• Episode 35: Rachel Vanni - GA2

  • Apr 24 2024
  • Length: 32 mins
  • Podcast

Episode 35: Rachel Vanni - GA2 By cover art

Episode 35: Rachel Vanni - GA2

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  • Summary

  • Rachel's daughter, Charlie, was born with the rare condition GA2 (Glutaric Aciduria type 2). It was identified very early on thanks to newborn screening, but unfortunately it has a very poor prognosis when diagnosed so early. We talk about how GA2 affected Charlie, the importance of communities for parents dealing with such conditions, and the benefits of grief counseling. Rachel also shares the beautiful life lesson Charlie has taught her.

    The song Rachel selected is I reach for the sky by Social Distortion.
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