What is disability data justice? How are people with disabilities counted? Why do we need accurate data about people with disabilities? Our guests for this episode are Bonnie Swenor, PhD, the founder and Director of the Johns Hopkins Disability Health Research Center, and Kate Caldwell, PhD, Director of Research and Policy at the Center for Racial and Disability Justice in the Northwestern Pritzker School of Law. Both Dr. Swenor and Dr. Caldwell have been involved in leading efforts to democratize the collection of data on people with disabilities.

Transcripts for all episodes are available here.

This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research. (Grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we talk about cutting-edge research at Shirley Ryan AbilityLab that could help people with spinal cord injury regain some motor function.

Our guest is Monica Perez, PT, PhD, Scientific Chair, Arms + Hands Lab at Shirley Ryan AbilityLab. Her innovative protocol uses noninvasive neurostimulation combined with physical therapy to strengthen connections between neurons and has led to lasting improvements in grasping and walking in some participants with spinal cord injury.

Listen on ⁠Spotify⁠, ⁠Apple Podcasts⁠ or ⁠YouTube⁠.

Transcripts are available on the podcast ⁠website⁠.

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we explore how inpatient rehabilitation length of stay can affect outcomes in people with spinal cord injury.

Our guests are:

• Anne Deutsch, PhD, RN, a clinical research scientist in the Center for Rehabilitation Outcomes Research at Shirley Ryan AbilityLab. She is a principal investigator on a new grant that looks at how inpatient rehabilitation length of stay and rehabilitation intensity affect outcomes in people with spinal cord injury in different countries.
• Dr. Jane Duff, a consultant clinical psychologist and head of the National Spinal Injury Center psychology team at Stoke Mandeville Hospital, Buckinghamshire Healthcare NHS Trust in England. Dr. Duff is also an investigator on the grant.

Listen on ⁠Spotify⁠, ⁠Apple Podcasts⁠ or ⁠YouTube⁠.

Transcripts are available on the podcast website.

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we will be talking about accessibility and public transportation around Chicago.

Our guests are Jacqueline Kish, PhD, OTR/L, a postdoctoral fellow in CROR's Rehabilitation Research and Training Center on Home and Community-Based Services at Shirley Ryan AbilityLab, and Kira O’Bradovich, a disability and community advocate who serves as Advocacy Committee Chair for the Chicago Chapter of the National Federation of the Blind of Illinois and a Data Dissemination Specialist for the U.S. Census Bureau. Kira’s current advocacy work focuses on improving the accessibility of public transit here in Chicago.

Find the transcript here.

This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research. (Grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we'll learn about some common mental health challenges that people face after spinal cord injury, and about a Center for Rehabilitation Outcomes Research project funded by the Craig H. Neilsen Foundation that seeks to better understand and support the mental health of people with spinal cord injury.

Our guests are Kaylee Dragna, a clinical psychologist at Shirley Ryan AbilityLab who works with patients who have a spinal cord injury, and with Jenny Burns, project manager on the Neilsen grant.

Listen on ⁠Spotify⁠, ⁠Apple Podcasts⁠ or ⁠YouTube⁠.

Transcript available here.

This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research. (Grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we speak with HCBS recipient Kenny and the CEO of his provider agency, Heather LaTorra at Marrakech, about how they partnered to make the necessary changes to Kenny’s services to meet his goals and preferences.

Listen on Spotify, Apple Podcasts or YouTube.

This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research. (Grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).  

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, our guests are Bridgette Schram, PhD, project manager on the Rehabilitation Research and Training Center on Home and Community-Based Services at Shirley Ryan AbilityLab, and Sara Karon, PhD, co-principal investigator on the project and a senior health policy analyst at RTI International. Sara, Bridgette, and their team are working on developing a set of person-centered HCBS outcome measures. Their work is funded by the National Institute on Disability, Independent Living and Rehabilitation Research.

A ⁠transcript ⁠of this episode is available.

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we talk with David Chen, MD, the George M. Eisenberg, Chair of spinal cord injury rehabilitation at Shirley Ryan AbilityLab, about the Midwest Regional Spinal Cord Injury Care System, the National Spinal Cord Injury Model Systems Database and cutting-edge research into biomarkers that may predict functional recovery after spinal cord injury. A ⁠transcript ⁠of this episode is available.