Episodes

  • Nancy Muir, Founder of Miles4Hips, On Her Hip Dysplasia Journey

    Nancy Muir, Founder of Miles4Hips, On Her Hip Dysplasia Journey
    Aug 14 2024
    Nancy Muir’s diagnosis journey has been more difficult than any marathon she has ever run. During her 24th marathon, Nancy began experiencing hip pain that concerned her enough to seek medical care. She was diagnosed with hip dysplasia, a condition where the hip socket doesn’t fully form or cover the […]
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    1 hr and 36 mins
  • Living With Dyscalculia, A Math Learning Disability

    Living With Dyscalculia, A Math Learning Disability
    Aug 7 2024
    Numbers never made sense to Michelle. She would struggle to follow the steps in a math problem, could not tell time from the face of a clock and could not memorize her multiplication tables. At an early age she was diagnosed as having a learning disability, eventually identified as dyscalculia. […]
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    50 mins
  • Kevin Has A New Diagnosis, and New Insight Into Applying for Disability

    Kevin Has A New Diagnosis, and New Insight Into Applying for Disability
    Jul 24 2024
    This week Kevin returns to the Major Pain podcast to catch us up on his health journey. The big news is that he was recently diagnosed with Ménière’s disease, adding one more diagnosis to his already long list. He was also finally approved for disability, and he discusses this process […]
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    58 mins
  • Living with Systemic Juvenile Idiopathic Arthritis, AKA Still’s Disease

    Living with Systemic Juvenile Idiopathic Arthritis, AKA Still’s Disease
    Jul 17 2024
    While AK’s peers were shopping for prom dresses and applying to college, she spent senior year self-advocating and undergoing hospitalizations. AK had been diagnosed with juvenile arthritis at 12 years old after experiencing jaw and ankle pain. Subsequently, the flares became increasingly systemic with daily spiking fevers. AK shares how […]
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    1 hr and 24 mins
  • Ali DiGiacomo On Spoonies Being Accused of Using Illness for Likes and Views

    Ali DiGiacomo On Spoonies Being Accused of Using Illness for Likes and Views
    Jul 10 2024
    A few years ago, Ali DiGiacomo was shocked to discover her face on a Daily Mail article called ‘Addicted to being sad: Teenage girls with invisible illnesses – known as ‘Spoonies’ – post TikToks of themselves crying or in hospital to generate thousands of likes – as experts raise concerns […]
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    1 hr and 8 mins
  • Living with Hypersomnia: Sunny’s Story

    Living with Hypersomnia: Sunny’s Story
    Jul 3 2024
    Sunny did not consider her diagnosis as a major pain, but rather a “major inconvenience,” until she realized how affected her daily life was. Since childhood, Sunny battled to stay awake during the day. She experienced sudden waves of drowsiness and her eyelids feeling heavy, which often would not resolve […]
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    1 hr and 17 mins
  • Avery’s Acromegaly: “It’s All in Your Head”… but Something Is Actually in My Head!

    Avery’s Acromegaly: “It’s All in Your Head”… but Something Is Actually in My Head!
    Jun 26 2024
    Avery was gearing up for senior year of college when she began to notice painful changes in her body. Her initial symptoms included difficulty sleeping and intense jaw pain. Avery also began to notice growth in her facial features, hands and feet. She thought these changes could be from another […]
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    1 hr and 29 mins
  • Demystifying Functional Neurological Disorder: Sydney’s Story

    Demystifying Functional Neurological Disorder: Sydney’s Story
    Jun 19 2024
    Sydney Anne Bennett lives with functional neurological disorder (FND), which is a condition where the brain doesn’t communicate properly with the nervous system. Sydney’s symptoms include chronic pain, hallucinations, loss of taste, trouble sleeping, hand paralysis, seizures, ataxia, muscle spasms, fatigue, and difficulty using her legs. Consequently, after a year […]
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    1 hr and 8 mins