Chronically Complex  By  cover art

Chronically Complex

By: #MEAction
  • Summary

  • If you're new to myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), we're here to tell you that you are not alone. There are millions of others like you. At #MEAction, our mission is to advocate for people with ME to raise awareness, educate, and fight for better access, better treatments, and ultimately a cure. Whether you’re new to this disease or you’ve been living with it for decades, there’s something here for you. We're your hosts, Steven Molony and Jaime Seltzer. Steven is an actor, writer, and filmmaker who makes all of #MEAction's videos and provides lots of voiceover as well. He is an ally to people with ME, Long COVID, and other chronic illnesses. Jaime is #MEAction's director of scientific and medical outreach, and she does research at Stanford University on ME and other complex chronic diseases. She is a person living with ME, and ME runs in her family with both her mother and sister affected. We'll be interviewing some of the most influential voices in ME/CFS and Long COVID, discussing books and articles on complex chronic disease; having candid chats about life with ME; #MillionsMissing and what it means to #StopRestPace; disability activism and advocacy; art and music from disabled artists you love; and so much more. If you’re looking for an outlet on the road of chronic illness, you’ve come to the right place.
    2022
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Episodes
  • Cynthia Adinig
    Mar 7 2023

    Cynthia Adinig is a marketing specialist turned Long COVID advocate. She is the co-founder of BIPOC Equity Agency which is a diversity, equity, and inclusion agency with a focus on healthcare, policy, and research. She is a board member of SolveME, and a steering member of the Long COVID Alliance. She has testified on Capitol Hill on Long COVID and racism, and has been featured in TIME, The Washington Post, USA Today, and NBC News among others. Cynthia discusses her journey with Long COVID, her life in advocacy, and the work she's doing with BIPOC Equity Agency.

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    1 hr and 3 mins
  • David Tuller
    Jan 10 2023

    David Tuller obtained his Doctorate in public health from UC Berkeley. He is a senior fellow in public health and journalism at UC Berkeley’s Center for Global Public Health. 

    He was a reporter and editor for ten years at The San Francisco Chronicle, and served as health editor at Salon. He has also written articles about public health and medical issues for The New York Times and the policy journal Health Affairs. 

    Since 2015, he has been investigating scientific, methodological, and ethical problems with research on myalgic encephalomyelitis/chronic fatigue syndrome. His ongoing series on this issue, Trial By Error, can be found on Virology Blog, the science site hosted by Vincent Racaniello, a microbiology professor at Columbia University. 

    This episode concludes season one of Chronically Complex. We’ll be off in the month of February while we make some improvements to the show. If you have any suggestions you’d like us to consider, send us an email at podcast@meaction.net. We look forward to continuing the conversation in March!

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    1 hr and 5 mins
  • Laurie Jones
    Dec 13 2022

    Steven and Jaime sit down with #MEAction's executive director, Laurie Jones, as the end-of-year fundraiser winds down to a close. Laurie has years of experience working in non-profits and in the arts. Prior to joining the #MEAction team, Laurie was the Director of Impact for Unrest, using the film to educate and advocate for those in the ME community. She has served as Programs Director at Brave New Films, worked on the Why Poverty? film campaign and fundraised for United Way of Metropolitan Chicago. She has a BA in Production Studies in Performing Arts from Clemson University, and an MA in Applied Human Rights from the University of York.

    If you'd like to donate to #MEAction, you can do so here: https://www.meaction.net/donate

    As was mentioned in the episode, you can sign up for the Chronic Illness Survey Adventure here: https://www.meaction.net/epi

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    56 mins

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omg...can it be true?

I want to say so much, but I don't have the energy and it frustrates me to no end. I had to tell these doctors and hosts how unbelievably grateful I am to know there are actually new doctors who are interested in helping us, the lepers of the medical community. I have been buried alive in my bed for 7 years now with me/cfs and I've just about given up hope of ever having any kind of life- but listening to you guys made me think, and it feels dangerous, but it made me think just maybe someday...

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Fantastic Podcast!

I've had ME +20 years. This podcast was AMAZING for those with a chronic illness, and for allies, as well. O'Rourke articulates so much of what I've struggled with, so I found this podcast incredibly affirming.

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