• 125 | AAC Part 1 with Lilly's Voice

  • Jul 31 2024
  • Length: 48 mins
  • Podcast

125 | AAC Part 1 with Lilly's Voice

  • Summary

  • ABOUT THIS EPISODE (+ scroll for resources) 👇

    In this episode, Dr. Tay welcomes Stefanie, the president and co-founder of the nonprofit Lilly's Voice. Stefanie shares the inspiring story of her non-speaking autistic daughter, Lilly, whose journey with augmentative and alternative communication (AAC) devices led to the creation of the nonprofit. Lilly’s Voice provides AAC devices to children who have communication differences for families who cannot access these tools through conventional means, such as through school funding, insurance, or other grant mechanisms. Lilly’s Voice also provides education on AAC. The episode covers the importance of AAC, debunks common myths, and emphasizes best practices for parents to support their children's communication. Stefanie also discusses fundraising efforts and the impactful work of Lilly’s Voice.

    00:00 Introduction to Lily's Voice Nonprofit

    02:19 Meet Stephanie: The Inspiration Behind Lily's Voice

    03:32 The Journey to AAC: Challenges and Discoveries

    05:51 Launching Lily's Voice: A Nationwide Nonprofit

    08:34 Understanding Apraxia and the Role of AAC

    12:11 Debunking Myths About AAC

    20:01 Navigating the Process of Acquiring AAC Devices

    25:48 How Lily's Voice Supports Families

    27:18 App Limitations and Popular Choices

    28:02 Guidance for Parents on Choosing Apps

    30:20 Personal Experiences with AAC Apps

    31:28 Best Practices for AAC Devices

    34:55 Learning and Customizing AAC Devices

    40:12 Fundraising and Support for Lily's Voice

    45:25 Encouragement and Final Thoughts

    46:39 Conclusion and Next Steps

    RESOURCES

    ⚡️ learn more about Lilly's Voice, apply for a scholarship, and learn about AAC on their website

    ⚡️ connect with Stefanie through the nonprofit’s Instagram account @lillysvoice and Lilly’s personal page @afriendforlillybug

    ⚡️ want to learn more about Dr. Tay's Whole Family Approach and current services offered? visit drtaylorday.com

    ⚡️ join the Evolve Facebook community to participate in the episode Q+As >> facebook.com/groups/evolveautism

    ⚡️ learn from me and submit your questions [could be featured on a future episode] >>

    Instagram @the.dr.tay

    TikTok @the.dr.tay

    LinkedIn @the-dr-tay

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