Living With SMA

De: Spinal Muscular Atrophy UK (SMA UK)
  • Resumen

  • The charity SMA UK invites different hosts from across the SMA Community together to discuss different topics. This is great place to find useful tips, recommendations, and hear personal stories.
    © 2024 Living With SMA
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Episodios
  • Ep 40: Celebrating Pride
    Jul 2 2024

    Join host Steven on this special Pride episode of *Pride and Possibility*, where we celebrate the vibrant intersection of the LGBTQIA+ community and disability pride. Steven is joined by three incredible guests: Shelby, Emily, and Jordanne, who each bring unique perspectives and experiences as individuals living with disabilities and proudly identifying as part of the LGBTQIA+ community.

    In this heartfelt and empowering episode, Shelby, Emily, and Jordanne share their personal journeys, discussing the challenges and triumphs they have faced in navigating their identities. They delve into the importance of representation, the power of community, and the ways in which their disabilities and LGBTQIA+ identities have shaped their lives.

    Listeners will hear inspiring stories of resilience, advocacy, and joy as our guests talk about what Pride means to them. This episode is a celebration of diversity, inclusion, and the strength found in embracing all aspects of one's identity. Tune in to *Pride and Possibility* for an uplifting conversation that highlights the beauty of living authentically and the importance of solidarity within the LGBTQIA+ and disability communities.

    Celebrate Pride with us and discover the incredible stories of Shelby, Emily, and Jordanne as they inspire us all to live with pride and possibility.

    #PrideAndPossibility #DisabilityPride #LGBTQIA+ #Intersectionality #celebratediversity

    HIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️
    You can contact SMA UK on the following social media platforms ⬇️⬇️
    ▶ | INSTAGRAM: https://www.instagram.com/sma_uk
    ▶ | TWITTER: https://twitter.com/SMA_UK_
    ▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul...

    If you would like to participate in any of our podcasts please email gary.edgecombe@smauk.org.uk

    Living With SMA Disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

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    39 m
  • EP39: Festivals and Gigs
    May 29 2024

    Get ready to roll into the beat of festival vibes with our latest podcast episode, where we explore the world of festivals and gigs through the eyes of wheelchair users Jordanne, Mollie, and Ross, all living with SMA! 🎶✨

    Join us as we navigate the highs and lows of festival accessibility, from the thrill of inclusive experiences to the challenges faced by wheelchair users. Jordanne, Molly, and Ross will share their firsthand accounts of navigating festival grounds, accessing venues, and interacting with fellow event organisers.

    While the journey may have its bumps along the way, our guests will also shine a spotlight on the positive moments that have lit up their event experiences. From unique and special experiences to the triumph of overcoming accessibility barriers, these stories remind us that every obstacle is an opportunity for growth and empowerment.

    So grab your gear, tune into the rhythm of inclusivity, and join us for an insightful exploration of festivals and gigs from a wheelchair user's perspective. This episode promises to be a celebration of resilience, community, and the power of music to unite us all! 💃🕺🎉

    #LivingWithSMA #AccessibleEvents #WheelchairAdventures #InclusiveMusic

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    43 m
  • Ep 38: #KnowNoBounds making the outdoors more accessible
    Mar 28 2024

    Get ready to witness an incredible feat of determination and resilience in our latest podcast episode, where two powered wheelchair users, Maxwell and Joshua, talk about an awe-inspiring journey to race up Snowdon and raise £100k for a worthy cause. 🏔️💪
    In this exhilarating episode, we'll delve into the inspiring story behind their ambitious mission, aptly named #KnowNoBounds. Join us as we follow Maxwell and Joshua's incredible journey, from the initial spark of inspiration to the rigorous preparation and training required for such a monumental challenge.
    Through their unwavering spirit and determination, Maxwell and Joshua defy expectations and demonstrate that no obstacle is too great to overcome. Their mission not only showcases the limitless potential of individuals living with disabilities but also serves as a powerful reminder of the boundless strength of the human spirit.
    Tune in as we hear first-hand accounts from Maxwell and Joshua about their motivations, aspirations, and the impact they hope to make through their extraordinary journey. From heart-warming anecdotes to adrenaline-pumping moments, this episode promises to inspire, uplift, and ignite a sense of possibility within us all.
    Join us as we cheer on Maxwell and Joshua every step of the way, celebrating their courage, resilience, and unwavering determination to reach new heights—both literally and figuratively. Don't miss out on this unforgettable adventure! 🌟🎧
    #KnowNoBoundsChallenge #RaceForACause #InspiredByDetermination

    Donate here: https://smauk.org.uk/fundraising/2-powered-wheelchair-users-will-race-up-snowden-to-raise-100k-knownobounds/

    THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️
    You can contact SMA UK on the following social media platforms ⬇️⬇️
    ▶ | INSTAGRAM: https://www.instagram.com/sma_uk
    ▶ | TWITTER: https://twitter.com/SMA_UK_
    ▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul...

    #Resonate #OutdoorAdventures #SMACommunity

    If you would like to participate in any of our podcasts please email luis.castro@smauk.org.uk

    Living With SMA Disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

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    35 m

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