Chronic Illness Memoir

Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood - and that's on top of dealing with your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see.

A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.

A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.

Chronic pain, illness, and disability take so much away. Sometimes it seems as though they take everything we have ever loved and held dear. Our physical abilities and our jobs. Our current passions and future dreams. Our finances and our friends. Our sense of community and our ability to engage the world in ways we could before. Chronic pain takes away our sense of self and who we always thought ourselves to be. How in the world are we supposed to deal with this fact?

Brita grew up a competitive athlete, full of happiness and excitement for life. There wasn’t much that would take her out of a game as she constantly pushed her body to the limits. When she was unable to compete due to unknown and undiagnosed illness, she entered a world that was unfamiliar, and began to sink into a darkness she could never have imagined.

Finding Joy presents a comprehensive, practical guide for living your best life with chronic illness. This psychology self-help book integrates personal and professional insights to give you tools for handling various aspects of living with a chronic illness. There is also a chapter specifically for the loved ones and caregivers of the chronically ill. While this book is designed for anyone with a chronic illness, the spiritual content early in the book suggests the value of sticking to your faith and offers several Bible references.

If you’re tired of carrying the burden of pain and discomfort and you're fed up with the medical system having no answers for you, look no further. In Peace over Pain, Dr. Kevin Reese lifts the curtain on the medical monopoly and uncovers why they can only manage your chronic conditions. He goes on to provide his revolutionary solution for correcting the body quicker and more efficiently than any other therapeutic approach. Using his unique method, he claims the health burden can be eliminated in months, not years. This is healing wisdom ahead of its time!

Rather than focusing on the medical side of long-term conditions, this book contains bespoke advice for the parts of everyday living that often go unspoken - from practical advice on friendships, dating and independent living, to more reflective guidance on rediscovering your identity and learning to self-advocate. Chronic illness affects everybody differently, but we all want to find joy where we can and make the most of what we have. This book exists to help you take accessible steps towards that goal and build a life that truly feels like yours.

Diagnosed with a disease that can't be reversed? Learn how to keep living life to the fullest. Have you received a terminal or chronic diagnosis? Can you ever find joy, peace, or fulfillment in these challenging conditions? The answer is a resounding yes. When author Jarem Sawatsky was diagnosed with Huntington's Disease, he found there were no guides for those living with incurable illness. He quit his job as a professor and devoted his life to exploring the possibilities of living with chronic conditions. Now he's bringing his findings and insights to you.

Julie fully expected to be breathing at the end of the trip - but driving into Death Valley felt like giving up, surrendering. She'd spent years battling a mysterious illness so extreme that she often couldn't turn over in her bed. The top specialists in the world were powerless to help, and research on her disease, chronic fatigue syndrome, was at a near standstill. Having exhausted the plausible ideas, Julie turned to an implausible one. Going against both her instincts and her training, she followed the advice of strangers she'd met on the Internet.

After a number of years of being chronically ill with Lyme disease, Jenny Rush had a momentary realization that she was overlooking a lesson that was resulting in continued ill health. As she went into her last year of dealing with chronic illness at a physical level, Jenny shifted her primary focus from the illness itself to addressing the multitude of experiences that the illness was provoking.

On July 22, 2009, a special meeting was held with 24 leading scientists at the National Institutes of Health to discuss early findings that a newly discovered retrovirus was linked to chronic fatigue syndrome (CFS), prostate cancer, lymphoma, and eventually neurodevelopmental disorders in children. When Dr. Judy Mikovits finished her presentation the room was silent for a moment, then one of the scientists said, "Oh my God!" The resulting investigation would be like no other in science.

As a nurse for over ten years, energy and spiritual intuitive healer Marie Anne June Tagorda has seen the effects illness has on people and their loved ones. She herself has had her share of chronic pain and invisible illness, and in Taking Back My Health and Happiness, she shares her process for achieving self-healing and happiness.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

In the fall of 1995, Dr. Saray Stancic was diagnosed with multiple sclerosis. By 2003, she walked regularly with a cane, had given up virtually all unnecessary physical activity, and was on numerous medications, all with horrible side effects. After stumbling upon some studies that linked MS outcomes to diet and lifestyle, Dr. Stancic undertook a radically different approach to managing her illness.

"SpoonieNinja: Finding Strength in the Shadows" is an inspiring and intimate exploration of resilience and self-discovery in the face of chronic illness. Through raw and reflective storytelling, the book delves into the hidden battles, strength, and courage that come from living with a condition that often goes unseen. Tesla Coyle invites listeners to find empowerment in vulnerability and to embrace their own inner strength, even in the darkest of times. This book is a beacon for anyone seeking understanding, hope, and solidarity in their own journey through life's challenges.

In this inspiring memoir, Emily Falcon chronicles her lifelong journey with a congenital cardiac condition. In 1982, at seven weeks old, she had a heart attack that destroyed 40 percent of the left side of her heart. This was her entry into a world of multiple cardiac procedures, surgeries, hospitalizations, and a later diagnosis of glaucoma. Balancing these serious conditions defined her life.

A Still Life is a story of illness and pain that rarely sees the light: illness and pain with no end or resolution; illness and pain that we must meet with courage, joy, ingenuity and hope. Against a world which values ‘feel good’ progress and productivity above all else, Josie sets out a quietly radical alternative: to value and treasure life for life itself, with all its defeats and victories, with all its great and small miracles.