Type 1 on 1 | Diabetes Stories  Por  arte de portada

Type 1 on 1 | Diabetes Stories

De: Jen Grieves
  • Resumen

  • Type 1 on 1 is a podcast that delves into the obscure, complex and challenging world of life with type 1 diabetes.

    Writer and broadcaster Jen Grieves, who was diagnosed at the age of 8, talks to compelling guests about their experiences of living with type 1 diabetes and how it’s shaped them - showing that there is no ‘normal’ when it comes to handling this wild chronic condition.
    Copyright Jenny Grieves
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Episodios
  • The Diaries Check In: Don't put a glucose sensor on your forehead
    Jun 27 2024
    My dear friend and fellow type 1 Ami Bennett is back to say hello. So obviously this episode is full of mischief, escapades, hypo gremlins, and guess what? We've STILL both got type 1 diabetes...

    We sweep through so much fun (and not so fun) stuff this week, having a good old catch up about everything from turning into hermits of routine by choice, being confronted by security staff about diabetes, dating, shoving Haribo into your face in a public toilet to fix a hypo... it's a glamorous life.

    We shoutout some awesome people doing awesome things in the community, and of course The Diaries wouldn't be complete without an appearance from Ami's lovely dog Milou.

    CONNECT WITH AMI:
    Follow Ami on Instagram.

    OTHER PEOPLE MENTIONED:
    Type One Community's Instagram.
    Temi Olonisakin's Instagram.

    JOIN THE TYPE 1 ON 1 COMMUNITY
    We’ve got an Instagram account! Come and say hi @studiotype1on1.

    SPONSOR MESSAGE:
    Thanks to my episode sponsors Dexcom.

    Pioneer and leader in Real-Time continuous glucose monitors, Dexcom's goal is to simplify and improve diabetes management for every possible person with diabetes.

    They have a choice of systems, so you can find the right one for your lifestyle at https://www.dexcom.com/
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    50 m
  • Renza Scibilia: 'I never wanted my diabetes to become anyone else's burden'
    Jun 20 2024
    When it comes to diabetes advocates, few are held in such regard as Renza Scibilia. And rightly so, as for more than two decades she has travelled the world to ensure the voices of people with diabetes are not only acknowledged, but listened to and understood by everyone from world-renowned healthcare professionals to pharmaceutical bosses.

    Diagnosed in 1998, Renza’s activism started out through the Diabetonic blog, published from her desk at home in Melbourne, Australia. But such is her determination and motivation to create meaningful change, she is now Director of Community Building & Communications at Breakthrough T1D (formerly JDRF), Head of Advocacy at #dedoc°, and in her spare time (when she’s not baking or on a plane), she runs a health consultancy.

    As much as Renza works hard to makes sure she has a seat at the table, she works even harder to ensure that there are seats for the rest of us too, shaping outcomes for everyone who has been forced through lived experience to cruelly understand what it really means to live with type 1 diabetes.

    'When insulin has been around for 100 years, lack of access should not be happening,' she told me. 'It’s perfectly ok to feel overwhelmed by the personal burden of type 1 diabetes and what we are living with, but I do also feel the weight of what type 1 diabetes is on a bigger scale. Sometimes I think it’s ok to feel hopeless because of that, because in many ways it’s what drives me.'

    This generous and heartfelt conversation is such a treat, and a reminder of the power we collectively have for change when the right people are shaping the conversation.

    CONNECT WITH RENZA:
    Take a look at Renza’s blog, Diabetogenic.
    Follow Renza on X.

    JOIN THE TYPE 1 ON 1 COMMUNITY
    We’ve got an Instagram account! Come and say hi @studiotype1on1.

    SPONSOR MESSAGE:
    Thanks to my episode sponsors Dexcom.

    Pioneer and leader in Real-Time continuous glucose monitors, Dexcom's goal is to simplify and improve diabetes management for every possible person with diabetes.

    They have a choice of systems, so you can find the right one for your lifestyle at https://www.dexcom.com/
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    1 h y 1 m
  • The winding roads to acceptance with Alex Durussel-Baker
    Jun 13 2024
    Everybody’s type 1 diabetes diagnosis is memorable, but Alex Durussel-Baker’s was particularly far removed from her routine as a 30-year-old business owner living in Edinburgh. Alex was on an aeroplane runway, about to take off for a work trip to the States, when her doctor called with the results of a blood test.

    Alex subsequently spent three days in hospital in New York, before attending the work conference anyway. This isn’t a movie, this is Alex’s life, and it was once she returned to Scotland that the reality of both the permanence and the inconsistency of living with this complicated condition took hold.

    Since that diagnosis in 2018, Alex’s path to acceptance has taken many turns. During a period of burnout and depression, she started to process events in the way that she knows best - through creativity, specifically graphic design. A 100-day project to make diabetes more visible by subverting famous posters led to the birth of Diabetes By Design.

    Six years later, today sees the launch of DByD Fest - a 10 day programme of events, a design exhibition and panel talks all led by Alex. It’s all entirely free for you to visit at Custom Lane in Leith, Edinburgh, from June 13th-22nd 2024. This episode is a celebration of the ways in which this event will address the multitudes of misunderstanding that are unfortunately part of life with type 1 diabetes, but also an honouring of Alex’s lived experience.

    We discuss so much in this episode, including motherhood, the effect that diabetes has had on her relationship, and how absolutely messy this all is, no matter how far into the journey you are. You can get involved in Alex’s work by giving your feedback on her soon to be launched Companion Card toolkit, co-designed by healthcare professionals and people living with type 1 diabetes to open up conversations about this undoubtedly messy condition.

    Thank you so much to Alex for speaking to me with such candour and humility.

    CONNECT WITH ALEX
    Find out more about DByD Fest.
    Find out more about the Companion Cards.
    Sign up to the Diabetes By Design newsletter.
    Follow Diabetes By Design on Instagram.

    JOIN THE TYPE 1 ON 1 COMMUNITY
    We’ve got an Instagram account! Come and say hi @studiotype1on1.

    SPONSOR MESSAGE:
    Thanks to my episode sponsors Dexcom.

    Pioneer and leader in Real-Time continuous glucose monitors, Dexcom's goal is to simplify and improve diabetes management for every possible person with diabetes.

    They have a choice of systems, so you can find the right one for your lifestyle at https://www.dexcom.com/
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    1 h y 4 m

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Very very good! So Real NOT 'Up With People '

Love you both talking
Openly about
Us T1ds having
'A Strange Day'
In our
'Twilight Garden '
UK rules
US not so much
*shrug* 🖤🖤🖤

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