• 250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation

  • Apr 22 2024
  • Length: 1 hr and 1 min
  • Podcast

250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation By cover art

250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation

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  • Summary

  • Our friends at Jett Foundation invited us into their community once again for a conversation with 5 panelists on Rare Disease Day.

    We were honored to moderate the discussion with these friends:

    • Race Martinez - Architecture Student, living with Duchenne
    • Kris Napper - Graphic Designer/Illustrator, Business Owner, living with SMA
    • Chris Schlechty - Software Engineer, Jett Foundation Board of Directors, living with Limb-girdle
    • Colin Werth - IT Specialist, International Traveler, living with Duchenne
    • Amanda Becker - Mom to individual living with Duchenne

    The conversation covered topics such as adaptive driving, college transitions, building a career, volunteering to enrich the community, and entrepreneurship. All of this helped highlight the strength and determination within the rare disease community.

    We hope you are as encouraged by this conversation as we are.

    Links and Resources:

    • Jett Foundation
    • Camp Promise
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