It Happened To Me: A Rare Disease and Medical Challenges Podcast

De: Cathy Gildenhorn Beth Glassman and Kira Dineen (DNA Today)
  • Resumen

  • The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn and Beth Glassman interview guests who share stories and research to help you succeed in the face of difficult health obstacles. It happened to me…I’m not alone and neither are you. We encourage you to learn more at ItHappenedToMePod.com. Please use the contact form on our website to submit your guest suggestions, comments, questions, ideas, and feedback for the show, you can also email us directly at ItHappenedToMePod@gmail.com. It Happened To Me is created and hosted by Cathy Gildenhorn and Beth Glassman. Steve Holsonback is our media engineer and co-producer. DNA Today’s Kira Dineen is our ...
    All rights reserved to the team: Cathy Gildenhorn, Beth Glassman, & Kira Dineen (DNA Today)
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Episodios
  • #44 How a Kidney Transplant Saved Zach Ship’s Life at 19
    Sep 16 2024

    In this episode of It Happened To Me, hosts Cathy and Beth sit down with Zachary Ship, a remarkable individual who has faced incredible health challenges. This is part one of the conversation where Zach shares the powerful story of how his mother, Shari, donated a kidney to save his life. Shari was a guest on our last episode of It Happened To Me (#43). At just 19 years old, Zach was diagnosed with end-stage renal failure due to an autoimmune disease. He takes us through the emotional rollercoaster of receiving a life-saving transplant from his mother while navigating the challenges of young adulthood.

    From the first signs of illness as a teenager to his recovery after the transplant, Zach’s journey is one of resilience, family strength, and determination. Tune in to hear how Zach’s life was forever changed and how he adapted after receiving the gift of life from his mom.

    Guest Bio:

    Zach Ship is the Director within the Finance organization at Harry’s Inc. A graduate of NYU’s Stern School of Business, Zach was diagnosed with end-stage renal failure during his freshman year of college, resulting in a kidney transplant from his mother. Zach’s incredible journey to recovery is a testament to his strength and his family’s support.

    Key Discussion Points:
    • The First Signs of Trouble: Zach shares how a routine urine test for sports led to the discovery of a serious autoimmune disease that attacked his kidneys, forever altering the course of his life.
    • A Family United: As Zach’s health declined, his mother Shari stepped forward as his kidney donor. Zach describes the process of preparing for the transplant and the emotions involved in receiving such a profound gift from his mom.
    • Facing Kidney Failure at 19: At an age when most people are focused on college and social life, Zach was told he was in end-stage renal failure. He details the physical toll of renal failure, the symptoms, and the medical interventions required.
    • The Transplant Experience: Zach explains the transplant surgery itself, what it felt like to receive his mother’s kidney, and how the medical team managed the process to ensure a successful outcome.
    • Life After the Transplant: Zach returned to school just a month and a half after the surgery, a remarkable recovery. He reflects on the precautions he had to take post-transplant and how he adapted to life after the operation, learning to navigate new health challenges while trying to live a normal college life.

    Please help support Zach by making a donation for his team’s travel funds so they can compete in 2024 World Baseball Softball Confederation’s (WBSC) Blind Baseball International Cup taking place just outside of London. The United States Blind Baseball Association (USBBA) is a charitable, non-profit corporation. USBBA is dedicated to the development, management, regulation and promotion of their mixed gender adaptive sport of Blind Baseball.

    If you are able to assist us in our 2024 fundraising efforts, please make checks payable to U.S. Blind Baseball Association, and mail to the address below or use these QR codes to send money through Venmo or PayPal.

    U.S. Blind Baseball Association P.O. Box 312 Lindenhurst, NY 11757

    Another resource we want to highlight is organdonor.gov, where you can learn more about organ donation.

    Check out the documentary that Zach will be featured in here. If you are still feeling generous you can also consider donating to the documentary’s funding here!

    Stay tuned for the next new episode of “It Happened To Me” where we continue our conversation with Zach to learn about his vision loss and adapting to this disability as an adult! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.

    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.

    See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.

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    30 m
  • #43 Shari Ship on Donating Her Kidney to Son
    Sep 2 2024

    Shari Ship's story is a remarkable tale of a mother's unwavering love and sacrifice for her son. As a widow and caregiver to her 97-year-old mother, Shari selflessly donated a kidney to her son Zachary, who was diagnosed with a rare autoimmune disease called membranous nephropathy that attacked his kidneys. Despite the challenges of caring for her ailing husband who passed away from lung cancer, Shari remained steadfast in her commitment to her family.

    When Zachary's condition worsened, leading to end-stage renal failure, Shari made the courageous decision to become a living kidney donor for her son. With the support of her 85-year-old mother and the compassionate medical team, Shari underwent a rigorous testing process, including a psychiatric evaluation, to ensure her eligibility as a donor.

    The transplant surgery was a success, despite a last-minute scare, and Zachary's life was saved. Shari endured the pain and recovery process with determination, fueled by the immense love for her son. Zachary's immediate improvement, from "drowning in his own fluid" to urinating normally, was a testament to the transformative power of this selfless act.

    Shari’s inspiring story highlights the strength of a mother's love, the resilience of the human spirit, and the profound impact of organ donation in saving lives. Her unwavering support and her son's remarkable recovery serve as a beacon of hope for families facing similar challenges.

    Key Lessons

    • Shari Ship's selfless act of donating a kidney to her son Zachary, who later became visually impaired.

    • Shari's courageous decision to donate her own kidney when Zachary's condition worsened, demonstrating her unwavering commitment to her son's well-being.

    • The family's resilience and the power of a parent's love, as evidenced by Zachary being described as "indomitable" despite the challenges they faced.

    Please help support Shari’s son Zachary by making a donation for his team’s travel funds so they can compete in 2024 World Baseball Softball Confederation’s (WBSC) Blind Baseball International Cup taking place just outside of London. The United States Blind Baseball Association (USBBA) is a charitable, non-profit corporation. USBBA is dedicated to the development, management, regulation and promotion of our mixed gender adaptive sport of Blind Baseball.

    If you are able to assist us in our 2024 fundraising efforts, please make checks payable to U.S. Blind Baseball Association, and mail to the address below or use these QR codes on our website (ithappenedtomepod.com) to send money through Venmo or PayPal.

    U.S. Blind Baseball Association P.O. Box 312 Lindenhurst, NY 11757

    Another resource we want to highlight is organdonor.gov, where you can learn more about organ donation.

    In the next new episode of “It Happened To Me” we interview Shari’s son Zachary about his perspective on the experience about his health issues. In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.

    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.

    See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.

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    47 m
  • #42 Huntington’s Disease with Tanita Allen
    Aug 19 2024

    In this episode of It Happened To Me, hosts Cathy and Beth are joined by Tanita Allen, a resilient advocate for Huntington’s Disease (HD) and the author of the touching memoir, We Exist. Tanita shares her personal journey with HD, from her initial symptoms and challenging diagnostic process to her current role as a self-advocate and member of The HD Community Advisory Board.

    Tanita discusses the complexities of living with HD, a condition often described as a combination of Parkinson’s, ALS, and Alzheimer’s. She offers insight into the importance of genetic testing, the impact of environmental factors on her early onset, and the emotional journey of being the first in her family to be diagnosed with this rare genetic condition. Additionally, Tanita shares her five key strategies for maintaining a hopeful disposition in the face of medical challenges.

    Tanita Allen is a dedicated advocate for Huntington’s Disease and the author of *We Exist*, a memoir documenting her journey with HD. She holds a Bachelor of Arts in Public Affairs and is a certified paralegal. Tanita's advocacy work is enriched by her extensive experience in customer service and sales. She is a member of The HD Community Advisory Board and has been featured in Forbes, where she discussed the significance of self-advocacy and collaboration.

    Key Discussion Points:

    • Understanding Huntington’s Disease (HD): Tanita describes HD as a trifecta of Parkinson’s, ALS, and Alzheimer’s. She shares her experiences with the hallmark symptoms and discusses the prevalence of HD in the population.
    • Diagnostic Journey: Tanita opens up about the challenges she faced in receiving a diagnosis, particularly the added complexity of being a Black woman. She details her experience with genetic testing, including the significance of CAG repeats in the HTT gene and how her results correlated with her early onset of symptoms.
    • Emotional Impact and Family Dynamics: Tanita reflects on how she processed her diagnosis and the emotional toll it took, especially as the first person in her family to be diagnosed with HD. She also shares the story of another family member who was later diagnosed.
    • Five Strategies for Hope: Tanita outlines the five key strategies she discusses in her book for maintaining a hopeful outlook:
      • Embracing Change and Adapting
      • Learning from Difficult Moments
      • The Power of Community
      • Celebrating Milestones
      • Making Self-Care a Priority
    • Advice for Others: Tanita offers parting advice for those facing medical challenges, emphasizing the importance of self-care, community support, and staying hopeful.

    Please check out Tanita’s book, “We Exist”. You can order a copy directly from her website, tanitaallen.com. Also check out her Forbes article, “Why Self-Advocacy Can Help You Become An Invaluable Collaborator”.

    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.

    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.

    See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com.

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    37 m

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