MDA Quest Podcast

De: Muscular Dystrophy Association
  • Resumen

  • The official podcast for the Muscular Dystrophy Association
    2021 Muscular Dystrophy Association
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Episodios
  • 44: Episode 44 - Voting Rights and Accessibility
    Oct 3 2024
    In this Quest Podcast episode, we chat with Shaun Hill, MDA’s Manager of Public Policy & Advocacy and Mark Fisher, MDA’s Director of Advocacy Engagement. They join us to share the most recent voting updates, accessibility information, and expertise and advise about MDA's voting program and advocacy efforts. Please join us and make your vote count at https://mda.org/vote.

    Guests:

    Shaun Hill currently serves as Manager, Public Policy & Advocacy for the Muscular Dystrophy Association. Ms. Hill is a veteran government relations professional, who has worked continuously in the healthcare arena, championing causes on behalf of both patients and providers, working through legislative, regulatory, and advocacy channels to impact change. In many of these roles she has led the charge on advocacy campaigns, such as MDA’s current initiative Access the Vote. A native of Washington, DC, she is a graduate of Howard University and has studied political management at George Washington University.

    Mark Fisher is the Director of Advocacy Engagement at the Muscular Dystrophy Association. In this role, Mark leads MDA’s grassroots program and advocacy volunteer efforts. He works to empower advocates and connect them with key decisionmakers in order to advance public policies that improve the lives of the neuromuscular disease community. He previously served as the Digital Grassroots Manager at the American Heart Association and was also a field organizer on a U.S. Senate campaign. Mark earned his Master of Public Policy from American University and is originally from Pittsburgh, PA.

    • For Information About Voting - https://mda.org/vote
    • For Local information about Voting- https://www.vote.org/
    • Join the Grassroots Advocacy Team - https://www.votervoice.net/MDA/register
    Connect with MDA Advocacy:

    • advocacy@mdausa.org
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    40 m
  • 43: Episode 43 - Disrupting the Narrative
    Jul 8 2024
    In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This trio joins us to share their experiences, expertise, advise and hope when it comes to navigating life and Hollywood, and creating a future that is inclusive of everyone.

    Keep up on the latest information about the movie release at www.goodbadthings.com.

    Transcript

    Guests:

    A Southern California native, Shane Stanger is a filmmaker and entrepreneur whose career began in 2009 in the ICM mailroom before spending two years as an assistant to an agent in the motion picture department. Shane went on to associate produce BERNIE, directed by Richard Linklater, starring Jack Black and Matthew McConaughey. The success of BERNIE paved the way for Shane's role as the lead producer for the independent feature Pretty Perfect.

    In May 2013, Shane founded and launched The Baked Bear, a dessert concept out of San Diego specializing in ice cream sandwiches. In 2016 Shane was a recipient of the Forbes 30 Under 30 Award. By 2021, Shane had opened over 35 Baked Bear locations across 12 states and decided to return to his true passion: filmmaking. Shane enrolled in the prestigious Peter Stark Producing Program at USC’s School of Cinematic Arts and received his MFA in May 2023.

    Good Bad Things is Stanger’s writing and directing debut and during the world premiere at Slamdance Film Festival (2024) won the audience and grand jury awards.

    Connect with Shane:

    • Instagram: @shanestanger
    • Instagram: @goodbadthingsfilm
    Steve Way is a 33-year-old actor, comedian, writer, and speaker. He was born with Muscular Dystrophy and is an activist for disability rights and universal healthcare. Steve can be seen in the Hulu show RAMY and is the executive producer of the award-winning film Good Bad Things.

    Connect with Steve:

    • Instagram: @thesteveway
    • www.thesteveway.com
    • https://thesteveway.substack.com/
    Danny Kurtzman is a physically disabled model, actor, entrepreneur, and advocate for the disabled community. Diagnosed with a muscular dystrophy at a young age, Danny never let his disability stop him from doing anything he put his mind to. After graduating from LMU, he joined the family business becoming the 4th generation in the fashion industry.

    His passion and love for fashion drove him to creative direct, design, market, and grow multiple brands. Today Danny's passion not only lies in fashion, but in making this world a more accessible place for all disabled individuals. Danny uses his platform to spread his disability pride and tell the world that despite being physically disabled that he says “there’s nothing wrong with my body. It is perfect.”

    Connect with Danny:

    • Instagram: @dannykurtzman
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
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    47 m
  • 42: Episode 42 - Empowering Individuality with Inclusive Style
    Jun 4 2024
    In this Quest Podcast episode, we chat with the Executive Director of Open Style Lab (OSL), a non-profit organization that is on a mission to make style accessible for everyone, regardless of cognitive and physical abilities. Yasmin Keats has devoted her career to the core functions of research, education, and informing the public about inclusive design. She stresses style empowers people, bringing them joy, identity, and self-expression, and inclusion is at the heart of her work. She joins us to share her experiences, expertise, and advice.

    Transcript

    Guests:

    Yasmin Keats is the Executive Director at Open Style Lab (OSL), A national design award-winning nonprofit organization initiated at MIT in 2014. OSL is dedicated to making style accessible to people of all abilities. Yasmin comes to this field with her experience of living with a physical disability. She has a background in graphic design, architecture, and creative learning.

    Connect with

    • https://www.openstylelab.org/
    • https://www.instagram.com/openstylelab
    • https://www.facebook.com/openstylelab/
    • https://www.linkedin.com/company/open-style-lab/
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks
    Más Menos
    40 m

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not Disabilities but Empowerment

very positive and and solution based approach to everything in efforts to empower people to live fully as possible with disabilities. A better way to live for all of us by thinking different by considering all people. Host is really good at asking the questions we need to ask from a positive perspective.

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