• Life with an Invisible Disorder

  • Jun 14 2024
  • Length: 28 mins
  • Podcast

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Life with an Invisible Disorder

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  • Summary

  • Patrick sits down with Thomas Bartlett, Myasthenia Gravis patient and advocate, about the unique struggles of living with an invisible chronic disorder. Also, we all know if you want real answers — ask a nurse. We’ve got Andrea Buxton, Nurse Practitioner at the Hemophilia Outreach Center in Green Bay, WI, with her account of the first commercial dosing of gene therapy for hemophiia B.

    Show Notes:

    Subscribe:

    The BloodStream Podcast

    Presenting Sponsor:

    Takeda, visit bleedingdisorders.com to learn more.

    It’s a Whole New World Gene Therapy Segment brought to you by CSL Behring, which now has a first-of-its-kind hemophilia B treatment. Visit BeyondHemB.com or download B SUPPORT wherever you get your apps for more information.

    On the Shoulders of Giants Film

    Watch the movie and host a screening: ontheshouldersfilm.com

    Beyond our Blood

    Watch the short films and download the facilitation guide: beyondourblood.com

    Connect with BloodStream Media:

    BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

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Psychology Hygiene & Healthy Living
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