• MS-Perspektive - The Multiple Sclerosis Podcast

  • By: Nele Handwerker
  • Podcast

MS-Perspektive - The Multiple Sclerosis Podcast By cover art

MS-Perspektive - The Multiple Sclerosis Podcast

By: Nele Handwerker
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  • Summary

  • In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis. Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics related to living with MS as well as other affected people. In addition, there are a few episodes that serve the relaxation, positive attitude and stimulation.
    2023
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Episodes
  • #068: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, …) for CIS, RRMS & SPMS

    #068: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, …) for CIS, RRMS & SPMS
    Jul 3 2024
    Interferon-beta (Avonex, Betaferon, Extavia, Plegrid,y Rebif) is used as a disease-modifying therapy for mild to moderate RRMS, CIS & SPMS. You can find the full article to read on my blog: https://ms-perspektive.com/068-interferons In today’s article, I present interferon-beta, which include several active substances and are known as Avonex, Betaferon, Extavia, Plegridy, Rebif, or under other trade names. They are all approved disease-modifying drugs for relapsing forms of MS. They are used for mild and moderate courses of the disease. Like glatiramer acetate and fumarates, which have already been presented, interferons have a broader mechanism of action. In the following, I will try to provide a good overview without delving into all the details. And as always: seek advice from MS specialists who know your individual situation, your wishes, your fears and your general state of health. <\/path><\/svg>"},"minimize_box":"yes","minimized_on":"tablet","hierarchical_view":"yes","min_height":{"unit":"px","size":"","sizes":[]},"min_height_tablet":{"unit":"px","size":"","sizes":[]},"min_height_mobile":{"unit":"px","size":"","sizes":[]}}" data-widget_type="table-of-contents.default"> Table of Contents General Information How are interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, and generics) classified in immunotherapies? What is interferon-beta approved for? What is the situation for special patient groups? Who should avoid interferon-beta? How does interferon-beta works? How is it taken? How effective is interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, and generics)? Risks and side effects of interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif and generics) Vaccinations Sources Final note Sources I used the following sources to create the content: Quality manual of the KKNMS on interferon-betaMS-Selfie Infocards by Prof. Dr. Gavin Giovannoni German Multiple Sclerosis and Fertility Registry (DMSKW) Information from the German interview with Prof. Dr. Barbara Kornek on pediatric MS DMSG information on interferon-betaDECIMS information on interferon-beta Final note Please remember, there is no one great medication that helps everyone, but it must always be weighed up what suits a particular person best. Other illnesses, personal goals and preferences must also be taken into account. Your neurologist and MS nurse are the right persons to talk to and can make individual recommendations. This article is for information purposes only and does not constitute a recommendation. What helps one person may not help another. I hope that, together with your neurologist and MS nurse, you will quickly find the right immunotherapy for you. And that you can lead a fulfilled, happy and self-determined life with MS, supported by a healthy lifestyle and a dose of fortune. --- You may also want to look at the posts on the other DMTs: Dimethyl fumarate (Tecfidera) and diroximel fumarate (Vumerity)Glatiramer acetate (Copaxone, Brabio) See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.
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    22 mins
  • #067: MS Speech Therapy Insights. Enhancing Communication and Swallowing

    #067: MS Speech Therapy Insights. Enhancing Communication and Swallowing
    Jun 26 2024
    Discover how speech therapists can address often overlooked MS-related swallowing and communication disorders for timely intervention. You can find the written version to read on my blog: https://ms-perspektive.com/67-speech-therapy Swallowing and speech disorders usually play a subordinate role in the perception of patients. However, problems with swallowing occur in up to 40% and with speech in around 75% of all MS patients during the course of the disease. This episode is about how you can recognize that there is a problem and, above all, what you can do about it. After all, eating and drinking as well as socializing with other people are among the absolute basic needs. A speech therapist can help you to learn how to swallow or speak again. You can find out more in the article. <\/path><\/svg>"},"minimize_box":"yes","minimized_on":"tablet","hierarchical_view":"yes","min_height":{"unit":"px","size":"","sizes":[]},"min_height_tablet":{"unit":"px","size":"","sizes":[]},"min_height_mobile":{"unit":"px","size":"","sizes":[]}}" data-widget_type="table-of-contents.default"> Table of contents When do swallowing and speech disorders occur? How do swallowing and speech disorders manifest themselves in multiple sclerosis? What triggers lead to swallowing and speech disorders? What tests are carried out to make the diagnosis? Effects of MS-related swallowing and speech disorders What can you do yourself to treat swallowing and speech disorders? How can speech therapy help you with MS-related swallowing and speech disorders? Is there medication for swallowing and speech disorders in multiple sclerosis? What other options are available? What is the best prevention against swallowing and speech disorders in MS? Food for thought Question for you Food for thought If you occasionally have slight problems with swallowing or speaking that you didn’t have before, then simply get it checked by a specialist, be it your neurologist or a speech therapist. It is almost always the case that early intervention leads to a better prognosis. Question for you Have you ever had problems with swallowing or speaking? And was there possibly a connection to multiple sclerosis? --- Maybe you are interested in the other articles about MS symptoms: Finding Joy Again. Navigating MS-Related Sexual DysfunctionOvercoming MS Sleep Challenges for Restful Nights and Brighter Days.Depression and MS. How to find your way back to emotional balanceLiving Fully with MS. Managing Bladder and Bowel DisordersMS Symptom Pain. How to regain your quality of lifeSpasticity in MS – far more than normal muscle crampsMovement restrictions in MS – how to maintain your strength, balance and mobility in the best possible wayClearing the Fog – Understanding Vision Problems in Multiple SclerosisCognitive disorders in MS – when the mind goes on strike See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast episodes published so far.
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    16 mins
  • #066: Pioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara Samadzadeh

    #066: Pioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara Samadzadeh
    Jun 19 2024
    Dr. Sara Samadzadeh contributes to research in the field of NMOSD and MS by creating networks between young researchers worldwide. You can find all questions and answers as well as all links on the blog article: https://ms-perspektive.com/066-sara-samadzadeh Multiple sclerosis and NMOSD have made tremendous advances in treatment due to research conducted over the past decades. Nevertheless, there is still much to be done. It is therefore all the more important that this area of neurology continues to attract young, committed and motivated scientists who contribute their own ideas and network with each other. Dr. Sara Samadzadeh is one of these young scientists. As President of the European Charcot Foundation Young Investigators, she promotes initiatives such as women in research and faster diagnosis in Iran, her home country. She is also an ambassador for the Sumaira Foundation, which campaigns for NMO and MOGAD patients. Find out more in the interview. <\/path><\/svg>"},"minimize_box":"yes","minimized_on":"tablet","hierarchical_view":"yes","min_height":{"unit":"px","size":"","sizes":[]},"min_height_tablet":{"unit":"px","size":"","sizes":[]},"min_height_mobile":{"unit":"px","size":"","sizes":[]}}" data-widget_type="table-of-contents.default"> Table of Contents Introduction – Who is Dr. Sara Samadzadeh? European Charcot Foundation Young Investigators Sumaira Foundation Ambassador Quickfire Q&A Session Farewell Introduction – Who is Dr. Sara Samadzadeh? Hi, thank you so much for having me today, and congratulations on your wonderfully friendly, informative, and unique podcast. My name is Sara, and I am a medical doctor and I have clinical neurology training in my background. I have started on a PhD/Postdoc pathway in neuroimmunology and neuro-ophthalmology at Southern Denmark University, in collaboration with Charité University Hospital and Research Center. I am originally from Tehran, the capital city of Iran, I am currently residing in the beautiful city of Berlin. I moved to Germany about 6-7 years ago, initially settling in Southern Germany. I had the privilege of working at Düsseldorf University Hospital under the guidance of Prof. Peter Hartung and Prof. Meuth in the MS field, and then with Prof. Friedemann Paul. I have a passion for learning languages and enjoy networking with different cultures. My travels and life experiences span over 40 countries, including living in several of them for extended periods. Aside from my professional pursuits, I love engaging in sports, particularly jogging and running in nature. My favorite spot at the moment is the Tiergarten in Berlin. Finally, what message of hope or encouragement would you like to share with the listeners? To everyone living with MS and NMO spectrum diseases, please hold onto hope. Every day, we are witnessing and contributing to new breakthroughs in the scientific understanding and treatment of these complex conditions. Through dedicated research, we are constantly uncovering more about the underlying mechanisms of these diseases and developing innovative treatments that promise better outcomes. Remember, you are not alone in this journey. There is a vibrant global community of researchers, clinicians, healthcare providers, and fellow patients all united in their commitment to fight these diseases. Together, we are working tirelessly to push the boundaries of what’s possible in medical science and patient care. As we look to the future, let us remain optimistic and proactive. Continued advancements are on the horizon, driven by our collective efforts and the shared goal of significantly improving the lives of all of you. Your strength, courage, and stories inspire us every day, and they reinforce the importance of our work. Together, we will continue to make strides toward more effective treatments and, ultimately, cures for these conditions. Empower, Engage, Overcome: Together for a Stronger MS Community How and where can interested people follow your research activities? Interested individuals can follow my research activities and updates through my publications on academic platforms, presentations at conferences, or on professional social media profiles such as LinkedIn and ResearchGate. (Instagram social activities and professional activities) https://www.researchgate.net/profile/Sara-Samadzadeh https://www.linkedin.com/in/sara-samadzadeh-21895965/?originalSubdomain=de https://scholar.google.com/citations?user=FeK7rcsAAAAJ&hl=en Sara Samadzadeh (@SaraSamsS20Ss) Sara.leia.sam (Instagram account) --- A big thank you to Sara for her dedication and efforts that ultimately benefit patients through better care, patient-centered work and motivated scientists in the field of MS and NMOSD. See you soon and try to make the best out of your life, Nele For more information and positive thoughts, subscribe to my newsletter for free. Click here for an overview of all podcast ...
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    49 mins
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