“People judge before they stand back and think, you know, there might be another reason for, for a person behaving the way that they do.”

Peta Hooke interviews Helle about Pome disease and some of the everyday challenges Helle faces from getting dressed, to speaking to getting around.

Pompe disease is a rare, inherited, and without treatment, often fatal muscular disorder. Pompe Disease is caused by a deficiency or total lack of the enzyme acid alpha glucosidase. This enzyme is responsible for breaking down excess glycogen which normally accumulates in the muscles.

For more information about Pompe disease, please visit https://australianpompe.org.au/find-out-more/

If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.

The Sunflower Conversations is a Podcast where we explore the experiences of people living with hidden disabilities and what the Sunflower means to them. It’s a space to share your experience and to empower and encourage more people to support invisible disabilities.

A big thank you to Peta Hooke for conducting the interviews with compassion and respect and to Sandee Facy for the beautiful Sunflower song. You can follow Peta's I can't stand podcast here and Sandee Facy's music here.

If you want to share your experience, get in touch with us by emailing us here.

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Find out more about the Sunflower by visiting the website hdsunflower.com