On this special episode we are having a roundtable discussion from our recent attendance of the NHS Disability Summit 2021 that took place just a few weeks ago

We are joined today by Kieranne Page, a Clinical Nurse Specialist in Sexual & Reproductive Health and also Sharon Hudswell, Assistant Service Manager for Medical Education - who are also the co-chairs of the Guys & St Thomas NHS Trust Staff Disability & Long Term Health Conditions Forum!

On this episode we play a few clips from some of the featured speakers from the Summit discussing many initiatives, desired policy changes, current research and also best practices and desires for the continued growth and support of the NHS with its endeavours to improve and identify many elements with NHS Staff working with disabilities and long term health conditions

This one is a feature length episode but we feel there is alot of useful information many will find very useful - as always, thanks for listening

TRANSCRIPTION FOR THIS EPISODE IS IN PROGRESS

If you are part of Guys and St Thomas Trust and want to know more about The Staff Disability & Long Term Health Conditions Forum.. or want support from the forum, please contact us via email

DisabilityForumLeadership@gstt.nhs.uk

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PLEASE FIND THE FOLLOWING LINKS SHARED BY THE SUMMIT

https://www.nhsemployers.org/disabilitysummit

Meet Amar Latif - "The blind guy who wants to show you the world"

https://youtu.be/6ZsIRgNXwgk

• https://diversityandability.com/
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• https://diversityandability.com/blog/how-to-foster-wellbeing-as-a-leader/
• https://www.powtoon.com/embed/ekTPWdQGo01/
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• https://www.cqc.org.uk/guidance-providers/gps/gp-mythbuster-67-reasonable-adjustments-disabled-people
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• https://www.cqc.org.uk/sites/default/files/CM022109_Item9_WDES_report.pdf
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• https://www.bma.org.uk/media/2923/bma-disability-in-the-medical-profession.pdf
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• https://www.accessable.co.uk/guy-s-and-st-thomas-nhs-foundation-trust
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• https://hiddendisabilitiesstore.com/hidden-disabilities-sunflower-training
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• https://www.nhsemployers.org/articles/finding-my-voice-drive-change
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• https://www.nhsemployers.org/articles/supporting-disabled-staff-workplace
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• https://www.rcslt.org/policy/communication-access-uk/
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• https://communication-access.co.uk/
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• https://www.texthelp.com/en-gb/
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• https://www.equalityhumanrights.com/en/multipage-guide/employment-workplace-adjustments
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• https://www.purplespace.org/
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• https://www.rcn.org.uk/get-help/member-support-services/peer-support-services/neurodiversity-guidance
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https://www.rcn.org.uk/get-help/member-support-services/peer-support-services

On this recording we are joined by Sharon Hudswell, Assistant Service Manager of Medical Education

This time we delve into a discussion regarding living with and understanding the Long Term affects of Coronavirus which is now more commonly designated separately as 'Long Covid'

Sharon speaks on her experiences contracting Covid-19, managing her symptoms, explainging intersections in regards to also having long term health condition and how she empowers herself to manage her conditions whilst also giving advice to others

It was a really insightful conversation to have with Sharon on to get a true understanding of just how impactful long covid can be on others.. let alone others with underlying long term health conditions, we humbly thank Sharon for sharing her story, thoughts and lived experiences in such a difficult period 

Please do not hesitate to share your stories thoughts and ideas too - please check

the links below for more information

TRANSCRIPT LINK - COMING SOON

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If you are part of Guys and St Thomas Trust and want to know more about The Staff Disability & Long Term Health Conditions Forum.. or want support from the forum, please contact us via email

DisabilityForumLeadership@gstt.nhs.uk

For Podcast enquires you can email - j.kofi@nhs.net

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Please find below the links to articles / clips mentioned in this recording

Sky News Long Covid Video

https://www.youtube.com/watch?v=VDNCFCXg3Vg

Channel 5 Long Covid Video

https://www.youtube.com/watch?v=QB41J5aU9Ww

Long Covid NHS Page

https://www.nhs.uk/conditions/coronavirus-covid-19/long-term-effects-of-coronavirus-long-covid/

https://www.yourcovidrecovery.nhs.uk/what-is-covid-19/long-covid/

The Long Covid Organisation

https://www.longcovid.org/

Welcome back to another editorial episode of FEEDBACK!

Our members and communities would like us to have a focus on Dyslexia ahead of Dyslexia awareness month in October and we are more than happy to oblige with Tips, Talks and a helpful guide that can be used to find assessment facilities here in the UK for diagnosing individuals who may have Dyslexia

Please look forward to our upcoming interviews with staff with lived experiences - until then please check out the following links highlighted during this conversation

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Transcript link here - COMING SOON

What is Dyslexia

https://youtu.be/zafiGBrFkRM

Tamara Thomas NHS - A Colleagues Story With Dyslexia https://youtu.be/dEpJQKvVU4o

The British Dyslexia Association Assessment Guide

https://www.bdadyslexia.org.uk/services/assessments

Christian Boer  of dislexyfont.com https://youtu.be/qVaeGOflF7w

https://www.dyslexiefont.com/en/typeface/

Dyslexia: The Superpower

https://youtu.be/AMrUxxmMz8g

...and tools mentioned in this podcast that can also help with Dyslexia

Dragon software has a very popular Dragon Dictation product, google has built in text to speech in the keyboard app GBOARD, MICROSOFT has added immersive reading in many of its applications as a reading feature, Grammarly.com, Speechify.com and the Reachdeck browser addon are exception tools that offer a free / preimum tiered approach for added support

On this recording we do a bit more of an editorial coverage episode - we are highlighting Voices in Autism / Aspergers Syndrome as this has been quite heavily requested in our forum meetings

We intend to follow up on this subject with guests / allies for the further support and education of Autism awareness but for now we have been forwarded some great content we want to share with our audience

This podcast only contained snippets of the longer conversations / talks - please find full links below 

PODCAST TRANSCRIPT -  https://archive.org/details/feedback-04

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01. World Autism Awareness: A Message from Claire Murdoch | NHS

https://youtu.be/ijLLSM5nDSI

02. Autism: Graeme's story | NHS

https://youtu.be/yKT3swmn_wc

03. Autism and Aspergers: 5 intriguing differences (YOU need to know)

https://youtu.be/0bACSPzN1xY

04. Women and Autism. Towards a Better Understanding | Sarai Pahla

https://youtu.be/_MA7o6FgPRU

05. Why Everything You Know About Autism Is Wrong | Jac den Houting

https://youtu.be/A1AUdaH-EPM

OTHER RESOURCES MENTIONED

NHS PAGE  -  https://www.nhs.uk/conditions/autism/

National Autism Society  -  https://www.autism.org.uk/

https://www.awarenessdays.com/

http://www.national-awareness-days.com/

https://www.pat.nhs.uk/working-for-us/Equality/Resources/EDI%20-%20Interactive%20Calendar%202021.pdf

https://www.nhsemployers.org/events/calendar-national-campaigns

Email address for the podcast en quires: j.kofi@nhs.net

To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!

Today we are joined by a member of staff from Guys & St Thomas hospital trust who is dealing with having chronic and severe long term migraines

Our guest prefers to remain anonymous while they discuss how they cope with constant headaches and migraines as a long term health condition

We discusses the physical and mental effects this condition can cause as well as the challenges / outcomes this has presented in their current role

We lastly get specific with medicines involved to help control these conditions, new and promising prevention trials and even a charity that can help others in similar situations that may find such information helpful

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Please find below links / resources mentioned during this conversation

Podcast Transcription - https://archive.org/details/spotlight-3-migraines

The Headache Channel  (YouTube)

https://www.youtube.com/channel/UCWtLYWoWW5Teahm0Cwu_VIQ

The Migraine Trust Website

https://www.migrainetrust.org/

AJOVY & EMGALITY DETAILED INFORMATION FOR PATIENTS

https://www.nationalmigrainecentre.org.uk/migraine-and-headaches/migraine-and-headache-factsheets/cgrp-and-anti-cgrp-injections-for-the-prevention-of-migraine/

Email address for the podcast en quires: j.kofi@nhs.net

To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!

On this recording Cherron joins us to speak about her ongoing initiative of helping organizations execute and utilize the power of Staff Networks. Cherron talks about her book “The Incredible Power of Staff Networks” which is a very thorough guide on how to form, sustain and maintain a Staff Network as well as her further related efforts on the national ‘Staff Networks Day’ and much much more!

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Please find below links / resources mentioned during this conversation

Podcast Transcription - https://archive.org/details/feedback-03-transcription

https://nationaldayforstaffnetworks.co.uk

https://www.thepowerofstaffnetworks.co.uk/

https://www.thepowerofstaffnetworks.co.uk/online-store

POSN Youtube Channel

https://www.youtube.com/channel/UCpmHAOm1QZMupQi4ld7qx8A/featured

She's The Boss Interview - Female Entrepreneur Stories: Cherron Inko-Tariah

https://youtu.be/IwS8WUAjB5M

The Incredible Power of Staff Networks Amazon Book Link

https://www.amazon.co.uk/Incredible-Power-Staff-Networks/dp/191012561X

Twitter: @POSnetworks

Email for the giveaway - j.kofi@nhs.net - remember this giveaway is first come first claim!

To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

Thank you for your continued support, please like and share our content with your communities and let us continue to promote, learn and uplift from each other!

On this recording we have Vaughan Parsons - a research manager in the occupational health service for Guy’s and St Thomas NHS Trust. Today he discusses with us his work on the creation of a new Staff Network.

The NHS Stammering Network is an upcoming community we are very exited to support and see come int fruition. Vaughan talks about its development so far as well as his experiences, thoughts and research on Stammering

Please find below a copy of this podcast's transcript and also links to the highlighted points we want to signpost

Podcast Transcript - https://archive.org/details/feedback-02-transcripted

BBC Documentary - https://www.bbc.co.uk/iplayer/episode/m000t27y/i-cant-say-my-name-stammering-in-the-spotlight

BBC Documentary YouTube Link - https://youtu.be/HgskTBGqKq8

Follow Up Interview by Stamma - https://youtu.be/dcOo1gVgRVA

Stamma, the British Stammering Association - https://stamma.org

The NHS Stammering Network Website - https://nhsstammeringnetwork.uk

To find out more information about the staff disability and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk

On this recording we have  Ramze, who shares his unique experience as a partially sighted employee. We discuss how he navigates life in general, gives us tips with the tools and software he uses within his role, talks about his experience as an apprentice within the trust  and how he keeps an overall positive attitude even under hardships and challenges

Transcript link here - https://archive.org/details/spotlight-02-ramze

Links also mentioned in this recording...

Metro Blind Sports - https://www.metroblindsport.org

For more information about the staff disability forum and long term health conditions forum please email: Disabilityforum@gstt.nhs.uk