When we peel back the layers of healthcare access for endometriosis and adenomyosis sufferers, a tangled web of systemic biases and inequalities is revealed. Joined by the insightful Jen Moore, our latest episode delves into the heart-breaking narratives from all corners of the globe, including the stark discrimination unmarried women in India face and the prolonged wait times that disproportionately affect black women in the UK. We confront the distressing realities that income, culture, and race play in healthcare, scrutinizing the obstacles specialists grapple with in their quest to deliver affordable, expert care within the constraints of insurance and private practice.

Imagine the frustration of navigating medical misinformation, where even the experts falter. Jen and I share our own stories of advocating for accurate treatment in a sea of inaccuracies that permeate even the most esteemed medical texts. We dissect the dangerous misconceptions, like the myth of hysterectomies as a cure-all for endometriosis, which only scratch the surface of the broader issue. It's an unfiltered conversation on the vital need for patients to arm themselves with knowledge, push for comprehensive medical records, and challenge the status quo of medical care, especially when chronic illnesses cast long shadows on one’s quality of life.

Jen's journey from personal struggle to a beacon of advocacy is nothing short of heroic. Through heartfelt stories of advocacy and the emotional toll of chronic pain, we underscore the importance of individualized treatment paths and the nuances of long-term rehabilitation. This episode is an empowering reminder of the power of community, the significance of multidisciplinary approaches to treatment, and the ongoing fight for better, more compassionate care. Pour yourself a comforting beverage and join us as we offer support, knowledge, and a shared sense of purpose to those navigating the complexities of endometriosis and adenomyosis.

Website endobattery.com

When Jen Moore first experienced the agony of endometriosis and adenomyosis at just eleven years old, little did she know that her pain would ignite a fierce advocacy for global awareness and change. Join us at the table for an enlightening conversation with Jen, who candidly details her journey from suffering in silence to becoming a beacon of hope for countless individuals dealing with these often misunderstood conditions. Her poignant narrative is a testament to resilience, as she recalls facing a healthcare system fraught with dismissal and misunderstanding, and how her quest for validation evolved into a powerful movement with her project "They Said What?".

Amidst Jen's compelling story, we tackle the broader issues that underscore the patient-provider divide, especially in the realm of chronic illnesses like endometriosis. We dissect the trauma inflicted by healthcare gaslighting and structural inefficiencies plaguing systems such as the NHS and U.S. insurance-based models that frequently prioritize cost over patient wellbeing. This episode isn't just about the challenges; it's an urgent call to action for comprehensive healthcare reform, the imperative inclusion of endometriosis education in medical curricula, and the provision of much-needed mental health support for those in the grips of this full-body disease. Tune in for an episode that promises not only to enlighten but also to empower in the face of chronic health battles.

Website endobattery.com

Postmenopausal endometriosis: a challenging condition beyond menopause. Menopause.

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Endometriosis in Menopausal Women-A New Age Is Coming? Literature Review. Life (Basel)

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Patient experiences of endometriosis diagnosis: A mixed methods approach

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Demographic Correlates of Endometriosis Diagnosis Among United States Women Aged 15-50. J Minim Invasive Gynecol.

https://www.jmig.org/article/S1553-4650(24)00200-0/abstract
Presence of endometriosis and chronic overlapping pain conditions negatively impacts the pain experience in women with chronic pelvic-abdominal pain: A cross-sectional survey. Women's Health (Lond).

https://pubmed.ncbi.nlm.nih.gov/38682290/#:~:text=Plain%20language%20summary-,Presence%20of%20endometriosis%20and%20chronic%20overlapping%20pain%20conditions%20negatively%20impacts,COPCs)%20and%20greater%20pain%20symptomatology%2C

Website endobattery.com