• MS-Perspektive - The Multiple Sclerosis Podcast

  • By: Nele Handwerker
  • Podcast

MS-Perspektive - The Multiple Sclerosis Podcast By cover art

MS-Perspektive - The Multiple Sclerosis Podcast

By: Nele Handwerker
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  • Summary

  • In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis. Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics related to living with MS as well as other affected people. In addition, there are a few episodes that serve the relaxation, positive attitude and stimulation.
    2023
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Episodes
  • #071: Insights into MS treatment in Colombia with neurologist Dr. Adriana Casallas Vanegas

    #071: Insights into MS treatment in Colombia with neurologist Dr. Adriana Casallas Vanegas
    Jul 24 2024
    Dr. Adriana Casallas V. provides insights into the treatment and care of MS patients in Colombia including improvements and challenges. You can find all questions and answers to read through on my blog: https://ms-perspektive.com/71-adriana-casallas MS has long been known as an orphan disease in Colombia, but the increasing number of newly diagnosed patients is changing this picture. Dr. Adriana Casallas Vanegas is an MS specialist who is committed to providing the best possible care for people with MS. She studies multiple sclerosis management at the European Charcot Foundation and is a Fellow of the organization. Patients living with NMOSD or MOGAD also benefit from her fascination with demyelinating diseases. In the interview, Adriana provides insights into the Colombian healthcare system and contact points where those affected can find support. <\/path><\/svg>"},"minimize_box":"yes","minimized_on":"tablet","hierarchical_view":"yes","min_height":{"unit":"px","size":"","sizes":[]},"min_height_tablet":{"unit":"px","size":"","sizes":[]},"min_height_mobile":{"unit":"px","size":"","sizes":[]}}" data-widget_type="table-of-contents.default"> Table of Contents Introduction – Who is Dr. Adriana Casallas Vanegas? Prevalence and Awareness of MS in Colombia Quality of Life for MS Patients in Colombia Access to Treatment and Support Services Social Support and Coping Mechanisms Multiple Sclerosis Management Master program Gender disparities in multiple sclerosis research and leadership Quickfire Q&A Session Farewell Introduction – Who is Dr. Adriana Casallas Vanegas? I am a neurologist specializing in demyelinating diseases. I spent some time studying in Spain and Mexico to prepare myself in the best way for patients. I am currently finishing my master’s degree in multiple sclerosis at the European Charcot Foundation, and soon I will go to Cemcat with the ECTRIMS scholarship. I am from Colombia and live an hour away from Bogotá, the capital of Colombia. I have 2 dogs named Bubba and Tango. I enjoy spending time with them, walking in nature, biking, and playing tennis. I come from a loving family that is always surrounded by many animals. I have a cheerful personality and I am always eager to learn new things and explore different trades. I am also very curious about technology, music, and literature. Finally, what message of hope or encouragement would you like to share with the listeners? I want to express my deep gratitude to Colombian patients. Their invaluable contribution is pivotal for the advancement of treatments, knowledge, and strategies aimed at improving comprehensive management. Their unwavering strength and patience are fundamental to our progress. I want to emphasize that they are not alone, and together, we can achieve remarkable results. Lastly, I want to instill a message of hope; although the journey is long, we are committed to triumphing hand in hand. How and where can interested people follow your research activities? You can follow my Instagram dracasallasneurologia. Also, you can find research and MS activities at X platform acv_adri. --- Many thanks to Adriana for all her commitment and efforts to improve the lives of people with MS in Colombia. See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.
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    42 mins
  • #070: Teriflunomide (Aubagio) for relapsing remitting MS

    #070: Teriflunomide (Aubagio) for relapsing remitting MS
    Jul 17 2024
    Teriflunomide (Aubagio) is approved as disease-modifying therapy for mild to moderate RRMS from 10 years of age. You can find the full article to read on my blog: https://ms-perspektive.com/70-teriflunomide This time it’s about teriflunomide, which is known under the trade name Aubagio. The immunotherapy is used for mild to moderate courses of relapsing forms of MS. Teriflunomide also has a broader mechanism of action and is one of the immunomodulating drugs. Please remember that I can only provide an overview here. Ask your neurologist and MS nurse for detailed advice on choosing the right therapy for you. They should know your complete state of health and be aware of your goals, wishes, fears and preferences. <\/path><\/svg>"},"minimize_box":"yes","minimized_on":"tablet","hierarchical_view":"yes","min_height":{"unit":"px","size":"","sizes":[]},"min_height_tablet":{"unit":"px","size":"","sizes":[]},"min_height_mobile":{"unit":"px","size":"","sizes":[]}}" data-widget_type="table-of-contents.default"> Table of Contents General Information How is teriflunomide (Aubagio and generics) classified in immunotherapies? What is teriflunomide (Aubagio) approved for? What is the situation for special patient groups? Who should avoid teriflunomide? How does teriflunomide works? How is it taken? How effective is teriflunomide (Aubagio and generics)? Risks and side effects of teriflunomide (Aubagio and generics) Vaccinations Sources Final note Sources I used the following sources to create the content: Quality manual of the KKNMS on teriflunomide (Aubagio)MS-Selfie Infocards by Prof. Dr. Gavin Giovannoni German Multiple Sclerosis and Fertility Registry (DMSKW) Information from the German interview with Prof. Dr. Barbara Kornek on pediatric MS DMSG information on teriflunomideDECIMS information on teriflunomide Final note Please remember, there is no one great medication that helps everyone, but it must always be weighed up what suits a particular person best. Other illnesses, personal goals and preferences must also be taken into account. Your neurologist and MS nurse are the right persons to talk to and can make individual recommendations. This article is for information purposes only and does not constitute a recommendation. What helps one person may not help another. I hope that, together with your neurologist and MS nurse, you will quickly find the right immunotherapy for you. And that you can lead a fulfilled, happy and self-determined life with MS, supported by a healthy lifestyle and a dose of fortune. --- You may also want to look at the posts on the other DMTs: Dimethyl fumarate (Tecfidera) and diroximel fumarate (Vumerity)Glatiramer acetate (Copaxone, Brabio)Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif) See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.
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    19 mins
  • #069: Beyond Boundaries. Advocacy, Research, and Recognition in MS with Rachel Horne

    #069: Beyond Boundaries. Advocacy, Research, and Recognition in MS with Rachel Horne
    Jul 10 2024
    MS patient and advocate Rachel Horne sponsors a prize for women in MS research and campaigns for more diversity in clinical trials. You can read all questions and answers on my blog: https://ms-perspektive.com/69-rachel-horne Rachel Horne was diagnosed with multiple sclerosis at the age of 43, when she felt fit and healthy. She established the Rachel Horne Award to raise the visibility of women in MS research. The selection is made by a number of volunteers from International Women in MS according to clear criteria. Rachel also advocates for a more diverse group of study participants in clinical trials. This could help to find the right treatment for each individual MS patient, regardless of age, gender, ethnicity or co-morbidities. The greater the diversity of the study population, the better it is possible to assess effects and find out who benefits most and who does not. <\/path><\/svg>"},"minimize_box":"yes","minimized_on":"tablet","hierarchical_view":"yes","min_height":{"unit":"px","size":"","sizes":[]},"min_height_tablet":{"unit":"px","size":"","sizes":[]},"min_height_mobile":{"unit":"px","size":"","sizes":[]}}" data-widget_type="table-of-contents.default"> Table of Contents Introduction - Who is Rachel Horne? Personal Experiences and Coping Strategies Rachel Horne Prize for Women's Research in MS Exploring the Influence of Gender and Ethnicity Patient Advocate Activities Quickfire Q&A Session Farewell Introduction - Who is Rachel Horne? My name is Rachel. I was born in Canada and have lived in the UK for more than 30 years. I was diagnosed with MS in 2009 – about 15 years ago. I am married and have two adult children. Hobbies – I have to say reading! Finally, what message of hope or encouragement would you like to share with individuals living with MS? I think it is so easy to forget that treatment into MS is a neurological success story. We now have over 20 drugs to treat our disease. People are living longer, better lives with the disease. The days of ‘diagnose and adios” are gone… though I am aware there are many countries in the world where this is not so. How and where can interested people find you online? I am on X (formerly Twitter): @RachelHorne19 --- Thanks to Rachel for all her efforts in making the world more diverse and balanced, See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.
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    1 hr
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