Episodios

  • The unquestioned support of patient organizations

    The unquestioned support of patient organizations
    Apr 30 2024
    In this episode of the ‘Journeys Through Pulmonary Fibrosis’ podcast, our host Steve Jones sits down with two guests from the USA and Norway to discuss the importance of connecting with people who live with pulmonary fibrosis at different stages of their journey. They also discuss the many different ways in which patient organizations provide support, globally and locally. Hear more from our guests on how patient organizations will continue to fight for all those impacted by this condition.
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    29 m
  • How to strive in life again

    How to strive in life again
    Apr 29 2024
    In this episode of the ‘Journeys Through Pulmonary Fibrosis’ podcast, our guests share how family, friends and support groups are invaluable to their journey, often providing that much needed support and hope for those living with pulmonary fibrosis and their loved ones. Hear more about the ongoing efforts of individuals and organizations working to ultimately improve the outcomes for people living with pulmonary fibrosis.
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    38 m
  • Reality of living with RA-ILD

    Reality of living with RA-ILD
    Jul 14 2023
    In this special episode Liz tells us about her experience of living with RA-ILD, which is short for rheumatoid arthritis-associated interstitial lung disease. We explore the profound impact of this life-changing diagnosis on Liz and her loved ones as well as the need for increased awareness of the condition. Throughout Liz provides advice and strategies for maintaining a positive outlook despite the challenges RA-ILD presents.
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    22 m
  • Innovating today for patients of tomorrow

    Innovating today for patients of tomorrow
    May 16 2023
    In this episode, we explore how innovating today could have a positive impact on those diagnosed with pulmonary fibrosis. We are joined by extraordinary guests, including researchers, healthcare providers, innovators, and a patient impacted by this rare disease. Keeping patients’ lived experiences front and center can help lead to new ideas and progress, all while inspiring us to remain hopeful for the future.
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    15 m
  • Relationships

    Relationships
    Jan 3 2023
    In the fifth and final episode of season 3, we learn about the impact that pulmonary fibrosis can have on relationships with family and friends, and even on the more intimate aspects of partner relationships. Our contributors also take time to emphasize the value that they derive from healthy and supportive relationships when living with this challenging condition.
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    20 m
  • Shared decision making

    Shared decision making
    Nov 30 2022
    In our fourth episode, we examine the importance of shared decision making, which helps empower patients to make choices about their disease management in collaboration with their medical teams. We hear from people who are living with pulmonary fibrosis, a wife and care partner and from medical specialists, each underlining the value of shared decision making and providing some examples of this best practice in action.
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    21 m
  • Multidisciplinary teams and the importance of communication

    Multidisciplinary teams and the importance of communication
    Nov 22 2022
    In the third episode of Season 3 of our ‘Journeys Through Pulmonary Fibrosis’ podcast series, we explore the role multidisciplinary teams (MDTs) play in providing care for people living with pulmonary fibrosis. Our guests first help us to understand what an MDT is, who participates and how the team functions. We then examine the benefits and improvements in care that the approach can deliver for people with pulmonary fibrosis. We also hear about some of the challenges that an MDT approach can bring and discuss how their role may evolve in the future.
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    19 m
  • Diet and nutrition

    Diet and nutrition
    Nov 14 2022
    In the second episode of Season 3 of our Journey Through Pulmonary Fibrosis podcast, we are once again joined by several people who live with the condition, including a wife and care partner, and by a group of specialists. Hear about some of the challenges that people with pulmonary fibrosis face in terms of meeting their dietary and nutritional needs and learn about how these challenges are best managed through tools and techniques like keeping a food diary and managing portion sizes.
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    19 m