness.

    Their resilience echoes the two vital rules Jeff discusses: first, the importance of self-care because a caregiver's well-being is crucial for their loved one's quality of life; and second, the

    the necessity of seeking support—

    whether through caregiver groups, networks of friends, or family—to share the load. Through

    heartfelt interviews, listeners witness the dedication and optimism driving these individuals

    forward, demonstrating how hope and community are essential in the fight against Alzheimer's.

    Join us as we honor the courage and determination of those affected by Alzheimer's, and uncover

    the transformative impact of solidarity and hope in their journey.
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    31 m
Psicología Hygiene & Healthy Living
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