Albinism Talks

By: Xueli Abbing
  • Summary

  • Raising awareness on albinism.Talks with young people with albinism on their daily lives and struggles. United in making our voice heard.
    © 2023 Albinism Talks
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Episodes
  • Our lives with albinism around the world - Episode 7 - Xueli talks with Luna (NL)
    May 9 2023

    Luna is 18 years old, she was born with albinism and lives in the Netherlands. She is a fanatic goalball player. This is a paralympic sport and a perfect sport for people who are blind or visually impaired. Luna is also a musician, she plays the piano in a band. She attended regular education and found her way to deal with being visually impaired although she did experience problems at school and with finding an internship. Listen to her story and how she had to learn to deal with setbacks.
    #albinism #bullying #visuallyimpaired #nystagmus #goalball #young #paralympics #sport

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    21 mins
  • Our lives with albinism around the world - Episode 6 - Xueli talks with Nan (UK)
    Dec 27 2022

    Xueli speaks with Nan (they/them), 24 years old and originally from South Africa but lives in the UK since Nan was 7 years old. They are born with albinism and works as a model, loves yoga, visual arts. Their albinism affects daily live, Nan uses a cane occasionally and enjoys free public transport in the UK. Nan has a sibling with albinism which made it easier to accept this condition and Nan actually enjoys being different in various ways.

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    18 mins
  • Racism Talks - Episode 1 - Xueli talks with Nikwi (NL)
    Dec 22 2022

    Nikwi and Xueli talk about racism and more in particular about Asian hate. Nikwi gives an insight into her experiences with being discriminated against. It is important to share her story because it shows how painful racism is. 
    You can also see the video (in English) via the YouTube channel of the Open Eyes Foundation : https://www.youtube.com/watch?v=IIRJv-KD2Ek

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    15 mins

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Inspirational!

We need more stories about Albinism and stop the stigma once and for all. This is an inspiring Podcast.

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