Hyperparathyroidism: A Patient's Perspective

De: Lisa Marie Olson
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  • Resumen

  • Lisa Marie candidly shares her personal journey with the disease, providing invaluable insights from a patient's perspective. Lisa Marie delves into the symptoms, challenges, and unique experiences associated with hyperparathyroidism, shedding light on its impact on daily life. This is not a podcast about thyroid problems, underactive, overactive or thyroid cancers. This is a podcast about parathyroid disease, relating to the 4 tiny glands that sit behind your thyroid gland. Throughout the podcast, listeners gain a deep understanding of the diverse symptoms that accompany hyperparathyroidism. Lisa Marie discusses the physical manifestations, such as fatigue, muscle weakness, and bone pain, that can significantly disrupt a person's quality of life. She emphasizes the importance of recognising these symptoms and seeking medical attention for proper diagnosis and treatment. Please see the RESOURCES guide below. One of the lesser-known aspects of hyperparathyroidism that Lisa Marie explores is its effects on dental health. She shares her own struggles with dental issues, including bone loss, which are common complications of the condition. By sharing her experiences, she aims to raise awareness about the importance of dental care in managing hyperparathyroidism and improving overall well-being. Hair loss is another topic that Lisa Marie bravely addresses in the podcast. She discusses how hyperparathyroidism can contribute to hair thinning and loss, highlighting the emotional toll it can take on individuals already grappling with the challenges of the disease. Through her candid storytelling, she offers empathy and support to listeners who may be experiencing similar hair-related concerns. Ultimately, "Hyperparathyroidism: A Patient's Perspective" provides a platform for patients like Lisa Marie to share their journeys, fostering understanding, empathy, and solidarity within the hyperparathyroidism community. By sharing her story, Lisa Marie hopes to empower others to advocate for their health, seek support, and navigate the complexities of living with hyperparathyroidism with resilience and hope. ABBREVIATIONS: HPT - Hyperparathyroidism. nHPT - Normocalcemic Hyperparathyroidism. PTH - Parathyroid Hormone Level. ng/L - Blood chemistry measurement. MP - Member of Parliament -UK CLARIFICATIONS: Hyperplasia verses single adenoma. Hyperplasia affects all four glands and the glands become enlarged. A single adenoma usually a benign (non-cancerous) tumour of the gland. RESOURCES The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. It also includes a link to a well-organised and run patietn to patient support group. Hyperparathyroidism https://www.nhs.uk/conditions/hyperparathyroidism/ Normocalcemic Hyperparathyroidism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/ Hyperparathyroidism Support and Information - Patient-to-Patient Support Group https://www.facebook.com/groups/406980976340533 NICE Guidelines https://www.nice.org.uk/guidance/ng132 Fibromyalgia https://www.nhs.uk/conditions/fibromyalgia/symptoms/ https://www.fmauk.org/ Menopause https://www.nhs.uk/conditions/menopause/ https://www.newsonhealth.co.uk/ Thyroid Function https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/ https://www.btf-thyroid.org/what-is-thyroid-disorder DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.
    Copyright 2024 Lisa Marie Olson
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Episodios
  • Episode 10: Finding the Right Support Group for Hyperparathyroidism Patient to Patient Supprt

    Episode 10: Finding the Right Support Group for Hyperparathyroidism Patient to Patient Supprt
    May 2 2024

    In this episode, Lisa Marie discusses the importance of patient-to-patient support groups, but more importantly, choosing the right support group. Lisa Marie shares insight on how to choose the right support group and what might be helpful to consider when choosing to join a relevant support group.

    RESOURCES

    The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

    Hyperparathyroidism Support & Information - Patient-to-Patient Support Group

    https://www.facebook.com/groups/406980976340533

    DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.
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    2 m
  • Episode 9: Post Surgery Tips and Expectations Relating to Hyperparathyroidism

    Episode 9: Post Surgery Tips and Expectations Relating to Hyperparathyroidism
    May 1 2024

    Lisa Marie discusses post-surgery tips, getting prepared ahead of your surgery, relevant contact numbers for your surgeon or medical specialists and approved medications for use post-surgery. This episode also explores post-surgery expectations, potential recovery times, and the importance of giving yourself time to heal.

    RESOURCES

    The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

    Hyperparathyroidism

    https://www.nhs.uk/conditions/hyperparathyroidism/

    Normocalcemic Hyperparathyroidism

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

    Hyperparathyroidism Support & Information - Patient to Patient Support Group

    https://www.facebook.com/groups/406980976340533

    NICE Guidelines

    https://www.nice.org.uk/guidance/ng132

    DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

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    6 m
  • Episode 8: Helpful Tips for Navigating a Diagnosis of Hyperparathyroidism

    Episode 8: Helpful Tips for Navigating a Diagnosis of Hyperparathyroidism
    Apr 30 2024

    In this episode, Lisa Marie shares valuable insights and tips for navigating your way to a diagnosis of hyperparathyroidism. The importance of being prepared ahead of any appointments you may need, is also advantageous. Asking informed questions and even getting a second opinion where possible.

    ABBREVIATIONS:

    HPT - Hyperparathyroidism.

    nHPT - Normocalcemic Hyperparathyroidism.

    PTH - Parathyroid Hormone Level.

    ng/L - Blood chemistry measurement.

    MP - Member of Parliament - UK

    CLARIFICATIONS:

    Hyperplasia verses single adenoma.

    Hyperplasia affects all four glands and the glands become enlarged.

    A single adenoma usually a benign (non-cancerous) tumour of the gland.

    RESOURCES

    The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

    Hyperparathyroidism

    https://www.nhs.uk/conditions/hyperparathyroidism/

    Normocalcemic Hyperparathyroidism

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

    Hyperparathyroidism Support & Information - Patient to Patient Support Group

    https://www.facebook.com/groups/406980976340533

    NICE Guidelines

    https://www.nice.org.uk/guidance/ng132

    Fibromyalgia

    https://www.nhs.uk/conditions/fibromyalgia/symptoms/

    https://www.fmauk.org/

    Menopause

    https://www.nhs.uk/conditions/menopause/

    https://www.newsonhealth.co.uk/

    Thyroid Function

    https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/

    https://www.btf-thyroid.org/what-is-thyroid-disorder

    DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

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    12 m
Enfermedades Físicas Hygiene & Healthy Living
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