Episodios

  • Episode 422: From ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug

    Episode 422: From ECTRIMS 2025 with Dr. Bruce Bebo and Kristine Werner Ozug
    Sep 29 2025
    Last week, over 9600 MS researchers and clinicians gathered in Barcelona for the European Committee for Treatment and Research in Multiple Sclerosis annual scientific congress -- ECTRIMS 2025. Minutes after the conference adjourned, in what has become an annual tradition, Dr. Bruce Bebo, the Executive Vice President of Research at the National MS Society, joined me to share his initial thoughts on the science presented at the meeting. Then, Kristine Werner Ozug, a member of the RealTalk MS team who lives with MS, joined me to share her perspective on three non-stop days of presentations, news, and announcements. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: It's all about ECTRIMS 2025! :22 The Executive Vice President of Research at the National MS Society, Dr. Bruce Bebo, shares his initial impressions of ECTRIMS 2025 1:17 As someone who lives with MS, Kristine Werner Ozug shares her thoughts on ECTRIMS 2025 10:03 Share this episode 22:30 Next week's episode 22:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/422 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com PARTICIPATE: Take the Shaping Tomorrow Together Survey https://s.alchemer.com/s3/Perspectives-on-MS REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA https://nmss.quorum.us/event/25463 SIGN UP: Become an MS Activist https://nationalmssociety.org/advocacy JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms DOWNLOAD: The RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 DOWNLOAD: The RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 422 Guests: Dr. Bruce Bebo and Kristine Werner Ozug Privacy Policy
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    24 m
  • Episode 421: Optimizing Your Brain Health with Nurse Practitioner Erin Wilkinson

    Episode 421: Optimizing Your Brain Health with Nurse Practitioner Erin Wilkinson
    Sep 22 2025
    Happy birthday to us! RealTalk MS is 8 years old today! It's hard for me to believe that the podcast I launched in 2017, with the goal of one day reaching 300 listeners, today reaches thousands of people living with MS, their care partners, MS researchers, and clinicians in more than 100 countries. So, let me start this week's show notes with a profound thank you to each of you for being an important part of the RealTalk MS listener community. Your ongoing engagement is a constant reminder that our podcast is a two-way conversation. And I'm looking forward to continuing the conversation until we can talk about MS in the past tense. MS can affect memory, attention, and processing speed. But proactive strategies can help preserve your cognitive function and quality of life. Erin Wilkinson, a nurse practitioner in the Multiple Sclerosis Department of the Cleveland Clinic Lou Ruvo Center for Brain Health, is joining me to help us better understand the relationship between MS and brain health and to share strategies for preserving and even improving brain health. You'll also meet Jan Bonville, a consultant, speaker, writer, and advocate for inclusive travel and patient empowerment. Jan has lived with MS for twenty years, and our conversation focused on resilience, empowerment, and self-advocacy. As you will hear, these are things that Jan lives every day. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Happy birthday to us and greetings from ECTRIMS! :22 MS advocate Jan Bonville discusses resilience, empowerment, and self-advocacy 4:40 Nurse Practitioner Erin Wilkinson shares strategies for optimizing your brain health 23:03 Share this episode 41:01 Next week's episode 41:21 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/421 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com PARTICIPATE: Take the Shaping Tomorrow Together Survey https://s.alchemer.com/s3/Perspectives-on-MS REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA https://nmss.quorum.us/event/25463 SIGN UP: Become an MS Activist https://nationalmssociety.org/advocacy LISTEN: RealTalk MS Episode 416: The Updated McDonald Diagnostic Criteria for MS with Dr. Andrew Solomonhttps://realtalkms.com/416 VIDEO: Dr. Robert Fox explains the results of the Phase 3 clinical trial for Tolebrutinib and Non-relapsing secondary progressive MS https://youtube.com/watch?v=tJQ93qdlXrU JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms DOWNLOAD: The RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 DOWNLOAD: The RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 421 Guests: Jan Bonville and NP Erin Wilkinson Privacy Policy
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    42 m
  • Special Episode: Dr. Aaron Boster Explains MS Clinical Trials

    Special Episode: Dr. Aaron Boster Explains MS Clinical Trials
    Sep 17 2025

    You're living with MS, and maybe you're thinking about participating in an MS clinical trial. But how do they work? Are they safe? What's the difference between Phase 1, 2, and 3 trials? What are the real patient risks and benefits of participating in a clinical trial?

    In this special episode of RealTalk MS, we're getting answers to those questions and so much more from my guest, Dr. Aaron Boster.

    Dr. Boster is the founder of the Boster Center for Multiple Sclerosis in Columbus, Ohio, where he brings over 20 years of experience as an MS clinician. Dr. Boster has also participated in more than 65 clinical trials.

    This special episode of RealTalk MS has been made possible through a generous grant from Sanofi. Sanofi has two ongoing Phase 3 clinical trials in MS studying Frexalimab, an investigational second-generation anti-CD40 ligand monoclonal antibody. If you are interested in learning more about these clinical trials, please visit SanofiStudies.com

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/ct1

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com
    Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

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    34 m
  • Episode 420: A DIY Kit for Improving Your MS Journey with Julie Polisena

    Episode 420: A DIY Kit for Improving Your MS Journey with Julie Polisena
    Sep 15 2025
    Disease-modifying therapies are the cornerstone of MS treatment, but they're not the only piece of the puzzle. Beyond prescription medications, self-care that includes making healthy lifestyle choices can significantly improve your quality of life with MS. Julie Polisena knows this firsthand. Julie lives with MS, and in a recent blog post, she shared a comprehensive list of the lifestyle changes that have improved her quality of life with MS. Julie joins us today to discuss some of the most impactful changes you can make to start your own journey toward better health and wellness. We're also diving into the science behind some of the most talked-about diets for MS. We're breaking down the research on the Mediterranean diet, the Keto diet, the Wahls Diet, the Swank Diet, a gluten-free diet, and intermittent fasting, giving you an overview of the studies that have measured their impact on MS. We're discussing the latest developments in the ongoing scrutiny of pharmacy benefit managers (PBMs). There's significant pending legal action and a congressional investigation targeting PBMs, the powerful and secretive middlemen in the prescription drug supply chain. And we'll tell you how they've profited at the expense of millions of people with chronic illnesses, including people living with MS. We'll tell you about a clinical trial that's testing an injectable formulation of Briumvi. You'll hear about a promising new strategy for myelin repair. And we'll remind you about a warning from the FDA and Health Canada about glatiramer acetate (Copaxone). We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A DIY approach to improving your MS journey :22 A roundup of studies that focused on popular diets for people with MS 1:53 Congress and the FTC have pharmacy benefit managers in their sites 7:32 TG Therapeutics is testing an injectable form of Briumvi 9:32 A research team has developed a novel remyelination strategy 11:03 A warning about glatiramer acetate has been issued 14:08 Julie Polisena discusses lifestyle changes that can make a difference in your quality of life 16:58 Share this episode 33:24 Next week's episode 33:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/420 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com PARTICIPATE: Take the Shaping Tomorrow Together Survey https://s.alchemer.com/s3/Perspectives-on-MS REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA https://nmss.quorum.us/event/25463 SIGN UP: Become an MS Activist https://nationalmssociety.org/advocacy READ: Small Changes, Big Impact: Managing My MS Through Lifestyle Changes https://mscanada.ca/find-support/blog/small-changes-big-impact-managing-my-ms-through-lifestyle-change STUDY: The Role of Nutrition and Physical Activity in Modulating Disease Progression and Quality of Life in Multiple Sclerosis https://mdpi.com/2072-6643/17/16/2713 STUDY: Transient Gene Melting Governs the Timing of Oligodendrocyte Maturation https://sciencedirect.com/science/article/abs/pii/S009286742500861X REVIEW: Copaxone, Glatopa (Glatiramer Acetate) FDA Drug Safety Communication https://www.fda.gov/safety/medical-product-safety-information/copaxone-glatopa-glatiramer-acetate-drug-safety-communication-fda-adds-boxed-warning-about-rare JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms DOWNLOAD: The RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 DOWNLOAD: The RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 420 Guest: Julie Polisena Privacy Policy
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    35 m
  • Episode 419: A Whole-Person Health Approach to MS Care with Dr. Lynne Shinto

    Episode 419: A Whole-Person Health Approach to MS Care with Dr. Lynne Shinto
    Sep 8 2025
    Some people living with MS adhere to a treatment plan based exclusively on what we might consider traditional medicine. Others opt for alternative treatments. And, still, others take a whole-person health approach, blending integrative medicine with traditional treatments designed to support an individual's mind and body. Dr. Lynne Shinto joins me to discuss how a whole-person health approach can transform living with MS. Dr. Shinto is a Professor of Neurology and an MS Specialist at the Center for Women's Health at Oregon Health and Science University. We're also sharing some encouraging news about funding for the National Institutes of Health in 2026. We'll explain the research that has led to the identification of a new and quite different subtype of MS. We'll tell you about this year's winner of the Rachel Horne Prize for Women's Research in Multiple Sclerosis. The National MS Society's virtual program, New to MS: Navigating Your Journey, takes place in just two days. We have all the details! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A whole-person health approach to MS care :22 House Republicans reject President Trump's $20 billion cut to 2026 NIH funding 1:26 Have researchers identified a new MS subtype? 4:16 This year's winner of the Rachel Horne Prize for Women's Research in Multiple Sclerosis 8:27 We're two days away from the National MS Society's New to MS: Navigating Your Journey virtual program 9:53 Dr. Lynne Shinto discusses how taking a whole-person approach to MS care can transform your MS journey 12:04 Share this episode 31:41 Next week's episode 32:01 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/419 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com PARTICIPATE: Take the Shaping Tomorrow Together Survey https://s.alchemer.com/s3/Perspectives-on-MS REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA https://nmss.quorum.us/event/25463 SIGN UP: Become an MS Activist https://nationalmssociety.org/advocacy STUDY: Large-Scale Online Assessment Uncovers a Distinct Multiple Sclerosis Subtype with Selective Cognitive Impairment https://nature.com/articles/s41467-025-62156-4 REGISTER: New To MS: Navigating Your Journey https://nationalmssociety.org/understanding-ms/newly-diagnosed/new-to-ms-journey Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 419 Guest: Dr. Lynne Shinto Privacy Policy
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    33 m
  • Episode 418: The Importance of Developing a Growth Mindset When You're Living With MS with Dr. Mirian Franco

    Episode 418: The Importance of Developing a Growth Mindset When You're Living With MS with Dr. Mirian Franco
    Sep 1 2025
    Living with MS means living with uncertainty, possible physical disability or cognitive dysfunction, bouts of crushing fatigue, mood changes, and let's not forget the very real irritation of well-meaning people telling you how healthy you look. Just processing the world around you can feel challenging. In this episode, psychologist Dr. Miriam Franco joins me to discuss how developing a growth mindset can make all the difference in how you experience your MS journey. We're also sharing a real-world example of how the drastic cuts in federal funding are already impacting MS care. We'll tell you about the first country in the world to approve Tolebrutinib, a new disease-modifying therapy for nonrelapsing secondary progressive MS. And we'll explain why people are particularly excited about this medication. We'll share details about the MS Clinical Imaging and Data Resource that's been launched by the International Progressive MS Alliance. We'll tell you how and where to catch the MS Standup Comedy Benefit next Monday in New York. And we're reminding you about your opportunity to impact future MS therapies by helping the FDA better understand what living with MS is really like. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Developing a growth mindset :22 How those federal research funding cuts are impacting MS patient care 1:30 United Arab Emirates becomes the first country in the world to approve Tolebrutinib for nonrelapsing secondary progressive MS 5:05 The International Progressive MS Alliance launches an MS Clinical Imaging and Data Resource open to the MS research community 8:32 The MS Standup Comedy Benefit takes place next Monday in New York 10:15 Add your voice and participate in the Shaping Tomorrow Together initiative 11:04 Dr. Miriam Franco discusses what it means to have a growth mindset when you're living with MS 14:50 Share this episode 34:11 Next week's episode 34:31 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/418 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com PARTICIPATE: Take the Shaping Tomorrow Together Survey https://s.alchemer.com/s3/Perspectives-on-MS REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA https://nmss.quorum.us/event/25463 VIDEO: Dr. Robert Fox, Principal Investigator in the Phase 3 Clinical Trial for Tolebrutinib and Secondary Progressive MS https://youtu.be/tJQ93qdlXrU?si=S5jREy5ixVcE7ol- VIDEO: Dr. Jiwon Oh, Principal Investigator in the Phase 3 Clinical Trial for Tolebrutinib and Relapsing-Remitting MS https://youtu.be/zcBmAHRTotA?si=n86KRjB9Xt9sdZMg The International Progressive MS Alliance Clinical Imaging and Data Resource https://progressivemsalliance.org/ms-clinical-and-imaging-data-resource ATTEND: MS Stand-Up Comedy Benefit https://msstandup.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 418 Guest: Dr. Miriam Franco Privacy Policy
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    36 m
  • Episode 417: Music and the Body with Emmy Award-Winning Composer Jeff Beal

    Episode 417: Music and the Body with Emmy Award-Winning Composer Jeff Beal
    Aug 25 2025
    If you've watched the critically acclaimed series, House of Cards, on Netflix, or the OCD detective series, Monk, on the USA Network, you've already listened to some of five-time Emmy award-winning composer Jeff Beal's work. This week, Jeff joins me to discuss his journey as an artist and as someone living with MS. We're also sharing all the details about the free event taking place at the Broad Stage in Santa Monica, California, on September 1, when Jeff joins conductor Leonard Slatkin and the Los Angeles Chamber Orchestra for a free concert featuring three of Jeff's works, including a world premiere! We're also explaining a newly introduced AI-based model of MS that replaces the MS subtypes (relapsing-remitting, secondary progressive, primary progressive) with a continuum that tracks four different states. We'll tell you about a study that identified specific gut bacteria that may determine whether an individual is susceptible to MS. And we'll share the details of a study that identified the first genetic marker that can accurately predict how someone will respond to a disease-modifying therapy. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Emmy award-winning composer Jeff Beal discusses his work and his MS journey :22 An AI-based model of MS 1:18 A study identifies specific gut bacteria that may be linked to MS susceptibility 4:49 A study identifies the first genetic marker for accurately predicting an individual's response to MS treatment 6:29 Composer Jeff Beal discusses his journey as an artist and as someone living with MS 9:57 Share this episode 30:36 Coming next week 30:56 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/417 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com PARTICIPATE: Take the Shaping Tomorrow Together Survey https://s.alchemer.com/s3/Perspectives-on-MS REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA https://nmss.quorum.us/event/25463 ATTEND: Music + The Body https://realtalkms.com/musicandthebody An AI-Driven Reclassification of Multiple Sclerosis Progression https://nature.com/articles/s41591-025-03901-6 STUDY: Multiple Sclerosis and Gut Microbiota: Lachnospiraceae From the Ileum of MS Twins Trigger MS-Like Disease in Germfree Transgenic Mice -- An Unbiased Functional Study https://www.pnas.org/doi/10.1073/pnas.2419689122 PARTICIPATE: International MS Microbiome Study https://www.nationalmssociety.org/how-you-can-help/get-involved/participate-in-research-studies/other-studies/international-ms-microbiome STUDY: HLA-A*03:01 As Predictive Genetic Biomarker for Glatiramer Acetate Treatment Response in Multiple Sclerosis: A Retrospective Cohort Analysis https://www.thelancet.com/journals/ebiom/article/PIIS2352-3964(25)00317-2/fulltext Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 417 Guest: Jeff Beal Privacy Policy
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    32 m
  • Episode 416: The Updated McDonald Diagnostic Criteria for MS with Dr. Andrew Solomon

    Episode 416: The Updated McDonald Diagnostic Criteria for MS with Dr. Andrew Solomon
    Aug 18 2025
    Since 2001, clinicians have relied on the McDonald Diagnostic Criteria as the gold standard for diagnosing someone with multiple sclerosis. As science continues to add to our understanding of MS, the McDonald Criteria have been updated in 2005, 2010, 2017, and most recently in 2024. This latest iteration of the McDonald criteria will be published in September, and today, Dr. Andrew Solomon is giving us a preview of what these changes are, what they mean, and how they're going to improve the process of diagnosing someone with MS. We'll also share results of a study that show MS may actually start 15 years before someone experiences their first MS symptom. We'll tell you about a study that shows a decline in the number of people with MS who are progressing to secondary progressive MS. We'll give you all the details so you can participate in the Shaping Tomorrow Together initiative with the FDA. And we'll remind you that Burgers to Beat MS Day is just two days away! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Updated criteria for diagnosing MS :22 Study results show that MS actually starts many years before the first symptom 1:21 Study shows a decline in the number of people progressing to secondary progressive MS 7:40 A unique opportunity for you to impact future treatments and share your experience of living with MS with the FDA 9:51 We're just 2 days away from Burgers to Beat MS Day! 13:06 Dr. Andrew Solomon shares a preview of the updated McDonald Diagnostic Criteria for MS 14:40 Share this episode 26:20 Coming next week 26:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/416 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com PARTICIPATE: Take the Shaping Tomorrow Together Survey https://s.alchemer.com/s3/Perspectives-on-MS REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA https://nmss.quorum.us/event/25463 STUDY: Health Care Use Before Multiple Sclerosis Symptom Onset https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2837128 STUDY: Health Care Use Before Multiple Sclerosis Symptom Onset (PLAIN ENGLISH VERSION) https://tremlettsmsresearchexplained.wordpress.com/2025/08/05/healthcare-use-before-multiple-sclerosis-symptom-onset-explained STUDY: Multiple Sclerosis From Onset to Secondary Progression: A 30-Year Italian Register Study https://researchgate.net/publication/392714813_Multiple_sclerosis_from_onset_to_secondary_progression_a_30-year_Italian_register_study DONATE: Burgers To Beat MS https://burgerstobeatms.ca Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 416 Guest: Dr. Andrew Solomon Privacy Policy
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    28 m