• 124 | navigating social media, research, and BIPOC representation in the autistic community with Kaligirwa @blackspectrumscholar

  • Jul 24 2024
  • Length: 56 mins
  • Podcast

124 | navigating social media, research, and BIPOC representation in the autistic community with Kaligirwa @blackspectrumscholar  By  cover art

124 | navigating social media, research, and BIPOC representation in the autistic community with Kaligirwa @blackspectrumscholar

  • Summary

  • ABOUT THIS EPISODE (+ scroll for resources) 👇

    Dr. Tay is joined by Kaligirwa @blackspectrumscholar, an AuDHD communication researcher, to discuss the intersection of neurodiversity and research, with a particular emphasis on BIPOC representation within the autism community. Kali shares her personal journey of discovering her autism diagnosis and her efforts to highlight the representation of Black autistic individuals on social media. The conversation covers broad topics such as the history of autism subtypes, the diagnostic challenges faced by BIPOC individuals, and the complexities of clinical diagnosis. Dr. Tay and Kali also delve into the importance of evolving our understanding and terminology around autism to build greater acceptance and support as well as how to use social media as a tool to learn while also knowing its limitations.

    00:00 Introduction and Guest Overview

    01:19 Host's Background and Podcast Purpose

    02:22 Guest's Personal Journey with Autism

    04:49 Challenges and Representation in Autism Research

    07:14 Social Media and Misinformation

    11:31 Navigating Research and Personal Experience

    26:11 Discussion on Autism Subtypes and Diagnosis

    30:53 Understanding PDD-NOS and Stigma

    31:47 Challenges with DSM-5 Levels

    32:58 Regional Differences in Diagnoses

    33:44 Functional Assessment Over Levels

    35:24 Issues with Profound Autism Label

    37:18 Spiky Profiles and Individual Differences

    39:22 BIPOC Representation in Autism Conversations

    39:55 Cultural Barriers to Diagnosis

    42:57 ODD and PDA: Shifting Perspectives

    49:53 Complexities of Diagnosing Anxiety

    51:24 Finding Affirming Practitioners

    53:28 Conclusion and Final Thoughts

    RESOURCES

    ⚡️ connect with Kaligirwa on Instagram and TikTok @blackspectrumscholar and check out her resource library

    ⚡️ want to learn more about Dr. Tay's Whole Family Approach and current services offered? visit drtaylorday.com

    ⚡️ join the Evolve Facebook community to participate in the episode Q+As >> facebook.com/groups/evolveautism

    ⚡️ learn from me and submit your questions [could be featured on a future episode] >>

    Instagram @the.dr.tay

    TikTok @the.dr.tay

    LinkedIn @the-dr-tay

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