Let's TalKBG! Por arte de portada

Let's TalKBG!

De: KBG Foundation
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  • Resumen

  • Welcome to TalKBG! Hosted by The KBG Foundation: the first patient-led organization for KBG Syndrome. Join us and our guests as we discuss topics on being newly diagnosed, common struggles, available services, IEPs and more! Let’s TalKBG! Follow us: KBG Foundation twitter.com/kbgfdn tiktok.com/@kbgfdn pinterest.com/KBGfdn youtube.com/KBGFoundation linkedin.com/company/kbgfdn
    KBG Foundation 2023
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Episodios
  • Let's TalKBG: BEOND Information Evening

    Let's TalKBG: BEOND Information Evening
    May 4 2023

    On March 23, 2023 the KBG Foundation co-hosted the BEOND Study Information evening with the The Cerebra Network for Neurodevelopmental Disorders about the Behavioural and Emotional Outcomes in Neurodevelopmental Disorders (BEOND) study, which includes information about how people with KBG (or their parents) can be part of this study today. This is the recording of that event. You can find more information about this study on the KBG Foundation or The Cerebra Network websites. The video of this event is also available on our YouTube Channel at: https://youtu.be/yZ7Pj32DLV0

    #KBGresearch #KBGsyndrome #everylinkmatters #KBGfdn #BEONDKBG
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    1 h y 3 m
  • Let's TalKBG: Siblings 2023

    Let's TalKBG: Siblings 2023
    Apr 11 2023
    In this episode, KBG Foundation Secretary, Marla Slovin, interviews her son, Grant, about what it's like living with a KBG Sibling.
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    14 m
  • Let's TalKBG: Siblings

    Let's TalKBG: Siblings
    Apr 10 2022

    In this episode, KBG Foundation Secretary, Marla Slovin, interviews Taylor, Ava and Aiden Maughan about what it's like living with a KBG Sibling.

    View this episode on YouTube.
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    28 m
Gestión Economía Ciencias Sociales
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