• Season II Episode 6: Understanding the Theory of Grief & Loss
    Oct 27 2023

    Understanding the Theory of Grief and Loss

    Grief is a universal human experience that we all encounter in various forms throughout our lives. Whether it's the loss of a loved one, a job, a relationship, or even a sense of normalcy, the emotions we navigate are complex and unique to each individual.

    Learning about the Theory of Grief and Loss has been eye-opening for me. Elisabeth Kübler-Ross's stages – Denial, Anger, Bargaining, Depression, and Acceptance – provide a framework to comprehend the roller coaster of emotions we undergo. It's a reminder that healing isn't linear; it's a journey with twists and turns.

    Embracing these stages can help us validate our feelings and find resilience in the face of adversity. Remember, it's okay to mourn, to feel, and to take the time we need. Let's support each other through these stages and offer kindness to ourselves and others who are navigating grief.

    Let's open up the conversation about grief and loss. Share your thoughts and experiences in the comments below. Together, we can create a space of understanding and compassion.

    To stay connected, visit me on Instagram (@Strongandrareparenting) and/or email me at media@strongeandrareparents.com Thank you for supporting Strong & Rare Parenting

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    26 mins
  • Season II Episode 5: Parenting & Intragenerational Traumas
    Jun 30 2023

    Featuring Jeanette Perez, AMFT & APCC. She is a mama, wife, and Behavioral Health Counselor. She had an educational background in clinical psychology from San Jose State University. A wealth of experience working with multiple non-profits, school districts, and ABA therapy with kids on the autism spectrum for in-home services. She is passionate about helping her local community improve their mental health and support families with special needs. Show highlights:  Navigating Parenting Autism Misconceptions Parenting & impact of Intragenerational Traumas To stay connected, visit me on Instagram (@Strongandrareparenting) and/or email me at media@strongeandrareparents.com Thank you for supporting Strong & Rare Parenting


    --- Support this podcast: https://podcasters.spotify.com/pod/show/strongandrareparenting/support
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    55 mins
  • Season II Episode 4: Celebrating Rare Disease Day 2023!
    Feb 28 2023
    On this episode, we Celebrate Rare Disease Day!  Rare Disease Day® takes place on the last day of February each year. It is international awareness day. This day aims to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally.  Show notes:  Information about Rare Diseases  Challenges caring for and being a patient of rare disease  Rare Disease Organizations  Mental health  Call to Action  To stay connected, visit me on Instagram (@Strongandrareparenting) and/or email me at media@strongandrareparents.com --- Support this podcast: https://podcasters.spotify.com/pod/show/strongandrareparenting/support
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    21 mins
  • Season II: Episode 3 : Welcome back, New Year, New Goals
    Feb 24 2023

    Happy New Year 2023! We are kicking of our year with our Rare Disease Day Celebration. 

    This episode highlights our re-launch for 2023 and topics on a new episode coming soon all about Rare Disease Day. 

     

    --- Support this podcast: https://podcasters.spotify.com/pod/show/strongandrareparenting/support
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    4 mins
  • Season II Episode 2: A Strong & Rare mama into Civic Action
    Oct 16 2022

    Feauturing Cristina Rosa Vargas, Strong & Rare Mama, Paralegal, and Award winner of the Sonofi 2022 torch awards. She has been featured in Rare Revolution magazine and had a pending article with Upstate medical. She is a mama into civic action as she spreads awareness of CLN2 disease. She is working on a petition to support FDA-approved medication for her son's diagnosis. As she continues to be a strong RDLA advocate she is striving to become a lawyer to support the Rare Disease Community. 

    Show highlights: 

    • Her Son's Journey with CLN2 and how she took steps to be a voice for her son and many other families 
    • Her impact award recognition and her dedication to continuing advocating 
    • Purpose in life as a parent and professional 

    Learn more about the work Cristina is doing by  visiting the following links 

    • Link to live Sanofi watch party:  Youtube Video,
    • Link to campaign: Here, Link to FDA citizen petition docket
    • Featured on Rare Revolution magazine

    To stay connected, visit me on Instagram (@Strongandrareparenting), and/or send me an email at info. strongeandrareparents.com

    Support this Podcast: https://anchor.fm/strongandrareparentin

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    32 mins
  • Season II Episode 1: A discussion around SPED IEP, Featuring Dr. Ann Marie John
    Oct 16 2022

    Dr. Ann Marie is the founder and president of I’MPOWER Education Services LLC, an education service that focuses on bridging the gap between parents and schools. She created CORE In-Home Tutoring to service K-12 students in the core subjects. She has worked as a teacher and administrator in K-12 public and private schools. Dr. Ann Marie worked as an educational specialist for the MA Department of Education. She is an expert in providing training in fostering social-emotional competencies in classroom learning; SPED parents and the IEP (individual education process); preparing your child for formal school; social-emotional learning in the classroom; social-emotional competencies and behavior. She strongly believes that parents are a key element in students experiencing the highest level of academic success within the educational system. Strongly committed to a vision of excellence for students with socio-emotional and academic needs in diverse school communities. 

    Show Highlights: 

    • Parenting Power,  Demystifying the IEP, Knowing your parent's rights. 

    Social Media account to connect with Dr. Johns @impowereducation

    To stay connected, visit me on Instagram (@Strongandrareparenting), and/or send me an email at info. strongeandrareparents.com

    Support this Podcast: https://anchor.fm/strongandrareparentin

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    39 mins
  • Episode 10: A journey of Hope, Joy and Adventure, Featuring The Wynter Family
    Jul 23 2022
    Michelle Wynter is a happily married wife, proud Autism mom, and licensed Realtor in PA. She is raising her first and only child, Maverick, with her husband. In 2020 Maverick was diagnosed with Autism. For the Wynter family, this journey has been one of their most challenging and joyful journeys. Listen to their story as she shares their journey of early intervention, co-parenting, and letting go of expectations. Connect with the Whynter Family on Instagram @three_wynters & if you are in PA and would like support with any Realstate, make sure to message Michelle for help.  To stay connected, visit me on Instagram (@Strongandrareparenting) and/or send me an email at media. strongeandrareparents.com . Support this Podcast: https://anchor.fm/strongandrareparentin --- Support this podcast: https://podcasters.spotify.com/pod/show/strongandrareparenting/support
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    56 mins
  • Episode 09: More Than A Diagnosis, Featuring Heather Chamlee
    Jun 18 2022

    This episode #09 S&R features the Chamlee Family. Heather shared her family's Autism Journey, challenges, wins, and new business. 

    Heather Chamlee and her husband and I live in the Southern California desert, raising 3 amazing neurodiverse children, running our own businesses & navigating the world of special needs parenting together! Our oldest, Ranger (7) is autistic and limitedly verbal, learning to communicate with an AAC device. He LOVES being outside in the elements and is fiercely independent & purely magical. Ryder (6) is also autistic and hyperverbal, using lots of echolalia and scripting to communicate. He LOVES to learn about EVERYTHING, is the best snuggler & so funny! Both boys are daring sensory seekers! Hayley (4) has some sensory sensitivities & speech issues that are currently being evaluated. She LOVES taking care of her stuffed babies (animals), playing with EVERYONE & is smart & sassy enough to take over the world one day if she wants! I am a proud mom & wife, and also a photographer, a cookie baker, a date night box creator & a kinda crunchy self-care enthusiast!

    She started a company making at-home date night boxes for special needs parents. It's a project that is SO near and dear to her heart. Visit her Business page at https://morethanjustcaregivers.com/

    To stay connected, visit me on Instagram (@Strongandrareparenting), and/or send me an email at info. strongeandrareparents.com. Support this Podcast: https://anchor.fm/strongandrareparentin



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    1 hr and 12 mins