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Powerhouse Podcast

De: United Mitochondrial Disease Foundation
  • Resumen

  • The United Mitochondrial Disease Foundation hosts the Powerhouse Podcast to discuss all things related to mitochondrial disease, research, and the patient journey. Featured guests include patients, caregivers, researchers, physicians and passionate advocates.
    ©2024
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Episodios
  • POWERHOUSE July 2024: Leslie Kirby, Co-Founder of Run4Raley
    Jul 30 2024

    Join us for the Powerhouse Podcast this month featuring Leslie Kirby, co-founder of Run4Raley, as the Kirby family is heading into their 17th year of their fundraising event in Philo, IL. Leslie shares about the work they've done as a tribute to their daughters, Raley and Aubree, at their local hospital and in fundraising for UMDF to help other families like them. Learn more about Run4Raley and Hope4Aubree at run4raley.org

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    41 m
  • Mother's Day Special Edition Powerhouse May 2024 with Becca Johnson
    May 10 2024

    At the beginning of this Mother's Day Special Episode of the Powerhouse, UMDF's Cassie Franklin and Kara Strittmatter give a quick overview of exciting things to expect at #MitoMed 2024 in Cleveland. Then, we meet our special guest for this episode, Becca Johnson -- mito mom to Vera, caregiver, teacher, wearer of many hats and a true POWERHOUSE. Becca shares important insights on living for experiences, finding your resources, and growing into strength as a mito mom.

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    57 m
  • POWERHOUSE April 2024: The Mito Fund & Pierrepont Therapeutics
    Apr 30 2024

    In this latest episode, join UMDF's Brian Harman and Dr. Philip Yeske in a talk with guests, Todd Lacey from the UMDF Board of Trustees and Dan DiPietro, Co-Founder of Pierrepont Therapeutics. On the advent of The Mito Fund's inaugural investment in Pierrepont's enzyme replacement therapy for patients with MNGIE, they share insight on the potentially game-changing research investment and new strategic partnership.

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    48 m

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