When a child is diagnosed with a neurological difference, disability, or medical complexity, emotional support is the first thing a parent needs according to UnPuzzed Parents Connect Support Group founder, Whitney Price. "The story you thought you were going to have is now being told in a completely different language" is how Whitney and her husband felt when their son, Connor, was diagnosed with autism spectrum disorder. Finding herself isolated, misunderstood, and unsure about the future, she and her husband were desparate for a support network and for resources for their son and their new life.

Listen in to hear about Whitney's journey and how through adversity she found a passion for helping others access services and for growing a support network for other parents navigating parenthood with a child with high support needs.

UnPuzzled Parents Connect Support Group

Check out our CED Paths for Parents and Family to Family Parent Network Specialist led support group, Circle of Parents.

Sponsored by the West Virginia Department of Health and Human Resources, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and Produced by the West Virginia University Center for Excellence in Disabilities.

Episode Transcript Here

If you have a story that you would like shared on the podcast, please send us an email at courtney.ringstaff@hsc.wvu.edu

Allie tells her experience as a sibling to her brother who has Autism. She shares early years of watching her mom navigate the system for her brother, how she was involved as a child, and how that involvement led to her future career choice and the person she has grown up to be. Also, we will introduce Sibshops and hear from Allie her opinion on the effectiveness of a supportive network for other siblings.

Learn more about Sibshops at the CED.

Sponsored by the West Virginia Department of Health and Human Resources, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and Produced by the West Virginia University Center for Excellence in Disabilities.

Episode Transcript Here

If you have a story that you would like shared on the podcast, please send us an email at courtney.ringstaff@hsc.wvu.edu

Join us in this thoughtful discussion with Cortland Nesley as he describes his personal journey in navigating the feelings and thoughts of being an adult with autism in a world that doesn't understand. Cortland speaks on his "awakening", what led him to seek out community, how his perspectives have shifted throughout his life of support needs, and about how his diagnosis influences who he is as a person. What would he say to parents navigating the early days of their child's diagnosis and what are his plans for creating change in the future as an advocate for himself and others with Autism.

Resources:

Don't Mourn For Us

Autistic Women and Nonbinary Network

NeuroTales

Autism Inc.: The Autism Industrial Complex

Wrong Planet

Sponsored by the West Virginia Department of Health and Human Resources, Office of Maternal, Child, and Family Health/Children with Special Health Care Needs Program and the West Virginia Family 2 Family Health Information Center and Produced by the West Virginia University Center for Excellence in Disabilities.

Episode Transcript Here

If you have a story that you would like shared on the podcast, please send us an email at courtney.ringstaff@hsc.wvu.edu