What Is KAT?

Ketamine-Assisted Therapy (KAT) refers to the use of ketamine in conjunction with facilitated therapy. KAT is a proven treatment for many mental health disorders, including major depression, PTSD, generalized anxiety, and substance abuse.
Ketamine itself is a dissociative medicine that quiets sensory input and can give people a temporary change in their mental perspective. Its original use was as a surgical anesthetic, for which it received FDA approval in 1970. Since then it’s been used worldwide as an anesthetic, has an outstanding safety record, and is on the World Health Organization’s list of essential medicines.

Enthea was founded by a team of industry experts who share a vision of access to safe and affordable psychedelic healthcare. Together, they are focused on effecting change to offer people the treatment they deserve. Connect to learn more:

Website: https://www.enthea.com/

LinkedIn: https://www.linkedin.com/company/entheahealth/

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For more information about Eric Jorgensen you can find him here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠

Dr. Geraldine Dawson is the William Cleland Distinguished Professor of Psychiatry and Behavioral Sciences at Duke University, where she is a Professor of Pediatrics Psychology & Neuroscience.

Dr. Dawson also is the Founding Director of the Duke Center for Autism and Brain Development, an NIH Autism Center of Excellence, which is an interdisciplinary research program and clinic, aimed to improve the lives of those diagnosed with autism through research, education, clinical services, and policy.

Dr. Dawson received a Ph.D. in Developmental and Child Clinical Psychology from the University of Washington and completed a clinical internship at the UCLA Neuropsychiatric Institute.

Dr. Dawson's work focuses on improving methods for early detection and intervention for autism, understanding brain function in autism, and validation of autism EEG biomarkers. She co-developed the Early Start Denver Model, an empirically validated early autism intervention that is used worldwide. She collaborates with colleagues in the departments of computer science and engineering, pediatrics, and biostatistics to develop novel digital health approaches to autism screening and outcome monitoring.

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For more information about Eric Jorgensen you can find him here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/

You're not alone! When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare diseases. Global Genes is committed to providing information, resources, and connections to all communities affected by rare diseases.

Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills, and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from Next Generation Change-Makers.

Rare Drug Development Symposium (4/29/2024 - 5/1/2024) - https://globalgenes.org/event/rare-disease-drug-development/

Rarely Told Stories - https://globalgenes.org/resources/#/types/story

Rarecast (Podcast) - https://www.levinemediagroup.com/rarecast/

Disorder: Rare Disease Film Festival - https://www.rarediseasefilmfestival.com/

EveryLife Foundation for Rare Diseases - https://everylifefoundation.org/

"The Mighty" (movie) - https://www.imdb.com/title/tt0119670/

Connect to learn more:

Web: https://globalgenes.org/ Phone: (+1) 949-248-RARE (7273)

FB: @GlobalGenes

X: @GlobalGenes

IG: @globalgenes

Episode Transcript: https://docs.google.com/document/d/1tsUg4k-B1GpEfFfk9JCdQtTE9MKTkYCD/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true

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For more information about True North Disability Planning you can find us here:

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Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: @TrueNorthDisabilityPlanning

X (Twitter): @NeedsNavigator

New Disabled South, and their advocacy arm, New Disabled South Rising, are fighting for disability rights and justice in 14 states. Those states are Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, Oklahoma, South Carolina, Tennessee, Texas, Virginia, and West Virginia.

The 10 Principles of Disability Justice

Source: Sins Invalid

Intersectionality: Many disabled people experience other forms of oppression in addition to ableism. The experience of disability is shaped by race, gender, class, and more.

Leadership of the most impacted: The most oppressed lead our movement because they know the most about how systems of oppression work.

Anti-capitalist politic: We don’t conform to capitalist systems that profit from us. Human worth does not rely on how much a person can produce.

Commitment to cross-movement organizing: We work with other movements to shift views on ableism and disability.

Recognizing wholeness: We have value beyond capitalist standards of work. Disabled people are whole people.

Sustainability: We work at a pace that promotes ongoing justice and liberation and values the teachings of our lives and bodies.

Commitment to cross-disability solidarity: We join together to accomplish more. Isolation harms us all.

Interdependence: We help each other achieve liberation for all living systems and the land. Government solutions control us more.

Collective access: We share the responsibility to create community with each other by making access a way of life for all.

Collective liberation: No one is left behind; we need each other to achieve freedom.

Connect to learn more:

Website: New Disabled South Rising

IG: @newdisabledsouthrising

X: @DisSouthRising FB: @NewDisabledSouth Email: info@newdisabledsouth.org

Episode Transcript: https://docs.google.com/document/d/13NvbTprASqRgMqZIL0nluo9kWO9iUA3O/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true

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For more information about True North Disability Planning you can find us here:

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Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: @TrueNorthDisabilityPlanning

X (Twitter): @NeedsNavigator

Jill Escher is the President of the National Council on Severe Autism. She is an autism research philanthropist (Escher Fund for Autism), a real estate investor who provides low-income housing for adults with developmental disabilities, a former lawyer, and a mother of two children with nonverbal autism. As an advocate, she is past president of the board for the Autism Society San Francisco Bay Area and, as a promoter of innovative research has served on the governing council of the Environmental Mutagenesis and Genomics Society. The National Council on Severe Autism is pursuing recognition, policy, and solutions for the surging population of individuals, families, and caregivers affected by severe forms of autism and related disorders.

Autism Confidential Podcast: https://www.autismconfidential.org/

"Chasing the Intact Mind" by Amy Lutz: https://amzn.to/48oZkup

"The Autism Surge: Lies, Conspiracies, and My Own Kids" by Jill Escher: https://www.thefp.com/p/the-autism-surge-lies-conspiracies

Episode Transcript: https://docs.google.com/document/d/1d9XyYakluHBMAUqFbNUCVH4gPgDql5Ij/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true

Connect to learn more:

Website: https://www.ncsautism.org/

FB: @NationalCouncilonSevereAutism

X: @NCSAutismOrg

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For more information about True North Disability Planning you can find us here:

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Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Hospice Navigation: The Compassionate Guide to End-of-Life Care

Death is scary. No one wants to talk about it, and most of us aren't ready when it comes. It feels like the medical profession has made it their mission to delay the end of life, no matter the cost of pain and suffering. You have the right to go out on your terms, by choosing not to see further aggressive treatments. Hospice is an underutilized resource paid for by insurance and available in all 50 states and DC.

When dealing with a serious illness, having access to the right resources and guidance can make all the difference. Hospice Navigation Services is here to offer just that – a compassionate hand to hold and a reliable compass to help navigate this challenging journey.

Who can benefit from a Hospice Navigation Services session? If you're:

• dealing with a serious illness
• a caregiver who needs information about hospice care for someone you love
• needing education about end-of-life care
• a patient or caregiver with questions about your current hospice care
• needing to discuss advance care planning

Here's what Hospice Navigation Services has to offer:

• private, personalized guidance
• expert Hospice Navigators
• easy online booking of your Hospice Navigation Session on The Heart of Hospice website
• a choice of a FREE 30-minute Navigation Session or a 60-minute Navigation Session
• a safe space for questions about end-of-life care
• comprehensive information about how to get the best out of your hospice care

"When Breath Becomes Air": https://amzn.to/48piKzb

Helen's interview on the Happy Healthy Caregiver Podcast (Ep. 99): https://happyhealthycaregiver.com/podcast/helen-bauer/

Connect to learn more:

Website: https://www.theheartofhospice.com/services

FB: @TheHeartofHospice

IG: @TheHeartofHospice

X: @TheHeartHospice

Episode Transcript: https://drive.google.com/file/d/1freQMIOXYV90KiI8u16JmgDqSmfU3eWN/view?usp=sharing

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For more information about True North Disability Planning you can find us here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: @TrueNorthDisabilityPlanning

X (Twitter): @NeedsNavigator

Once Upon A Gene is a Podcast for families living with rare diseases. There are personal stories and resources shared to help connect us with our community. Although I only linked Apple podcast below, Once Upon A Gene is available on any player of your choice and has a YouTube channel.

Effie Parks, originally from beautiful Montana, has become a guiding light in the rare disease community following her son Ford's diagnosis with CTNNB1 syndrome. Settling in Washington, she transformed her family's journey into a crusade for advocacy, support, and empowerment for families navigating similar challenges.

As the host of the "Once Upon a Gene" podcast, Effie has been recognized for several awards including WEGO Health and Podcast Magazine for her impactful storytelling and resource-sharing in the realm of rare genetic disorders.

Effie extends her advocacy through speaking engagements at medical and patient advocacy conferences, sharing her experiences and insights from her work to bridge the gap between all rare disease stakeholders.

Her skill in community engagement, developed through her advocacy, empowers her efforts in building a supportive network and raising awareness.

With a mission to leave the world better than she found it, Effie is dedicated to fostering a more informed and empathetic environment for those impacted by rare diseases.

Her work embodies resilience and compassion, inspiring and uniting the rare disease community. Effie’s journey is not just about sharing stories, it's about driving change and creating a lasting impact in the world of rare genetic conditions.

Two Disabled Dudes: https://twodisableddudes.com/

"Chasing My Cure: A Doctor's Race to Turn Hope Into Action; A Memoir" - Dr. David Fajgenbaum: https://amzn.to/3OpBzLg

"The Ataxian" documentary (Amazon Prime): https://amzn.to/4bg53oS

Connect to Learn More:

Website: https://effieparks.com/

Email: hello@onceuponagene.com

FB: @OnceUponAGene

IG: @onceuponagene.podcast

Apple Podcast: https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347

Episode Transcript: https://docs.google.com/document/d/1Q6gNJc9HGU7HRMdEA8I2R3G-fHJI8qdT/edit?usp=sharing&ouid=117716030289987185197&rtpof=true&sd=true

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For more information about True North Disability Planning you can find us here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: @TrueNorthDisabilityPlanning

X (Twitter): @NeedsNavigator

The Lucas Project provides recognition, respite, and resources to family caregivers of those with special needs.

16.3 million People in the U.S. are caregivers to a child with special needs.

That number is staggering and also a wake-up call. Most of us know of someone who is caring for a child with special needs and if you don’t personally know of someone, you can be assured that they are in your neighborhood; probably hiding behind closed doors isolated and exhausted.

Caregivers often project the perception that “everything is okay,” when in fact, it probably is not okay and they would so appreciate having someone reach out and lend a hand. It is our job as a society to surround these caregivers and support them through the difficult times, because a child is only as healthy as the caregiver, and society is only as healthy as the families within it. At The Lucas Project, we care for the caregivers.

Get Jess Ronne's books from Amazon: https://amzn.to/4b6jQCF

Lisa Whittle's books from Amazon: https://amzn.to/3S8EbhQ

Atomic Habits: https://amzn.to/48OhrdY

Connect to learn more:

Website: https://thelucasproject.org/

Email: info@thelucasproject.org

As an Amazon Associate, I earn commissions from qualifying purchases.

For more information about True North Disability Planning you can find us here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://truenorthdisabilityplanning.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Waypoints - ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: @TrueNorthDisabilityPlanning

X (Twitter): @NeedsNavigator