FSHD Straight Talk with Tim Hollenback By cover art

FSHD Straight Talk with Tim Hollenback

By: FSHD Straight Talk
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  • Summary

  • This talk show features people, advocacy, research, and more from the FSH muscular dystrophy community. Sponsored by the FSHD Society and made possible by our fabulous host and member of the FSHD community, Tim Hollenback.
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Episodes
  • 126: FSHD Straight Talk: Behind the Mic with Chris Carrino

    126: FSHD Straight Talk: Behind the Mic with Chris Carrino
    Jun 25 2024
    In this episode of FSHD Straight Talk, Tim interviews Chris Carrino, the play-by-play announcer for the Brooklyn Nets and founder of the Chris Carrino Foundation for FSHD! Chris talks about his career starting as a part-time producer to becoming a prominent voice in sports broadcasting. He also discusses life with FSHD and advocacy work, including a recent trip to Capitol Hill. This is a slam dunk interview you don’t want to miss!

    If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.

    On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.

    You can find new episodes on YouTube and Facebook. You can also listen to the episode on your favorite podcast app. Subscribe on YouTube or your podcast app to make sure you never miss an episode!
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    59 mins
  • 125: World FSHD Day Special

    125: World FSHD Day Special
    Jun 20 2024
    It’s World FSHD Day! To celebrate today, Tim Hollenback, FSHD Straight Talk host, talks with: Ricardo Gerpe from FSHD Spain; Chelsea Moeller from the FSHD Society; Rick & Terry Colella from Friends of FSH Research; Jennifer Cherniwchan or the Alberta Chapter; Chris Carrino, announcer for the Brooklyn Nets and founder of the Chris Carrino Foundation for FSHD; and volunteer Priscilla Sharun.

    For more information about World FSHD, please visit the FSHD Society website.

    If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.

    Email: FSHDRadio@FSHDSociety.Org

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    2 hrs and 9 mins
  • 124: Using Storytelling and Activism to Build Awareness of FSHD in China with Wang Wen

    124: Using Storytelling and Activism to Build Awareness of FSHD in China with Wang Wen
    Jun 11 2024
    In this episode of FSHD Straight Talk, Tim speaks with Wang Wen, a passionate advocate and prolific storyteller living in China. Following his long road to diagnosis, Wang has sprung into action leading support groups, creating educational documentaries, and using his social media platforms to raise awareness about FSHD. In 2025, Wang even hopes to write a book collecting stories from Chinese FSHers! Tune in to hear how Wang uses storytelling and activism to build awareness and push back against isolation. Thank you to Wang for reaching out to be on the podcast! If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media. On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and Facebook. You can also listen to the episode on your favorite podcast app. Subscribe on YouTube or your podcast app to make sure you never miss an episode!
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    37 mins
Hygiene & Healthy Living Social Sciences Science
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