• Living with Long covid

  • By: Julie
  • Podcast
Living with Long covid  By  cover art

Living with Long covid

By: Julie
  • Summary

  • This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.
    © 2024 Living with Long covid
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Episodes
  • Alexander Taylor - Creating a safe space
    Apr 28 2024

    In today's episode of the podcast I talk with my son Alexander.
    Alexander and I were talking some time ago, and he explained to me this concept of "safe space" which he had been thinking about. He explained he was developing and applying this to everyday life, but specifically to the salon he works in. He currently works at Rebecca Dickinson's salon in Bawtry; RD hair, body and soul; Alexander talks about how he wants to make sure the salon he works in is accessible to all, considering physical, emotional and mental health.
    We discuss how he is the "safe space" for his clients and the salon environment and his colleagues are his "safe space". We talk about adaptations, accessibility, future plans and opportunities and how other services could implement safe space for inclusion and so much more. This is an inspiring podcast and I thank my son for joining me.
    As always #onedayatatime take care, see you on the next podcast.

    Links from today's episode:
    https://www.facebook.com/Alexander__hair
    https://www.instagram.com/Alexander__hair
    https://www.facebook.com/RDhairbodyandsoul
    https://www.instagram.com/RDhairbodyandsoul
    https://www.mind.org.uk

    My Links:
    https://linktr.ee/joulest
    https://twitter.com/julieTa58407536
    https://www.facebook.com/livingwithlongcovid/
    https://www.instasgram.com/julietaylor9545
    https://amzn.eu/d/9v9MP4v
    https://amzn.eu/d/1QVK8zn - Return to work planner
    https://amzn.eu/d/a1Safxc - well-being planner
    https://www.julie-t.com/ - Julie Taylor life coaching website
    Long Covid Clinic (Julie Taylor & Dr Binita Kane - contact; longcovidclinic@howellmedicalgroup.co.uk for more information

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    43 mins
  • As requested....My experience on using a fitted Vagus nerve stimulator!
    Apr 14 2024

    As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve stimulator (VNS). I have aimed to answer all of the questions you guys asked me. I have given some information on the VNS, how it is fitted, what it does and how I am finding it at this point, including any symptom improvement.
    I touch upon alternatives for stimulating the vagus nerve and what the suggested benefits are with using vagus nerve stimulation.
    I feel positive, and I hope this episode of the podcast is useful for you. As always #onedayatatime take care, see you on the next podcast.

    https://pubmed.ncbi.nlm.nih.gov

    My Links:
    https://linktr.ee/joulest
    https://twitter.com/julieTa58407536
    https://www.facebook.com/livingwithlongcovid/
    https://www.instasgram.com/julietaylor9545
    https://amzn.eu/d/9v9MP4v
    https://amzn.eu/d/1QVK8zn - Return to work planner
    https://amzn.eu/d/a1Safxc - well-being planner
    https://www.julie-t.com/ - Julie Taylor life coaching website
    Long Covid Clinic (Julie Taylor & Dr Binita Kane - contact; longcovidclinic@howellmedicalgroup.co.uk for more information

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    28 mins
  • NHS court hearing update with Kevin Digby and Rachel Hext
    Mar 17 2024

    In this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a partner at GA Solicitors and is representing nearly 70 healthcare workers with Long Covid taking the NHS and other employers to court.
    Many healthcare workers are living with the disabling consequences of Long Covid after working on the frontline, with inadequate, incorrect or no PPE (personal protective equipment).
    We discuss the day in court and the outcome from the 6th March 2024, Kevin explains what this means going forward and what can be expected from the hearing in October 2024.
    Rachel explains how she felt being in the court that day, why she advocates for herself and others with Long Covid, we touch upon her experience with the media and both positive and negative public opinion.
    I asked Kevin if it is too late for other healthcare workers to contact him, he explains it is not and why, please use the details below if you would like to contact Kevin.
    A huge thank you to Kevin and Rachel, and thank you for listening to the podcast, as always #onedayatatime, take care.

    Links from todays episode:
    Kevin.Digby@gasolicitors.com - please include your telephone number when contacting Kevin
    https://gasolicitors.com/our-people/kevin-digby/
    https://wwwlinkedin.com/in/kevin-digby-2321232
    Facebook: https://www.facebook.com/GAsolicitors

    LinkedIn: https://www.linkedin.com/company/ga-solicitors

    X: https://twitter.com/GASolicitors

    My Links:
    https://linktr.ee/joulest
    https://twitter.com/julieTa58407536
    https://www.facebook.com/livingwithlongcovid/
    https://www.instasgram.com/julietaylor9545
    https://amzn.eu/d/9v9MP4v
    https://amzn.eu/d/1QVK8zn - Return to work planner
    https://amzn.eu/d/a1Safxc - well-being planner
    https://www.julie-t.com/ - Julie Taylor life coaching website
    Long Covid Clinic (Julie Taylor & Dr Binita Kane - contact; longcovidclinic@howellmedicalgroup.co.uk for more information

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    40 mins

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