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My Spoonie Sisters

De: Gracefully Jen
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  • Resumen

  • My Spoonie Sisters features stories from special guests dedicated to empowering those with chronic illnesses. We share stories, discussing everything from Rheumatoid Arthritis to anxiety and sex therapy. Our goal? To connect people and provide the support and tools they need to live a better life.
    For those with a chronic illness, our energy levels fade faster. We must be more purposeful with the "spoons" allotted to us. Grab your coffee, sister, and tune in as my Spoonie Sisters share stories of living with chronic illness.

    All guests on or mentioned in this podcast will also be listed for your benefit. Be sure to rate and subscribe to My Spoonie Sisters and follow @MySpoonieSisters on Instagram for new episodes and more. If you would like to be featured on My Spoonie Sisters, please email me at MySpoonieSisters@gmail.com. We look forward to speaking and hearing from all our Sisters!

    *Disclaimer* I am not a doctor or a Health Care Practitioner. This is my and my guests' personal story and the things we have done for ourselves. Everybody is different when it comes to medications and remedies. If you have any questions regarding your health, please speak to and ask your Primary Doctor or Rheumatologist.

    You can also visit our website at https://myspooniesisters.chewack.com
    © 2024 My Spoonie Sisters
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Episodios
  • Rheum Champions Conversation

    Rheum Champions Conversation
    Jul 29 2024

    Curious about how to navigate life with rheumatoid arthritis while maintaining a positive outlook? Join us as we reconnect with Jen Weaver, a spirited advocate and fellow Spoonie, who shares her heartfelt journey from Kalama, Washington. Jen opens up about the severe allergic reactions she's faced with TNF inhibitors leading to pustular psoriasis, offering a candid look at her daily routines and the importance of personalized treatment plans. Her story is one of resilience, community, and finding unexpected blessings amid the challenges of chronic illness.

    Ever wondered how social media can lead to life-changing opportunities? Discover how our online connections brought us to the Rheumatology Research Foundation, where we took on the pivotal roles of Rheum Champions at the Rheumatology Investigators Meeting in Denver. Learn about the Foundation’s mission to address workforce shortages and the critical role of patient and caregiver voices in shaping the future of rheumatology research. From grant updates to the purpose of the investigators' meeting, we provide an insider’s look at the exciting advancements in the field.

    Finally, gain valuable insights and practical tips for living with arthritis, whether you’re newly diagnosed or a long-time warrior. From highlighting favorite arthritis gadgets like the Kitchen Mama can opener and Grace and Abel compression gloves, to sharing personal entertainment picks and exploring support groups, we cover it all. Plus, hear about our new roles as moderators on the Cabana app and the importance of community support. Tune in for an episode filled with heartfelt stories, expert advice, and a touch of inspiration to help you navigate your journey with arthritis.

    Send us a Text Message.

    New Intro 2024

    2024

    Thoughtful premium products for all the immune challenged.
    We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)

    Support the Show.

    Website: https://myspooniesisters.com/

    Support:
    https://www.etsy.com/shop/MySpoonieSisters
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    48 m
  • Navigating Life with Lupus: Elizabeth's Story

    Navigating Life with Lupus: Elizabeth's Story
    Jul 22 2024
    What if you were diagnosed with a chronic illness at the age of five? In this heartfelt episode, we sit down with Elizabeth, who opens up about her lifelong battle with lupus. From the early signs of hair loss and severe fatigue to the relentless support of her mother and medical team, Elizabeth’s story is one of resilience and hope. She takes us through the evolution of her treatment—from the initial, intensive regimens to a more stable and manageable routine that now involves just three low-dose medications. Elizabeth shares the struggles of growing up under the shadow of lupus and the impact of medications like prednisone. Her journey is a testament to the power of family support and medical advancements.

    We also discuss practical tools and resources for those battling chronic conditions. Learn about a unique starter kit designed to naturally boost energy levels and the supportive online communities that can make a world of difference. Elizabeth emphasizes the importance of a robust support system, sharing insights on how to build and maintain one. Finally, don't miss the chance to connect with Elizabeth on social media, especially Instagram, where she offers daily inspiration and advice. Check the show notes for all the links you need to join her vibrant community.




    • Website: https://www.revelinghealth.com/
      • Energy Reset Starter Kit is on the website
    • Website for 5 Day Pain Free Challenge: https://www.painfreechallenge.ca/
      • Next one runs from July 22-26, 2024.
    • Links to all socials:
      • Instagram: https://www.instagram.com/revelinghealth/
      • Facebook: https://www.facebook.com/
      • LinkedIn: https://www.linkedin.com/company/98442935/
      • Pinterest: https://pin.it/5ASvRFGmY

    Send us a Text Message.

    New Intro 2024

    Thoughtful premium products for all the immune challenged.
    We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)

    Support the Show.

    Website: https://myspooniesisters.com/

    Support:
    https://www.etsy.com/shop/MySpoonieSisters
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    25 m
  • Navigating Healthcare with Patrick's Expertise

    Navigating Healthcare with Patrick's Expertise
    Jul 15 2024
    Ever wondered how small lifestyle changes can significantly impact chronic illness management? Join us for an enlightening conversation with Patrick, a dedicated Florida-based pharmacist who specializes in reducing medication burdens for those with chronic illnesses and autoimmune diseases. Patrick shares his holistic approach to healthcare, which includes a meticulous review of medication lists, medical histories, and lab results to identify nutrient depletions and lifestyle adjustments. He also discusses his role as a healthcare advocate, providing invaluable support by accompanying clients to doctor appointments and organizing their healthcare information for optimal outcomes. Additionally, Patrick gives us a sneak peek into his podcast, Men's Health Unscripted, which provides men with relatable and non-judgmental health information.

    In a heartfelt exploration of his personal journey, Patrick recounts how his close relationship with his grandparents exposed him to systemic healthcare issues, inspiring his career in pharmacy. From his diverse background in baseball and pathology labs to his experiences in cancer research, Patrick's path has been anything but ordinary. Now, he leverages these experiences to focus on improving healthcare communication and efficiency, particularly for patients grappling with multiple medications. One memorable success story involves a simple switch from nightly ice cream to fruit, leading to remarkable health improvements for a patient. This chapter underscores the transformative power of minor lifestyle changes and the critical importance of understanding medication purposes and the potential benefits of deprescribing.

    Patrick sheds light on the complexities of healthcare, especially how insurance constraints often limit the time and care providers can offer. He emphasizes the significant role of healthcare advocates in bridging gaps between appointments and ensuring continuous care. Turning the focus to men's health, Patrick shares alarming statistics like the rising male suicide rate and the connection between erectile dysfunction and heart disease. He advocates for open conversations and strong support systems, urging men to build deeper friendships and confide in trusted individuals. To wrap up, Patrick offers practical advice on transforming stressful doctor visits into self-care opportunities, encouraging listeners to reward themselves and stay connected to support networks. Don't miss this insightful episode filled with actionable tips and heartfelt stories.

    Ig: your_pharmacist_your_advocate

    Web: www.tampahealthadvocate.com

    Send us a Text Message.

    New Intro 2024

    2024

    Thoughtful premium products for all the immune challenged.
    We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)

    Support the Show.

    Website: https://myspooniesisters.com/

    Support:
    https://www.etsy.com/shop/MySpoonieSisters
    Más Menos
    44 m
Medicina Alternativa y Complementaria Psicología Hygiene & Healthy Living Éxito Personal
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