Let's TalKBG!

By: KBG Foundation
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  • Summary

  • Welcome to TalKBG! Hosted by The KBG Foundation: the first patient-led organization for KBG Syndrome. Join us and our guests as we discuss topics on being newly diagnosed, common struggles, available services, IEPs and more! Let’s TalKBG! Follow us: KBG Foundation twitter.com/kbgfdn tiktok.com/@kbgfdn pinterest.com/KBGfdn youtube.com/KBGFoundation linkedin.com/company/kbgfdn
    KBG Foundation 2023
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Episodes
  • Let's TalKBG: KBG Natural History Study with Matrix CEO Jason Colquitt

    Let's TalKBG: KBG Natural History Study with Matrix CEO Jason Colquitt
    Jul 7 2024

    In this episode learn more about the KBG Foundation Natural History Study with Across Healthcare CEO, Jason Colquitt, and KBG Foundation Chairman of the Board, Glenn Maughan. What makes the Matrix platform special and what features does it have in addition to The Study? #KBGRegistry #KBGNHS #KBGsyndrome #everylinkmatters #KBGfdn #AcrossHealthcare. To enroll in the study visit KBGFoundation.org.
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    1 hr and 2 mins
  • Let's TalKBG: BEOND Information Evening

    Let's TalKBG: BEOND Information Evening
    May 4 2023

    On March 23, 2023 the KBG Foundation co-hosted the BEOND Study Information evening with the The Cerebra Network for Neurodevelopmental Disorders about the Behavioural and Emotional Outcomes in Neurodevelopmental Disorders (BEOND) study, which includes information about how people with KBG (or their parents) can be part of this study today. This is the recording of that event. You can find more information about this study on the KBG Foundation or The Cerebra Network websites. The video of this event is also available on our YouTube Channel at: https://youtu.be/yZ7Pj32DLV0

    #KBGresearch #KBGsyndrome #everylinkmatters #KBGfdn #BEONDKBG
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    1 hr and 3 mins
  • Let's TalKBG: Siblings 2023

    Let's TalKBG: Siblings 2023
    Apr 11 2023
    In this episode, KBG Foundation Secretary, Marla Slovin, interviews her son, Grant, about what it's like living with a KBG Sibling.
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    14 mins
Management Economics Social Sciences
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