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Your Story Our Fight by Lupus LA

De: LupusLA
  • Resumen

  • Lupus LA enters the fastest growing media market with the new Your Story Our Fight® podcast which will give a voice to lupus patients while continuing Lupus LA’s mission to raise lupus awareness worldwide. Hosted by the Chairman of Lupus LA and lupus patient himself, Adam Selkowitz, patients from all walks of life will share stories about their unique lupus journeys. With a focus on inspiration and hope, Lupus LA’s podcast will provide support and optimism to a patient community looking for assurance that they are not alone.

    © 2024 Your Story Our Fight by Lupus LA
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Episodios
  • Season 3 | Episode #18 with Musician, Lupus Advocate and Lupus Patient, Dion Langley
    Jun 25 2024

    Season THREE Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes Dion Langley. Dion was born and raised in Portsmouth, Va. He was diagnosed with
    Systemic Lupus Erythematosus ( SLE ) in 2010. Dion decided to use his career as a professional drummer as an avenue to promote Lupus advocacy. Dion also established the #BeatLupus organization as a place where people affected by Lupus can meet in person to provide individual with emotional support, practical advice for living with Lupus and information about treatment and management strategies. In 2020 Dion released "BEAT IT LIKE A DRUM," a song dedicated to the Lupus community with the understanding that we will BEAT LUPUS motivate patients to keep fighting.

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    32 m
  • Season 3 | Episode #17 with Board member of the Lupus Research Alliance, Lupus Advocate and Lupus Patient, Molly McCabe
    Jun 11 2024

    Season THREE Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Molly McCabe. Molly McCabe began her career at the young age of 16 when she joined the inaugural board for the Kids Making Miracles program at Doernbecher Children’s Hospital. She also was part of the founding family that created Potluck in the Park in 1993 where she served the homeless every Sunday for three years. Molly worked as a CASA and served on the Family Council of the Scripps family.
    Molly and her mother, Debbie McCabe, created the nonprofit, Molly’s Fund Fighting Lupus, in 2007 and she served on the board for ten years there. Molly has been a lupus advocate for over 17 years, wherein she was a patient advocate for GlaxoSmithKline, and reviewed grants for the Lupus Research Program at the Department of Defense CDMRP for three years.
    She was given the Spirit Award from the Autoimmune Advocacy Alliance in 2014 for extraordinary spirit, dedication and community support while living with autoimmunity. In 2019, Molly was honored at the Breaking Through Gala for the Lupus Research Alliance. She also received the 2021 Community Spirit Award from the Randall Children’s Hospital Kite Society.
    Currently, she is on the board of the Lupus Research Alliance, Randall Children’s Hospital, and the Mirimar Impact Fund. In 2019, she established the Karen Reiter Scholarship at the James Toland Vocal Arts Competition and is the Business Manager for Mata Advocacy and Support. She has serves as a judge for the White House Fellowship program for the past two years. She is also the proprietor of an art gallery in Portland, Oregon, “The Lobby.” Molly McCabe is the founder of the Use Your Voice competition.

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    26 m
  • Season 3 | Episode #16 with Advocate, Educator, and Founder of Lupus In Color, Racquel Dozier
    May 28 2024

    Season THREE Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Racquel Dozier. Racquel H. Dozier is a passionate lupus advocate, educator, and the founder of Lupus In Color. Her mission is to educate, inspire, encourage, and empower lupus warriors and their supporters worldwide. Through Lupus In Color, Racquel advocates for lupus warriors one butterfly at a time, striving to make a positive impact in the lives of those affected by lupus.

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    30 m

Lo que los oyentes dicen sobre Your Story Our Fight by Lupus LA

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