Robert Composano refuses to let Parkinson's disease define his life. Diagnosed at age 56, this former sales professional transformed what could have been devastating news into a remarkable journey of resilience and joy.

The moment of diagnosis hit like "a shot in the stomach." Robert found himself driving aimlessly, struggling to process what this would mean for his active lifestyle. But rather than surrendering to despair, he methodically evaluated what he could keep and what he might need to give up. While motorcycle riding had to go due to decreased reaction times, Robert was determined to continue playing competitive racquetball—a sport he'd enjoyed for nearly 30 years.

Today, Robert not only plays racquetball but dominates the court, beating competitors who are stunned to learn about his diagnosis. "These guys are in their 60s and late 50s, shaking my hand and saying 'watching you play, it's amazing that you're here all the time and kicking butt,'" Robert shares with quiet pride. His presence challenges common perceptions about Parkinson's, as people frequently ask him, "Are you sure you have Parkinson's? I can't see it."

His approach to living with Parkinson's combines the goal-setting mindset that served him well in sales with a keen awareness of his body's signals. "Read your body and let your body tell you what you're doing right or wrong," he advises. "If I'm too tired, I stop, I'm going to take a nap." This balanced perspective, along with finding the right doctor and joining support groups, forms the foundation of his success.

Robert's story isn't just about maintaining an extraordinary life despite extraordinary circumstances—it's about becoming stronger through the challenge. As he puts it, "You can take the low road or the high road. I'm going to find the best person I can be." His parting advice? "Just keep smiling out there. When you're smiling, people notice good things about you."

Ready to transform your own perspective on Parkinson's or any life challenge? Listen to Robert's full story and discover how adversity might reveal strengths you never knew you had.

• Co-hosts: Judy Yaras & Travis Robinson
• Editor & Audio Engineer: (EP1-100) Spencer Yaras
• Audio Engineering Intern: Ana MacAller
• Social Media Intern: Ana MacAller

www.INDYpodcast.net

Simon's voice carries the weight of a decade battling Parkinson's disease as he shares his raw, unfiltered experience with dystonia – one of the condition's most debilitating manifestations. Despite undergoing deep brain stimulation surgery twice, Simon continues to struggle with both the physical torment of involuntary muscle contractions and the emotional burden of depression and apathy that often accompany Parkinson's.

The conversation takes a profound turn when Simon contrasts his journey with co-host Travis Robinson's more resilient approach. "Travis is the blitzkrieg of Parkinson's patients," Simon remarks with admiration, describing Travis's "cake or death" philosophy of pushing through difficulties. This striking juxtaposition highlights a crucial truth rarely discussed in chronic illness narratives: there's no single "right" way to face Parkinson's disease.

What makes this episode particularly valuable is its unflinching examination of the darker aspects of living with Parkinson's. Simon courageously admits, "I'm not winning the battle," giving voice to countless others who feel similarly overwhelmed but lack the platform to express it. The hosts thoughtfully explore how the medical community, despite their expertise, still grapples with Parkinson's complexity. As Simon notes, "Even the movement disorder specialists don't know that much... their guesses are just far more educated than ours."

The conversation ultimately builds toward a powerful message of community and connection. Whether through support groups, writing (Simon will be contributing a column called "Simon Says" to the PCLA website), or honest conversations like this one, breaking isolation proves essential. As Judy beautifully summarizes: "We're doing it collectively. If we stand together, we can make changes."

Ready to hear more unfiltered conversations about living with Parkinson's? Subscribe to our podcast and join our community at PCLA.org where you'll find resources, support groups, and others walking similar paths.

• Co-hosts: Judy Yaras & Travis Robinson
• Editor & Audio Engineer: (EP1-100) Spencer Yaras
• Audio Engineering Intern: Ana MacAller
• Social Media Intern: Ana MacAller

www.INDYpodcast.net

Travis and Judy discuss navigating life’s challenges, focusing on resilience and preparedness in the wake of a devastating fire. They share personal stories of loss, emotional coping strategies, and the importance of community support.
• Importance of resilience in facing trauma
• Preparations for unexpected emergencies
• Emotional toll of loss and community impact
• New partnership with Parkinson's Community Los Angeles
• Suggestions for emergency planning and triaging possessions
• Key takeaways for listeners in managing crises

• Co-hosts: Judy Yaras & Travis Robinson
• Editor & Audio Engineer: (EP1-100) Spencer Yaras
• Audio Engineering Intern: Ana MacAller
• Social Media Intern: Ana MacAller

www.INDYpodcast.net

What would you save if a fire threatened to consume everything you hold dear? Join me, Travis Robinson, alongside my co-host Judy Yarris, as we recount the harrowing moments when flames forced Sarah and me from our home in Altadena. From the heart-wrenching choices on what to rescue—my priceless photography gear and Sarah's cherished handmade furniture—to navigating the chaos of evacuation, our story is one of loss, resilience, and gratitude. With Judy's steadfast support, we also tackle the practical challenges that arise, like securing medication and documenting losses for insurance, and find solace in the immense outpouring of support from our community.

As we navigate this challenging chapter of our lives, we’re overwhelmed by the love and assistance we’ve received from friends both near and far. In this episode, we shine a light on the incredible solidarity that has uplifted us, driven by the very connections we have nurtured through our work with individuals living with Parkinson's. A GoFundMe page stands as a testament to this collective kindness, rallying contributions to help us rebuild. Judy and I share our profound gratitude and reflect on how the spirit of giving and solidarity can help us all rise from the ashes, stronger and more united than ever.

LINK To GFM page: https://gofund.me/e3c2cee4

• Co-hosts: Judy Yaras & Travis Robinson
• Editor & Audio Engineer: (EP1-100) Spencer Yaras
• Audio Engineering Intern: Ana MacAller
• Social Media Intern: Ana MacAller

www.INDYpodcast.net

What if maintaining a positive mindset could change your life, even in the face of Parkinson's? Join Judy and Travis as they share stories of gratitude and resilience from 2024, while eagerly anticipating the new year. Experience the power of positivity and creativity as Travis embraces watercolor painting and authors two photography books, showcasing how art and mindfulness can enrich lives regardless of challenges. Tune in to hear how moments of sadness are natural, but focusing on joy and what can be controlled is transformative.

As we look forward to 2025, this episode celebrates personal achievements and highlights the importance of communication and planning, especially when managing specific needs. Travis offers practical tips for preparing for outings, ensuring comfort and enjoyment amid potential challenges. Judy and Travis emphasize the value of having things to look forward to, such as art shows and social visits, maintaining hope and motivation. Wrap up with us as we celebrate accomplishments, and share our excitement for future episodes in the new year, wishing everyone a Happy New Year filled with possibilities.

• Co-hosts: Judy Yaras & Travis Robinson
• Editor & Audio Engineer: (EP1-100) Spencer Yaras
• Audio Engineering Intern: Ana MacAller
• Social Media Intern: Ana MacAller

www.INDYpodcast.net

Discover the groundbreaking world of Magnes, the Swiss innovators reshaping Parkinson's care with their state-of-the-art shoe technology. Join co-founder/CEO Olgac Ergeneman and Business Development Manager Chinouk Van Nijen as they unveil how their sensor-equipped sneaker changes the walking game for Parkinson's patients. Hear about the journey from the clinical setting to your living room, where these shoes act as personal gait coaches, providing real-time feedback to combat symptoms such as freezing and shuffling. The duo shares the shoe's seamless blend of technology and style, ensuring users feel both empowered and discreet in their everyday lives.

Peek behind the curtain at the smart cueing system that uniquely adapts to each wearer's walking pattern, distinct from traditional methods. Uncover how continuous feedback from patients and clinicians drives innovation at Magnes, resulting in enhanced features and new activity modes. With exciting plans on the horizon, including a line designed for children, Magnes is committed to evolving and meeting the diverse needs of its users. Subscribe to stay informed about upcoming trials and events, and see how these ingenious shoes are stepping up to redefine mobility for Parkinson's patients.


More info can be found at magnes.ch

Sign up for their newsletter here: https://www.magnes.ch/contact/

or by emailing info@magnes.ch

• Co-hosts: Judy Yaras & Travis Robinson
• Editor & Audio Engineer: (EP1-100) Spencer Yaras
• Audio Engineering Intern: Ana MacAller
• Social Media Intern: Ana MacAller

www.INDYpodcast.net

What if the silent heroes of Parkinson's care aren't the patients themselves but the dedicated partners standing beside them? Join us as we uncover the vital, yet often overshadowed, role of care partners in navigating the Parkinson's journey. Hosts Travis Robinson and Judy Yarris, bring our personal experiences to light, highlighting the emotional and physical hurdles faced by those supporting someone with Parkinson's. Our conversation delves into the reality of denial in newly diagnosed individuals and how this can ripple through their support networks, emphasizing the imperative need for community support and the unsung resources that can make all the difference.

We also explore the evolving landscape of independence, where modern transportation options like Uber and Waymo are reshaping the dynamics of care. The episode sheds light on the importance of self-care and open communication for care partners, especially in a world still reeling from the isolation of the COVID era. Through personal stories, we touch on the unique challenges faced by families dealing with young-onset Parkinson's, offering a message of strength and unity. By sharing both struggles and triumphs, we aim to foster a sense of community and inspire listeners to connect, support, and empower each other through the Parkinson's journey.

• Co-hosts: Judy Yaras & Travis Robinson
• Editor & Audio Engineer: (EP1-100) Spencer Yaras
• Audio Engineering Intern: Ana MacAller
• Social Media Intern: Ana MacAller

www.INDYpodcast.net

Ever experienced a day where everything seems to go wrong? Travis shares his story of a challenging day that began with a fall and spiraled into a series of frustrating mishaps, including an unexpected demand from his doctor. Judy, drawing from her own experiences as a care partner, offers valuable advice on how to mentally reset and manage the compounding frustrations that come with living with Parkinson's. Together, they emphasize the importance of mindset in overcoming the daily hurdles and finding resilience amidst adversity.

We also dive into practical tips for staying cool and hydrated during scorching hot weather, from the benefits of sparkling mineral water to low-sugar electrolyte options. Our conversation extends to the joys and challenges of gardening in extreme heat and the innovative strategies for managing shade and humidity. Plus, we invite you to share your own experiences with focused ultrasound by reaching out to the show.

• Co-hosts: Judy Yaras & Travis Robinson
• Editor & Audio Engineer: (EP1-100) Spencer Yaras
• Audio Engineering Intern: Ana MacAller
• Social Media Intern: Ana MacAller

www.INDYpodcast.net