Episodios

  • Understanding POTS, MCAS, and hEDS: Tracy's Personal Experience with these Complex Conditions
    Jul 10 2024

    Tracy from the United States, has bravely shared her personal experience dealing with three intricate medical conditions: Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), and Hypermobile Ehlers-Danlos Syndrome (hEDS). Her story is an eye-opener for many as these conditions are often misunderstood and difficult to diagnose. Tracy's account provides important insights into the challenges faced by individuals living with these complex health issues.

    Más Menos
    19 m
  • The Hidden Connection: Doreena's Discovery of MCAS Alongside Lyme Disease
    Jul 3 2024

    In this poignant narrative, Doreena delves into the hidden connection between her struggles with Lyme disease and MCAS. She takes us through her emotional journey from childhood to the present day, recounting the trials and tribulations she faced. With a deep sense of empathy, she shares how she turned her experiences into a tool to unravel the mysteries of her condition, although she is still seeking answers for the treatment that would help her. Her story is both inspiring and informative, offering invaluable insights to those who are grappling with similar issues.

    Más Menos
    26 m
  • Brandi talks about MCAS, EDS and Dysautonomia
    Jun 26 2024

    Brandi from the US shares her life with Ehlers-Danlos, MCAS, and Dysautonomia.

    Más Menos
    20 m
  • Natalie shares her Eds (hypermobile syndrome), pots, monoclonal mast disease experience.
    Jun 19 2024

    Natalie from the US shares her Eds (hypermobile syndrome), pots, monoclonal mast disease experience with us.

    Más Menos
    21 m
  • Katie talks about LDN, MCAS, POTS and EDS
    Jun 12 2024

    Katie from the US shares her LDN, MCAS, POTS and EDS (type 4 molecular diagnosis) Journey with us.

    Más Menos
    19 m
  • Anno's journey with Health Challenges: A Story of Resilience and Diagnosis
    Jun 6 2024

    Anno, from the United States, has been dealing with health issues including mast cell activation syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and small intestinal bacterial overgrowth (SIBO).

    The journey with these health issues started after the birth of the guest's son in 2016, with severe digestive problems and classic indicators of methane dominant SIBO.

    Despite multiple treatments for SIBO, relapses were common, leading to a search for underlying causes. Eventually, a GI specialist diagnosed EDS and suspected POTS, leading to the turning point in the guest's health journey.

    As a child, symptoms such as constipation, temperature regulation issues, and a delayed onset to anaesthesia were noted, indicating early signs of the health conditions later diagnosed.

    Anno's mornings were challenging, with low energy levels and severe GI issues upon eating, making even showering in the morning difficult.

    Más Menos
    17 m
  • Caroline shares her story of MCAS, Dysautonomia, PTSD and LDN.
    Jun 5 2024

    Caroline from Canada shares her struggles with MCAS, Dysautonomia, PTSD and LDN.

    Más Menos
    19 m
  • Anne shares her LDN, MCAS, EDS story with us.
    May 29 2024

    Anne from the US shares her unique LDN, MCAS and EDS story with us.

    Más Menos
    20 m