• Living with Long covid

  • By: Julie
  • Podcast
Living with Long covid  By  cover art

Living with Long covid

By: Julie
  • Summary

  • This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.
    © 2024 Living with Long covid
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Episodes
  • Guest; A. K. Davidson - Poetry for life and other chronic conditions
    Jun 2 2024

    Send us a Text Message.

    On this episode of the podcast I chat to freelance writer and editor A. K. Davidson.
    We talk about her book; Poetry for life and other chronic conditions, which is due out on the 6th June, the link to pre order the book can be found below.
    Anna talks about her journey and experiences with acute and Long Covid, and how she now feels recovered, in a slower more thoughtful pace of life.
    We discuss how Anna put pen to paper to create these short and thoughtful poems, she admits this was not something she enjoyed while studying at university, however has found a source of therapy in being able to express her feelings while living with a chronic illness.
    As always thank you for listening to the podcast #onedayatatime

    Links from todays episode:
    https://www.instagram.com/@mondayispoetry
    Anna's website:
    https://www.therightword.co.uk
    Links to pre order the book; Poetry for life and other chronic conditions

    Waterstones:
    https://www.waterstones.com/book/poetry-for-life-and-other-chronic-conditions/a-k-davidson/9781899587827

    Amazon:
    https://www.amazon.co.uk/Poetry-Life-Other-Chronic-Conditions/dp/1899587829/ref=sr_1_1?crid=2IL7OGIOVK6ZZ&dib=eyJ2IjoiMSJ9.J2C0eZVgv0a0rwtR60gCd3E88P4TiAp2z9zaECD41O9ljGdleXjp-0RXYmp-qdfE_hrVtoaJa3P5oBTnkO0UgE6yO81-ZbryVnrZofzOvK0TV6qc7MA9vpFHUTdGsHqLmeIiG4dbJlqQre9xOh64RBl-x8y0z8uLZzcToGydhU2KDWEmf_qq0zoB2uyUOuV6WsURQ9rekxhSTHCNt3lC2Q.1HoKBphcxfKGLJyLfQ2rqRjNUeHssui9bNJbCyvvIV4&dib_tag=se&keywords=poetry+for+life+and+other+chronic+conditions&qid=1713546303&sprefix=%2Caps%2C93&sr=8-1

    My Links:
    Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: longcovidclinic@howellmedicalgroup.co.uk for more information

    Linktree:
    https://linktr.ee/joulest
    X
    https://twitter.com/julieTa58407536
    Facebook page:
    https://www.facebook.com/livingwithlongcovid/
    Instagram:
    https://www.instagram.com/julie_livingwithlongcovid
    Planners:
    https://amzn.eu/d/9v9MP4v
    Return to work planner:
    https://amzn.eu/d/1QVK8zn
    Well being planner:
    https://amzn.eu/d/a1Safxc

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    38 mins
  • Guests; Jess and Ally talk about the Turnto app for Cerebral Palsy and the upcoming app for - Long Covid and MECFS
    May 19 2024

    Send us a Text Message.

    In this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid.
    Jess shares her inspiration for the Turnto app and her personal journey with her son who has a rare form of cerebral palsy, and the challenges navigating health care services and trying to find treatment and support (and what a journey!!). Jess explains how this has led to the development of the Turnto app. We discuss the reason for the app, the content and the resources within the app.
    I also talk with Ally, who lives with Long Covid, she explains her journey and how she connected with Jess, and the ongoing development and the upcoming release of the Turnto app for Long Covid, and also the app for ME/CFS.
    This is an innovative app, and more is explained on the podcast, you can join the waiting list to be one of the first to access this FREE app, links are below.
    *Disclaimer, I have no affiliation with the app*
    As always, thank you for listening to the podcast #onedayatatime

    Links from todays episode:
    Waiting list for Turnto - ME/CFS
    https://waitlist.turnto.ai/me-cfs
    Waiting list for Turnto - Long Covid app:
    https://waitlist.turnto.ai/longcovid
    Instagram
    https://www.instagram.com/turnto_longcovid/
    Ally
    https://www.instagram.com/livinglongcovid
    Charlotte
    https://www.instagram.com/living.with.me.cfs
    Holly
    https://www.instagram.com/chronicfatiguecompanion

    My Links:
    Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: longcovidclinic@howellmedicalgroup.co.uk for more information

    Linktree:
    https://linktr.ee/joulest
    X
    https://twitter.com/julieTa58407536
    Facebook page:
    https://www.facebook.com/livingwithlongcovid/
    Instagram:
    https://www.instagram.com/julie_livingwithlongcovid
    Planners:
    https://amzn.eu/d/9v9MP4v
    Return to work planner:
    https://amzn.eu/d/1QVK8zn
    Well being planner:
    https://amzn.eu/d/a1Safxc

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    38 mins
  • Alexander Taylor - Creating a safe space
    Apr 28 2024

    Send us a Text Message.

    In today's episode of the podcast I talk with my son Alexander.
    Alexander and I were talking some time ago, and he explained to me this concept of "safe space" which he had been thinking about. He explained he was developing and applying this to everyday life, but specifically to the salon he works in. He currently works at Rebecca Dickinson's salon in Bawtry; RD hair, body and soul; Alexander talks about how he wants to make sure the salon he works in is accessible to all, considering physical, emotional and mental health.
    We discuss how he is the "safe space" for his clients and the salon environment and his colleagues are his "safe space". We talk about adaptations, accessibility, future plans and opportunities and how other services could implement safe space for inclusion and so much more. This is an inspiring podcast and I thank my son for joining me.
    As always #onedayatatime take care, see you on the next podcast.

    Links from today's episode:
    https://www.facebook.com/Alexander__hair
    https://www.instagram.com/Alexander__hair
    https://www.facebook.com/RDhairbodyandsoul
    https://www.instagram.com/RDhairbodyandsoul
    https://www.mind.org.uk

    My Links:
    Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: longcovidclinic@howellmedicalgroup.co.uk for more information

    Linktree:
    https://linktr.ee/joulest
    X
    https://twitter.com/julieTa58407536
    Facebook page:
    https://www.facebook.com/livingwithlongcovid/
    Instagram:
    https://www.instagram.com/julie_livingwithlongcovid
    Planners:
    https://amzn.eu/d/9v9MP4v
    Return to work planner:
    https://amzn.eu/d/1QVK8zn
    Well being planner:
    https://amzn.eu/d/a1Safxc

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    43 mins

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