Multiple Sclerosis Society of Ireland Podcast  By  cover art

Multiple Sclerosis Society of Ireland Podcast

By: Thomas McCarthy
  • Summary

  • The MS Ireland Mulriple Sclerosis Podcast share stories from the MS community in Ireland.


    Multiple Sclerosis is a condition of the brain and spinal cord (central nervous system). The central nervous system acts like a switchboard sending electrical messages along the nerves to various parts of the body. These electrical messages instruct the body to perform various tasks, such as movement or thought.


    Most healthy fibres are insulated by myelin, a fatty substance which aids the flow of messages. In MS, the myelin breaks down or becomes scarred. This distorts or even blocks the flow of messages, resulting in the many symptoms of MS. 


    Many people explain MS like a faulty electrical flex on a kettle. If the insulating flex breaks, it exposes the wires underneath making them more vulnerable to damage.


    A diagnosis of MS will bring up lots of questions and concerns; some practical, some more emotional and sensitive. MS Ireland has compiled a list of commonly asked first questions about the condition. While this will give you an insight into what the condition is, you may find the rest of the Living with MS section helpful to understand what living with MS can be like.


    Website: https://www.ms-society.ie

    Twitter: https://twitter.com/msireland

    Facebook: https://www.facebook.com/MultipleSclerosisIreland/

    Instagram: https://www.instagram.com/multiple_sclerosis_ireland/

    YouTube: https://www.youtube.com/user/MSSocietyIRELAND


    MS Ireland is registered in Ireland as a charity.


    Hosted on Acast. See acast.com/privacy for more information.

    Thomas McCarthy
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Episodes
  • Progressive MS Webinar - How to find purpose and vitality, living with MS
    Dec 10 2021

    In the ninth episode of the Progressive Multiple Sclerosis Webinar Series, Robert Joyce interviews Dr Jonathan Egan to learn how to find purpose in life.


    Robert Joyce was diagnosed with Relapsing Remitting MS in 1992 and now has Secondary Progressive MS. He has a blog and podcast where he shares his experience of living with MS and chronic pain (www.a30minutelife.com).


    Dr Jonathan Egan is an academic and chartered health and clinical psychologist. He has also trained in both attachment and affect phobia therapies. His research has been in relation to trauma, its effect on a person's psychophysiological well-being. His other clinical and research interest is in how our own learned internal models of relationships which we learn in childhood can affect both professional caregivers and in people who are diagnosed with chronic health conditions and whether they can learn to improve their ability to seek help effectively (without shame) in order to receive effective care and to be 'met as a person' who is an expert by-experience in their own health status and needs.


    https://www.ms-society.ie/

    https://twitter.com/MSIRELAND/

    https://www.facebook.com/MultipleSclerosisIreland/

    https://www.instagram.com/multiple_sclerosis_ireland


    Hosted on Acast. See acast.com/privacy for more information.

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    47 mins
  • Progressive MS Webinar - Physiotherapy with Prof Susan Coote
    Nov 12 2021

    In the eighth episode of the Progressive Multiple Sclerosis Webinar Series, Robert Joyce interviews Prof Susan Coote to learn how we can use physiotherapy to help progressive MS.


    Robert Joyce was diagnosed with Relapsing Remitting MS in 1992 and now has Secondary Progressive MS. He has a blog and podcast where he shares his experience of living with MS and chronic pain (www.a30minutelife.com).


    Dr Susan Coote is a physiotherapist specialising in neurological rehabilitation. For over 15 years she led the MS research team at UL researching the benefits of exercise and physical activity to reduce symptom severity and improve quality of life for people with neurological conditions living in the community.

    Prof Coote has published over 70 research papers and received over €1.5m in research funding supervising many PhD students in the area of exercise and MS.

    She currently works in MS Ireland running projects funded by SlainteCare integration fund, the Social Innovation Fund and Disability Services which implement into practice the research findings and learnings of the benefits of exercise.


    Hosted on Acast. See acast.com/privacy for more information.

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    47 mins
  • Progressive MS Webinar Series - research with Dr Una FitzGerald
    Sep 23 2021

    In the seventh episode of the Progressive Multiple Sclerosis Webinar Series, Robert Joyce interviews Dr Una FitzGerald to learn about research into MS in Ireland.


    During the interview Una mentioned two studies and these are the links.


    PMSMatTrain (which stands for progressive MS-Material-Training): https://pmsmattrain.eu/

     

    AIMS-RN (which stands for All-Ireland MS Research Network): https://aims-rn.org/


    Robert Joyce was diagnosed with Relapsing Remitting MS in 1992 and now has Secondary Progressive MS. He has a blog and podcast where he shares his experience of living with MS and chronic pain (www.a30minutelife.com).


    Dr FitzGerald's research focus is on developing an understanding of the molecular mechanisms underlying neurodegenerative disorders such as multiple sclerosis and Parkinson's disease. After graduating from NUI Galway with a BE (Industrial) in 1983 and an MSc in Biotechnology in 1985, she worked in the biotech sector for five years before returning to academia to copmlete a PhD in molecular biology at the University of Strathclyde, Glasgow. Dr FitzGerald returned to Ireland in 2003, taking up a lectureship in biomedical engineering at NUIG in 2005. Since then the main focus of the FitzGerald group has been multiple scelosis and other brain disorders including Parkinson's disease. The group has also studied the normal development of the cerebellum.


    Dr FitzGerald is the Director of the Galway Neuroscience and she represents MS Ireland on the MS International Federation's International Medical and Scientific Board. She has also recently joined the committee of the Dementia and Neurodegeneratin Network, Ireland. Since May 2019, she is coordinating a €3.9 million EU-funded project that aims to work with researchers from Denmark, Germany, Belgium, France, Italy, Spain and the Czech Republic to create new devices and treatments for multiple sclerosis.


    In effort to reduce the negative impact that lab research has on the enviroment, Dr FitzGerald initiated the 'Galway Green Labs' effort at NUIG, triggering the implmentation green practices the CÚRAM lab, in preparation for green lab certification' (see mygreenlab.org), which was awarded in late 2019. For more information on this achievement, watch our documentary movie 'The time to green our labs is now' (https://vimeo.com/375847945).


    https://www.ms-society.ie/

    https://twitter.com/MSIRELAND/

    https://www.facebook.com/MultipleSclerosisIreland/


    Hosted on Acast. See acast.com/privacy for more information.

    Show more Show less
    47 mins

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New info from those who live withprog. MS...

I enjoyed the honesty and discussions. Doctors do not have the time in the US. Thanks!

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