In this Brain & Life podcast episode Dr. Daniel Correa is joined by Mary Lou Falcone, classical music publicist and author of “I Didn't See It Coming: Scenes of Love, Loss and Lewy Body Dementia.” Mary Lou shares her experiences with her partner Nicky Zann as he lived with Lewy Body Dementia and what she learned about being a caregiver throughout her life. Dr. Correa is then joined by Dr. Jason Cohen, neurologist and dementia specialist at Montefiore Medical Center and the Albert Einstein College of Medicine. He explains exactly what Lewy Body Dementia is, how it differs from other diseases, and his work with the Lewy Body Dementia Resource Center.

Additional Resources

I Didn't See It Coming: Scenes of Love, Loss and Lewy Body Dementia

The Work of Nicholas Zann

Lewy Body Dementia Resource Center

What is Lewy Body Dementia?

Robin Williams’ Widow Advocates for Those with Lewy Body Dementia

How to Talk to Loved Ones Who Have Dementia

Other Brain & Life Podcast Episodes on This Topic

Making a Lasting Impact with The Brain Donor Project’s Tish Hevel

Journalist, Producer Kitty Eisele’s Honest Recount of Her Time as Caregiver

The ‘Humor and Heartache’ of Caregiving with Filmmaker Michelle Boyaner

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

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Social Media:

Guests: Lewy Body Dementia Resource Center @lewybodyny

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD