Schizophrenia: Three Moms in the Trenches  By  cover art

Schizophrenia: Three Moms in the Trenches

By: Randye Kaye
  • Summary

  • Schizophrenia in the Family. How do we cope? How can we help? We each have adult sons with schizophrenia and have written acclaimed books about it. We say it like it is, to help families, practitioners and those with SMI (serious mental illness) feel less alone...and learn. Randye Kaye, Mindy Greiling, Miriam Feldman...and guests.
    © 2024 Schizophrenia: Three Moms in the Trenches
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Episodes
  • What Will Happen When We’re Gone? Trusts, Pooled Trusts and More-Ep. 99
    Jul 24 2024

    Send a Text to the Moms

    What Will Happen When We’re Gone? Trusts, Pooled Trusts and More-Ep. 99

    Guest: Megan Brand, Colorado Fund for People with Disabilities Executive Director

    Dani Page, JD (her other episodes with us are Episodes 50 and 70)

    In its simplest form, a Trust is a relationship, in which one person holds title to property, subject to an obligation to keep or use the property for the benefit of another..


    We ask:

    • Can we use Trusts to help our loved ones with SMI - now, and after we are gone?
    • Some of the differences between Pooled Trusts and Individual Trusts?
    • How to evaluate Pooled Trust Organizations or other Trustees when considering who to name as trustee


    • How does the Secure Act impact the ability to provide support through inherited IRA's
    • Language in trust documents to cloak our loved ones from creditors getting ahold of trust money needed to support their lives after we are dead.
    • What can we set up now so that our loved ones will be okay after we are gone….and not to put a huge burden on their siblings?



    Links:


    https://www.cfpdtrust.org/


    www.cfpdtrust.org

    https://nationalplanalliance.org/programs/

    https://aptrusts.org/


    Elder Law Attorneys:


    https://www.naela.org/


    Certified Elder Law Attorneys (CELA):


    https://www.americanbar.org/groups/senior_lawyers/resources/voice-of-experience/2010-2022/what-cela/



    Mindy and her book: https://mindygreiling.com/

    Randye and her book: https://www.randyekaye.com/

    Miriam and her book: https://www.miriam-feldman.com/

    iMOM Podcast
    If you need a mom friend right now, you’ve come to the right place. On iMOM.com we...

    Listen on: Apple Podcasts Spotify

    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman


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    1 hr and 5 mins
  • Purpose, Belonging, Community: Starting and Opening an International Clubhouse for People with MI -Ep. 98
    Jul 17 2024

    Send a Text to the Moms

    Purpose, Belonging, Community: Starting and Opening an International Clubhouse for People with MI -Ep. 98


    A New International Clubhouse in Minnesota, USA!

    Guests:

    Karina Forrest Perkins , Chad Bolstrom, Vail Place

    Nishi and Margaret, Members


    Vail Ramsey County Clubhouse in MN, USA had a huge turnout for its Grand Opening event and ribbon cutting ceremony. Vail Communities in Minneapolis is spearheading the Clubhouse expansion.

    The Clubhouse is a "One-Stop Shop", functioning as a community-based hub, a single point for people to access, integrate, and coordinate a range of services to work toward mental health recovery.

    How Can YOU start one?

    The Vail Communities Clubhouses are just two of over 300 programs that follow the Clubhouse Model. A Clubhouse is a place where members and staff work together side-by-side to operate all aspects of the Clubhouse. The Clubhouse can also help with housing, employment, education, health and wellness and so much more. The Clubhouses also offers a wide variety of social, recreational, and cultural events and activities.


    Links:

    https://vailcommunities.org/clubhouses

    • https://clubhouse-intl.org/what-we-do/what-clubhouses-do/
    • https://clubhouse-intl.org/our-impact/clubhouse-outcomes/
    • https://www.vailplace.org/join/clubhouse-program/
    • https://edition.pagesuite.com/popovers/dynamic_article_popover.aspx?guid=bf1bddf3-b973-4d4d-a523-1d62aa732684&v=sdk&appcode=STP731&eguid=3368cea9-0776-4c6c-86cd-7d731136318b&pnum=1
    • https://www.minnpost.com/mental-health-addiction/2024/02/vail-place-poised-to-open-mental-health-clubhouse-in-st-paul/
    • https://www.youtube.com/watch?v=YLzfYUQ76gc




    Mindy and her book: https://mindygreiling.com/

    Randye and her book: https://www.randyekaye.com/

    Miriam and her book: https://www.miriam-feldman.com/



    iMOM Podcast
    If you need a mom friend right now, you’ve come to the right place. On iMOM.com we...

    Listen on: Apple Podcasts Spotify

    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman


    Show more Show less
    1 hr and 3 mins
  • Cannabis and Mental Illness - Is Marijuana to Blame for Psychosis?-Ep. 97
    Jul 2 2024

    Send a Text to the Moms

    Guests : Laura Balboni Craciun, Policy Director National Shattering Silence Coalition, MA, and Arundati (Arun) Nagendra, Ph.D.

    At the recent S&PAA conference (Mindy ) and at the Johns Hopkins schizophrenia symposium (Mimi and Randye) , as well as on our Facebook page, many families tell us their stories about cannabis - many now see it as causing, or at least triggering psychosis. That led us to this episode.

    Although schizophrenia contains a spectrum of symptoms and influences, many now believe that marijuana was the last straw that “pulled the trigger” which resulted in psychosis and its aftermath - and that, if we’d known the dangers we could have done more to prevent our loved ones from serious mental illness episodes.

    Do science and statistical evidence back this up?

    What can the average advocate do NOW?

    S&PAA Position statement re cannabis: (see more on website or SPAN website)

    1. Oppose legalization of recreational cannabis use
    2. Pair any legalization effort with stringent, practical harm-reduction practices.
    3. Hold the cannabis industry financially accountable.
    4. Implement public health initiatives that educate about the risks of cannabis use.
    5. Conduct research into the effects of cannabis use.
    6. Finance clinical assessment and intervention.

    Links:

    https://sczaction.org/

    SPAN:

    https://span-scz.org/

    SAM -

    https://learnaboutsam.org/

    Johnny’s Ambassadors -

    https://johnnysambassadors.org/research/

    NSSC-

    https://www.nationalshatteringsilencecoalition.org/

    Oppose marijuana rescheduling to the Drug Enforcement Administration (DEA) : https://www.votervoice.net/SAM/Campaigns/115038/Respond

    NSSC-Darrell Hermann’s peer talk on psychosis recovery (including genetic vulnerability and cannabis at 51:00 during the Q&A).

    https://youtu.be/hpR4Jv1o2Gk?si=IMn8rai6x0bokqL5

    Cannabis and psychosis

    http://www.schizophrenia.com/prevention/streetdrugs.html#

    https://www.psychologytoday.com/us/blog/your-brain-on-food/202105/what-really-happens-in-the-brain-during-a-cannabis-high

    Laura’s story in Newsweek:

    https://www.newsweek.com/cannabis-tr

    iMOM Podcast
    If you need a mom friend right now, you’ve come to the right place. On iMOM.com we...

    Listen on: Apple Podcasts Spotify

    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman


    Show more Show less
    1 hr and 1 min

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The First Place You Should Go to Educate Yourself!

My brother has schizophrenia and after taking custody of him, I went to NAMI for support meetings. A woman in the meeting suggested I listen to these podcasts, and I can say that listening to these has had a profound effect on myself as a caregiver and has altered our family's plan for his treatment in a positive way. Along with NAMI, I think it should be a caregiver's first stop for education if you are dealing with serious mental illness. I only wish I had come here first to listen a decade ago so we would have been better armed to deal with all the crises that inevitabley unfold when your loved one is mentally ill and the system around you is broken.

Keep those episodes coming ladies!

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HOPE! Recovery IS probable!

Carson, I am appreciative of your courage and vulnerability to share your story! The messages you delivered here are powerful; ones of expression, determination, and resiliency. YOU are beyond words admirable; you are an advocate! I can’t thank you enough for being a voice for those who are unable to use theirs now. You are a survivor, a warrior, and you radiate HOPE!

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Amazing!!!!

This made me have incredible hope for my son. Made me cry tears of joy! Keep up the great work!
Dorie Steidle

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